sfere? Your experience w/bicillan?

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bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 1/21/2009 11:40 AM (GMT -6)   
Hi sfere,

I noticed your post saying that bicillan and diflucan finally did it for you. I have been on IV's for many months and the doctor is now in the process of trying to get approval for the bicillan injections. Meanwhile, I am on Biaxin plus Plaquenil plus anti yeast med - Sporanox.

My script reads for one injection per week. Can you tell me how often you had injections and for how long. Who gave them to you - a friend or the doctor's office? I don't know anyone who has had them.

Your comments are greatly appreciated!
bcaring

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 1/21/2009 5:48 PM (GMT -6)   
I've been on bicillin for 5 weeks and just started diflucan, so I'd be interested in the response as well. 

sfere
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 1/22/2009 2:45 AM (GMT -6)   
Hi Guys/Gals
ok so here it goes...

Bicillin is really amazing but it has to be dosed just right. My LLMD basically said it's a last ditch effort of sorts and it's tolerated better than Rocephin. At 1 injection a week..you're really on a maintanence schedule of sorts. It does enough to kinda throw the bacteria into a remission with a shot of unfortunately building up your tolerance and the spirochette's tolerance to it. So what he did was basically burn the crap out of it. I was on 3 intra muscular shots a week. WOW...i know it sounds crazy but you get used to the injections after a while. On monday I would do 1 injection on each "cheek" lol and then on wednesday was the last one. A quick hint...If you take it out of the fridge and let it sit for 15 - 20 minutes to cool down just a bit then vigorously roll it back and forth in your palms for about 40 seconds..it doesn't burn. As long as you do a slow push in. Don't go to fast as it will lump up your backside and you won't be able to sit down for the rest of the day LOL! At this same time I was on different versions of Flucanozole. Reason being one generic version after 2 weeks would begin to numb my tongue and lips....a bad sign! So you basically have to find one that your body will tolerate..it's basically trial and error. Please be very aware of your body at this time. Although you'll get a herx the likes you've never had in any treatment of your life...about 1 month in you'll start to clear out. This combo works...it's the only one that did for me. Again though since it's not an exact science for everyone YMMV. This is just about the only thing that help my neurological version of lyme and i had it bad. I was basically paralyzed...lost feeling in my hands...chest...face(ala Bell's Palsy) I still get the occasional falling asleep of my pinky fingers but it's a small price to pay. NOTE...PLEASE PLEASE ask the doc to get you on LIV 52 when you're on the flukes. It'll save your liver. The protocol for this combo is basically one cycle(month) of both together....then one off the flucanozole with just the bicillin regimen. You might have to go through several cycles as I did....but it's working. I was on the 3 a week schedule for close to 8 months. I was weaned off beginning of this past June...now I just have an occasional maintenance shot. I havent had one in 2 months. But if i feel my symptoms creep back a bit...i hit it. Though i will admit...the symptoms are not lyme related they are Yeast related. They cause the same neurological symptoms when it becomes systemic. I found this out a few months ago when i lost my mind and ate a whole loaf of Entemanns Sour Cream loaf cake!!! HAHAHA the next day i thought i was dying again....couldn't even spell my last name. I felt as though I had drank a fifth of Bombay Sapphire gin!! On a hunch instead of reaching for a maintenance shot...I hit the diflucan and viola....over and out the symptoms went in a few hours. Now here's the bad thing. Flucanozole is not a great thing if you can't be STRICT and i mean STRICT with your diet. The yeast will just evolve and become resistant to it. It's kind of happenned to me. So again on a hunch I tried Jernigans yeast ease....and i can't tell you guys how better i feel. I'm off the bicillin...crossed fingers and i'm just on this regimen now:

absolutely NO SUGARS OF ANY KIND...no substitute no nada. your favorite drink should be water with a squeezed lemon. Trust...I was a devoted soda freak...now i actually prefer a squeezed lemon in my water to it. You realize how nasty the stuff is after a while! LOL.

