Welcome new gal, Raw Vegan to the site. Hey, who else cannot take any abx???

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Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 1/18/2009 11:33 AM (GMT -6)   
I don't know what to tell this girl. She has the lyme bad and cannot take abx or anything else for that matter.
I am a walking pharmacy. She lives in Florida now. Any words for her on what she should do?
I told her to come to this forum for help. Because I know others on here have the same problem. smhair
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 1/18/2009 4:37 PM (GMT -6)   
I'd suggest she look into using a Rife Machine, as well as using any herbs she can tolerate (she can try taking the capsules of dried raw herb, or making tea and drinking that). Also, homeopathic remedies for symptoms may be very helpful ~ Ledum is known to help many with Lyme (both humans and animals).
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line).


Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 1/18/2009 10:27 PM (GMT -6)   
Thanks Razzle
I did not know about the herbs. What stuff is homeopathic? What is Ledum?
My 5 year old is having a really hard time with the abx that Dr. J gave her. She can't keep anything down.
And I don't want to push it.
Man reading all of your symptoms...gosh you poor thing. You are making me realize how little I know about al of this razzle. I don't know what half of those things are! Intermittnat Pancytopenia??? what in the world?
When did you get your lyme? And if I already asked you this....sorry. I am just now able to remember things...and people too ...lol
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 1/19/2009 1:05 AM (GMT -6)   
Hi Martha's Vineyard,

First I have to say your success at the clinic in AZ is encouraging to me - thanks for sharing!

Ledum is a homeopathic remedy made from an herb called Marsh Tea. Homeopathy is medicine that is created from real substances, but diluted down to the point that little to none of the original substance remains, but the essence or energy of the original substance remains. It sounds like snake oil, but I've seen some amazing things happen from homeopathy.

It has been a long, hard road (and still is...). Pancytopenia is a fancy way of saying low red blood cells + low white blood cells + low platelets all occurring at the same time. Since I don't have this every time I have a blood test, but do have it periodically, it is considered "intermittant."

I don't know when I got Lyme - but I've had symptoms since 1978.

I don't mind answering questions, so no apology needed.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/19/2009 9:49 AM (GMT -6)   
Razzle and Martha,

Thank you for trying to help. I have been doing herbs and have been having non-stop herxing, stopped sleeping and can't eat. The pain is unreal. I will need to get off the herbs and try the Rife (I have one but have not been able to use it because of the herb protocol was to strong and could not do both at the same time). I will try the Ledum (can you tell me if there is a alternatve Dr. that I can reach). Have either of you heard of Dr Jernigan?


Thank you again,

RV

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 1/19/2009 10:12 AM (GMT -6)   
Hi RV,

I'm thinking that you might need to take a break for a bit from the herbs to allow your body to detox. One thing that can be helpful is comfortably warm epsom salt or baking soda bath soaks to help pull the toxins out.

about the not being able to eat: Do you have a vegetable juicer? If not, I highly encourage you to get one. And a book called, "Fresh Vegetable and Fruit Juices" by Dr. Norman W. Walker. Fresh, raw juices can be very healing to the body because they are so nutrient-dense, and yet they take a minimal amount of digestive effort because there is no fiber and they are full of live enzymes. Try to use organic fruits and vegetables if you do juice...they are more nutritious and haven't been messed up by genetic engineering (and I think organic veggies/fruits taste better...).

Another book I recommend is "The Homeopathic Treatment of Lyme Disease" by Peter Alex. This book explains all about homeopathy and how it can be helpful for Lyme Disease, even long-standing Lyme.

Yes, I've heard good things about Dr. Jernigan and I've heard that his Lyme treatment has a positive track record.

If you make a new topic asking for Lyme-Literate alternative medicine practioners in your area, you might get some recommendations from others on this forum. I live on the opposite side of the US, so I'm not too much help for this...

I hope this helps,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 1/19/2009 11:40 AM (GMT -6)   

Hi Marie and RV,

I got ur email and will respond very soon.  We can discuss potential referrals that would put you under the care of a top specialist for Lyme.  One who could help you rule in/out specific related complicating factors and help guide your treatment w/complimentary medicine - if this is what is most preferred or necessary.  There are patients who are refractory and do not respond well to the drugs.  Usually co-infections as well as other challenges that can be identified and nourished are the root cause.

Razzle, I always appreciate your input.  Always!!  I love learning through your eyes.

