Question For those who are reaching the end of your treatment

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ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 1/22/2009 9:01 AM (GMT -6)   
Is there a specific medication you take at the end of your treatment?
Someone said that the LD usually give Rifampin toward the end of your treatment. Just wanted to know if that was true.
Thanks,
Maria 

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/22/2009 11:14 AM (GMT -6)   
hey ria,
I have not heard of that. I mean most people don't know if they in fact cured yet or if their treamet worked or not. I am towards the end of mine...I hope. I want to go home already. But this is not their protical. Rifampin. Is it a abx? I have never taken it. I don't think. But it seems that everyone on here has tried or been on everything.
M
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 1/22/2009 12:01 PM (GMT -6)   
The key to knowing if your are in "remission" from Lyme is to know the results of certain tests, known as "biomarkers"

1. How high is the CD57? My doctor will measure this at 6 month intervals to get an idea of the trend over time. It is not accurate day to day as the level varies.

2. What is your C4a level? If still elevated treatment needs to continue.

3. What is the TGF B1 (Transforming Growth Factor Beta 1) level? If still highly elevated, stay on meds. My doctor said that this will drop when symptoms abate or soon thereafter.

#2 and #3 are tests for inflammation. They are not specific for Lyme, but if you have Lyme, they will generally remain high until remission is achieved.

As MV said above, each doctor seems to have their own protocol on the order and type of meds.

~Kitty
14 years undiagnosed Lyme. I had a bulls-eye rash following a camping trip to NC in 1994. Swollen knees and replapsing and remitting vertigo followed for the next 14 years. All Lyme tests negative. Could possibly be B. lonestari due to being bit in the South.
Just began treatment with low dose Minocycline and Benicar.


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 1/22/2009 12:57 PM (GMT -6)   
Thanks Guys. Martha glad to hear your on your way to being well.
Kitty I will ask my doctor about those test.
Thanks again

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 1/22/2009 1:01 PM (GMT -6)   
ria-

I forgot to say I am only in week 7 of treatment.

Also, those tests are not used by many doctors. My doctor is a rhematologist as well as a Vascular Inflammatory Disease Specialist, so he is into that whole angle.

Inflammation is said to be the reason for the many symptoms we experience.

~Kitty
14 years undiagnosed Lyme. I had a bulls-eye rash following a camping trip to NC in 1994. Swollen knees and replapsing and remitting vertigo followed for the next 14 years. All Lyme tests negative. Could possibly be B. lonestari due to being bit in the South.
Just began treatment with low dose Minocycline and Benicar.


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 1/22/2009 1:02 PM (GMT -6)   
Thanks kitty
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