No yeast......AT ALL. you sort of have to be on a yeast diet throughout this. This where alot of people go wrong. While your fixing one problem...unfortunately you're creating another one..and there's no way around it...at all. That's the trade off with abx's. If you want bread...here's the perfect place for it.
knock ya selves out: http://www.pacificbakery.com/products.htm


2 magnesium Glycanate
2 cats claw
1 vitamin d
1 vitamin c
1 100mg CoQ10 - down from the 400 i was on for ages
2 Dr. Ohno pro biotic supplements gel caps
1 vitamin b6/12 (on occasion i'll go in and get a few b12 shots just as a precaution)
3 daily doses of jernigans yeast ease
3 daily doses of jernigans neuro/cns (i slack on this one as my neuro symptoms have kind of abated)


mind you...again...it's taken me 4 years to get to this point! I was recently tested again by igenex and I FINALLY got a CDC positive on both tests! So while my symptoms have abated..obviously i've still got lyme. I've come to the conclusion that this will be called living with lyme. The LLMD has said this as well...matter of factly. He's basically said that we're just trying to get my immune system up to the point where it'll keep it in check. This Bicillin/flucanozole is a great combo. Bicillin by itself isn't alone enough. The fluke also helps bust up the cysts so it's a double whammy to the lil buggers on top of taking care of your yeast.


hope this helps and i wish the best of luck from the bottom of my heart.
I was there....I just wanted it to go away.

take care
dennis

bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 1/23/2009 12:38 PM (GMT -6)   
sfere,

Thank you for all the time spent answering my question. I will respond but I have the flu and it is bad. I have just a few more questions. Do you live in Pennslyvania? I just got a call from the doctors office who called insurance about the prescription for the shots. Seems it has to come through the mail? A special department in the insurance company? It was tough to talk to her so I really did not get it all. So, again I will write in the next few days.

Beth

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 1/24/2009 5:28 AM (GMT -6)   

Dennis,

How did you know you needed Dr. Jernigan's yeast ease?   Also, did you see real benefit from his nuero/CNS formula?? 


sfere
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 1/24/2009 3:47 PM (GMT -6)   
bcaring....nope i live in NJ...my local pharmacist has it delivered to him next day so i can pick it up no probs. The company can also drop ship with a rx from the doc. Insurance at one point was paying for them but when i changed carriers that went out the window. Right now it's about 500 and change for 10 shots. On the maintenance program that'll last me for several months close to 8 maybe more since i'm being weaned off. But in the beginning that was killer as i needed a box every 3 weeks and a half. See the prob with lyme is that most insurance carriers do not want to pay for the care as it is highly expensive. So you're screwed if you try and definitely screwed if you don't. That's why our healthcare system as of now sucks. If you don't have the money then you can't cure yourself. It's horrible. I hope your carrier will take your docs recommendation on the IM shots.

ChrisL....well yeast is pretty easy to tell when it's grabbing a hold of you after treatment. 1. my neuro symptoms will flare up. 2. my tongue will have white patches on it that no amount of scrubbing will get off. 3 If it's pretty bad then i'll have a fungus spot in between the toes of my feet(that freaked me the hell out!!) So this began to happen when i was on a course of Diflucan. I wasn't happy and i knew that the yeast had developed a sort of resistance to it. So what i did at first was try Garlic. Man this really works...but it's hard core. You crush 2 cloves and let them air out for 2 minutes to allow the compounds in it to react to air. Then down it with a glass of water. Works really well...but i just got tired of smelling like a clove all the time. I came across Yeast Ease and for me it was pretty convenient. A full dropper in the mouth ...swish it around and swallow...viola done! 3 times a day..and it really works. You just have to give it time. I saw immediate improvement in 4 days. Much of your treatment is trial and error. You just have to be really in tune with what you feel and considering how crappy we feel most of the time any improvement is immediately noticed.


take care and good luck
dennis

sfere
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 1/24/2009 3:50 PM (GMT -6)   
btw...the neuro cns formula...you know..I'm up in the air about this one. I havent really seen any big time benefits while i'm on it. Since my neuro symptoms are really more a yeast issue nowadays...I can't tell. I take it now just for the hell of it. If the tingling in my pinky fingers begin to reside I still won't know cuz from what i understand it takes at least 10 months to see any noticeable nerve repair/reconnection once lyme has damaged it. It took more than a year for my 2 big toes to regain any sort of feeling. They're pretty normal now but still have a bit of residual of numbness on the side.

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 1/24/2009 5:14 PM (GMT -6)   
Thanks Dennis!

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/21/2009 2:55 PM (GMT -6)   
Sfere, What dose of diflucan did you take? How did you take it? I'm thinking about trying the bicillin shots, i've been on IV rocephin for 6 mos. I feel that i've not improved much in the last couple of months. I think I need a change. This picc line hurts all the time now, will see my doc. on mon. Thanks
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