Surgery cancelled today in Scottsdale!

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/19/2009 2:17 PM (GMT -6)   
Oh I just had to give a shout out to my fellow lymie supporter. As sourjourn said...I sounded way to down.
I had to go into for surgery at 6 am this morning to get my port re placed. A bit of a drag, since they would have to remove it from my right side..and get all of the scre tissue out too. And then do it again on my left side.
Not pleasant news to my darling ears. I mean..I have to drive myself..and dress myself..and brush my hair...lol
And who else is going to pick my nose?
But luckily they had me all ready in the operating room and they ran ink through the port..and the surgeon was happy that she saw no blockage. No scar tissue and it, the cathader, was not bent..and the port was fine..
So yippe...I ran out of there before they changed their minds. The directions on the card for the port, that I have to carry, like a medical alert thing. It says to have it flushed once a month. But I think that is not a good idea. I would do it every two weeks. I am too sqeemish to do it myself..god forbid...
But it flowed great till I decided to take a month off and travel and have some fun.
That is the funny thing about this treatment. Or the hard thing. I felt fine after a month and even better after 6 weeks. And I did not want to do it anymore....why?
But...I found out today that it is best for me to lie down all the way to get my flow going both ways heavily. So I wil lay on the floor at the clinic tomorrow...much to thier surprise..
No scratch that. I don't think that I can surprise them with any more things...they know me know...:>)
Yes I am a handful...and yes they have alot of patience. Thank goodness for me!
So sorry for the whinning the other day. Luckily my new boyfriend sent me two dozen roses today...so I am feeling great. At least I know that I have some support out there....somewhere.
And of course with my great friends that I have made on this forum...oh...stop it...now you are making me want to cry...lol
:>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/19/2009 3:57 PM (GMT -6)   
hey Deb,
Oh gosh no, I have to finish my treatment. I am not able to skip out any more. They are hitting me up good this round. With 6 hour treatments 3 times a week. And lots of lymphanic flushes.
I think I have 3 more weeks. Then I am going back home. Finally.
My kids have had it already. Lilly is up crying in the night. It is hard. That is the hardest part of this whole thing for me.
But like Vanessa tells me over and over, one of the people at envita. I have to take care of me, so that I can take care of them.
Yes my first BF in a while. The others did not like it that I threw up on them and was always sick at dinner. And I was always canceling. duh.
Yes he has seen the worst of my sickeness. And he still stuck around. So this has made even more dear to me. The only people who really stuck by me were my girls, and my x. Friends felt they could not do anything for me. And they were right. Guess they felt helpless.
How are you feeling today? I am so relieved, and counting the days till I can go home!
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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