Post Edited (KeepHope) : 3/8/2009 1:20:41 AM (GMT-7)
Post Edited (skigal) : 1/23/2009 1:33:35 PM (GMT-7)
Hello Everyone -- I read this thread with great interest and thanks for all that you have shared. My 16 year old daughter has had lyme since July 08 (severe onset of symptoms) and was diagnosed officially in October with lyme and babesia. She is taking Zithromax, Plaquenil, Mepron, and Artemisinin. She has had very small progress (hair has stopped falling out, headaches don't always feel like she is being beat with a bat, menstral cycle is back to normal, and although she says that her pain level on a scale of 1-10 is a 12, she said it isn't as bad as it used to be). She stopped walking in August, and cannot stand or walk to this date. She is seeing Dr. J in Connecticut.
We are going to see Dr. K in Connecticut for lyme neurology this week. I am very excited because I have been told that he frequently changes the meds and likes the Biaxin/Plaquenil combo. So I am hopeful to have her try this. He also said that he sees a lot of children that cannot stand or walk due to lyme, and he gets them back in shape.
A couple of weeks ago we thought she had a bladder/kidney infection, so our internist prescribed Cipro for seven days. She didn't end up having an infection, it was just the lyme migrating I guess, but the ironic thing was that she was a totally different person once the Cipro was added. Her voice was at a normal tone, she laughed and was very pleasant, and her entire personality did a 360. Has anyone else heard of this happening with Cipro, or was this just coincidental? After she was off of it she went back to he way she was before.
I am going to mention this to Dr. K when we see him, but I thought I would see if anyone has noticed what she experienced with Cipro. Thanks for any help.