Blessings, Sojourner


RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/19/2009 11:44 AM (GMT -6)   
Razzle,

Thank you so much for your help! Yes, I juice, juice, juice and it is the only thing keeping me alive. I eat only organic and am a raw vegan. I have been in amazing health for years since I became one but I was exposed to toxic mold last fall and quickly my health declined.
I am stopping the herbs as you suggested because my body cannot detox fast enough. I have been doing the Epson salt baths but did not use the baking soda, I will try that too. I have been doing Far infared saunas and more but I must be too sensitive and have not been able detox enough. I will get the book on homeopathics. I have also contacted Dr. J.

Thank you again!

Regards,

RV

RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/19/2009 12:01 PM (GMT -6)   
Hi Marie and RV,

I got ur email and will respond very soon. We can discuss potential referrals that would put you under the care of a top specialist for Lyme. One who could help you rule in/out specific related complicating factors and help guide your treatment w/complimentary medicine - if this is what is most preferred or necessary. There are patients who are refractory and do not respond well to the drugs. Usually co-infections as well as other challenges that can be identified and nourished are the root cause.

Razzle, I always appreciate your input. Always!! I love learning through your eyes.

Blessings, Sojourner




Thank you Sojourner. Any info would be greatly appreciated!!

Regards,

RV

RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/19/2009 1:04 PM (GMT -6)   
Hi Gracie's Mom,

I am highly allergic to abx and most all pharma. (multiple chemical sensitivities). No food allergies. I am awaiting more test results from Igenex and also the cd57 from Labcorp but I did test positive in Nov.08, Igm only. I have been sick since October 08 after I was exposed to some type of toxic mold in late Sept. 08. Before that I felt that I was in the most amazing health and never saw a tick bite. My house is in the Hudson valley where there is an epidemic.

I am sorry hear about your daughter! I hope that she will be ok. It is tough enough for an adult to go through this.

Regards,

RV

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/19/2009 1:18 PM (GMT -6)   
Hi Raw Vegan! I am also highly allergic to abx; I tried a lot and had good success with standarized papaya and ananas enzyms med which fights inflammations in the body.
dorit

RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/19/2009 2:29 PM (GMT -6)   
Thank you, Dorit! I will look those things up. Do you have a source for them? How is your condition now?

Sincerely,

RV

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/19/2009 4:01 PM (GMT -6)   
Hi Raw Vegan!
My source is the pharmacy; ingredients are: plant-based enzymes bromelain (pineapple extract) and papain (papaya extract), natural pancreatic enzymes trypsin and chymotrypsin, and the antioxidant flavonoid rutin.

My condition is quite ok at the moment; its been a long long journey till I got diagnosted with lyme; they found west nile too and I need to be re- checked for lupus; the diagnose came out last spring when I went to a dermatologist mostly because I had such a bad "all over the body" allergy; the dermatologist told me that some of my skin irritations look like ACA, which is related to late stage Lyme; got tested positive; I had a lot of symptoms related to lyme, but compared to many here I was one of the lucky ones I would say.

How is your condition? do you see a Lyme doc? Hope you will get better quickly. Greetings from Europe! dorit

RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/19/2009 4:34 PM (GMT -6)   
Dorit, thank you for your response. I am so happy to hear that you are doing well! Right now my condition is very painful but I have hope. I do not have a Lyme doc since they can only give me abx which I am severely allergic to. I can only go the alternative route so thank you again for the valuable info! I am researching everything that I can.

Sincerely,

RV

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 1/19/2009 9:30 PM (GMT -6)   
RV,

Interesting you can't tolerate abx and were mold-exposed... Most abx are derived from mold, so that may help you understand why you can't use most abx. I also know most of the toxic mold symptoms are very similar to Lyme symptoms, so you may need to treat for both. I still think a Rife machine may be the way to go for you, in addition to supporting your immune system with herbs/homeopathics. Stephen Harod Buhner also has an excellent book out called "Healing Lyme" ~ he outlines a core herbal protocol, plus some additional herbs to help deal with detoxing, side-effects, and symptoms.

Also, you may want to look into NutriGenomic testing - these are genetic variants (not overt mutations) that can reduce the effectiveness of the liver's ability to detox chemicals and metabolic byproducts. Check out
http://www.holisticheal.com/health-tests/nutrigenomic-testing/comprehensive-methylation-panel-with-methylation-pathway-analysis.html
and http://heartfixer.com/AMRI-Nutrigenomics.htm for more info. I have no financial connection with either website.

You might also want to consider looking into the use of essential oils to help with mold. My Mom uses them for her mold issues and finds them quite helpful. Be sure to get 100% pure theraputic grade essential oils for maximum benefit.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/20/2009 7:31 AM (GMT -6)   
Wow, Razzle, we are definitely speaking the same language here! Yes, you are right about the mold and it was exactly what I think about the exposure. I have been exposed before in my life and then had long term illness, from systemic candida to parasites, which I did recover from. There is a disruption in the phase 2 detoxication cytochrome p450 system of my body, which may be genetic or severely damaged from chemical or mold exposure in my past. My body cannot process many chemicals and certainly not mold. I was not always like this, though, it started in my early thirties only after taking several courses of abx. Before that I could take abx without a problem. But when I started to have allergies to abx, I rapidly became allergic to many other things, mainly chemicals. The question in my mind is whether I have had Lyme since my early thirties, and all of the chemical problems and mold are an additional side effect. At that time in my life I spent a lot of time outdoors in South Hampton and did not even know what Lyme was.

I have Buhner's book and have been reading it. I have been taking some of the herbs. I am also going to try some other things.

Thank you for you wonderful insight and knowledge! I would love to speak with you.

Sincerely,

RV

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 1/20/2009 4:26 PM (GMT -6)   
Hi RV,

To contact me, click the envelope icon by my name.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/20/2009 6:14 PM (GMT -6)   
Oh Gracie's Mom! You and your daughter have been through so much. I am so sorry for that. I have had some issues in my life (certainly not at the level you are having with your daughter) that remind me of some of the things she has gone through. When I was much younger I took repeated courses of antibiotics for anything from bladder infections to lung infections (I wasn't always allergic). One day, after being on abx for 9 days I had a life threatening reaction where I could not breathe and my throat started to close up. I was rushed to the hospital. From that time on I became allergic to everything including foods, perfumes, etc. I was told that I had systemic Candida. I went on a very restrictive diet of mostly protein and meat for almost 2 years and really got better. The idea is to starve the yeast. My allergies to foods and simple chemicals basically cleared, but not to abx or steroids, sulfas, etc. Many years went by and I was fine as long as I didn't take those drugs until about 4 years ago when I became sick from most all chemicals including simple skin creams and such. I went through a super detox and went on a raw vegan diet which I remain on to this day. My quality of life became amazing. The concept behind the diet is to eat only living foods that have their enzymes intact so they can help to digest the food for you so you don't use vital reserves in your body that are needed for healing and repair. Now, I know that from what you are telling me about your daughter that my situation was not in anyway as frail but I wanted to mention it in case the information can help in any way. I also have tried Naet but have not been able to dive completely into it because of my very painful Lyme symptoms. I think that the mold toxins that I was exposed to have sent me over the edge and my body lost it's balance. I am working to retrieve it the best I can. Any information that I can get from kind people like yourself, helps me and others get one step closer to health and happiness. Thank you so much for sharing your story about you daughter.

Many blessings,

RV

RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/20/2009 6:18 PM (GMT -6)   
Frango,

Yes I really love the book (Buhner's) if only to understand that there are other options to the conventional ways. Thank you for responding!

Sincerely,

RV

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 1/20/2009 6:25 PM (GMT -6)   
Raw Vegan,

There are many alternative treatments for Lymes disease on this board. Lot's of good info on this thread. I used a lot of essential oils that Razzle was talking about when I was being treated for Lyme's . I was being treated by Dr. Jernigan and I would walk out of his clinic smelling like a flower garden! I was very surprised I could handle the oils because I was always so 'smell' sensitive. Perfumes could set off a migraine in minutes. But I had no problems with the oils, fragrant though they were.

Thinking of you,
Wacko woman

SickInCT
Regular Member


Date Joined Nov 2008
Total Posts : 157
   Posted 1/20/2009 6:29 PM (GMT -6)   
Maybe it's just the Lyme fog but im confused. Why can't she take ABX? How about in low dose? I really belive in Rife even though it never fully cured me. I feel that for more advanced Lyme Rife will greatly help but can not do it alone. I did get some pretty interesting results with it though. One Lymie brain cannot do much by itself but when put together we can move mountains.

Post Edited (SickInCT) : 1/20/2009 5:33:37 PM (GMT-7)


RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/20/2009 6:52 PM (GMT -6)   
Hi SickInCT,

People who have multiple chemical sensitivities have a disruption in the phase 2 detoxication cytochrome p450 system of their body, which may be genetic or severely damaged from chemical or mold exposure in the past. My body cannot process many chemicals and certainly not mold. So unfortunately, I cannot take abx because they become poisons.

I think that the Rife machine may be a very viable treatment from what I have read and heard from other people.

Regards,
RV

RAW VEGAN
Regular Member


Date Joined Jan 2009
Total Posts : 49
   Posted 1/20/2009 6:57 PM (GMT -6)   
Wacky Women,

I am going to see about getting some of these oils. Thank you!

Regards,

RV

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 1/20/2009 7:46 PM (GMT -6)   
RV,

I sent you an email - let me know if you don't receive it.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).

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