for hope_29 ----- please read this!!

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dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/31/2009 10:14 AM (GMT -6)   
Hi hope_29 !

I was answering to your posting about your panic attack, I am dorit.

I contacted the local lyme support group by email two days ago trying to give you a helping hand with treatment because I stay in Europe too.
they e-mailed me back and told me that they stayed in contact with this person: Bela P. Bozsik. M.D.
Email-adress: bbozsik@t-inline.hu
Lyme Borreliosis Foundation
Tetenyi St. 98
Building B
H-1119 Budapest

As those foundation are normally non profit organisations I do hope that to mention this here does not interfere with forum rules;

I hope so much that this may help you because I know how bad it is not to get access to propper treatment; I think propper treatment is somewhat of a basic human right.

keep us informed if you need further help and if this contact was of any help to you! dorit

Post Edited (dorit) : 1/31/2009 9:18:14 AM (GMT-7)


hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 1/31/2009 10:33 AM (GMT -6)   
Hi Dorit :)
I really really thank you for the name and address. I'll call them to ask an appointment. I didn't know this name, I was at another doctor. So I'm very happy.
Now I'm in a very bad condition, since my last big panic - when all my body went numb and - I'm at home all the time. Mentally I'm worse than ever.
Hugs

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/31/2009 10:45 AM (GMT -6)   
Hi hope_29!

I am so happy that this may help you!!
I can imagine that those panic attacks are horrible. I pray that you will get better as quickly as possible!
I hope that you are at least not alone and that your family and people around you help you and support you mentally.
Hug you too!!! dorit

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 1/31/2009 11:03 AM (GMT -6)   
Hi Dorit,
My family can only see when I have panic, but they can't see my brain for, and the bad memory and cognitive skills. And unfortunately they believe in doctors who said my problem is from anxiety. Before this hell I was never an anxious person. It's hard to explain but I feel my anxiety comes from my nervous system and not from my thinking.
Hugs

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/31/2009 12:00 PM (GMT -6)   
Hi hope_29;

then come here when you need to talk; we will listen to you and we do understand what you are going through! and I am sure that a lot of people will try to give you some kind and helping words - you are NOT alone!!! I am also sure that you will get better with treatment.

And there are a lot of doctors who say that anxiety and panic attacks are definitely among lyme symptoms as Lyme loves the nervous system.
Hugs! dorit

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 2/3/2009 4:40 AM (GMT -6)   
Hi Dorit,
I hope you are well.
I called the doctor, but I can visit him only in March.
I hope I'll survive Febr.
I'm in a really bad shape,my brain doesn't work.
Hugs

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/3/2009 5:39 AM (GMT -6)   

Hi hope_29!

 This is good news (that you can see this doc) and bad news (waiting sooooo long) together! Could you have a testing for co- infections in the meanwhile maybe with this old doc (who does not believe in lyme)?

I have no idea how you in Hungary manage the stuff with health insurance, now we are europe- united but hardly know anything of one another.... maybe diseases are going to chance that...LOL!

Can you try to rest and relax, take as many vitamines as possible, eat as healthy as possible, try to establish a functional sleeping rhythm, just everything that supports your immune system and help your body to detox. 
A lot of people here use things like samento for a natural approach; maybe you could ask directly.
 
Can you take antibiotics or are you allergic to them?
 
Hugs  dorit

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 2/4/2009 12:43 PM (GMT -6)   
Hi Dorit,

I'll ask the doctor about co-infections. Could you tell me what kind of co-infections are there?

I'm always very dizzy and I have very strong brain fog, so I don't know how I'll be able to wait 1 more month.

hugs

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/4/2009 1:08 PM (GMT -6)   
Hi hope_29!

I am sorry that you feel so bad! Possible co-infections may be ehrlichiosis, bartonella, babesia.

Did you tell the new doc how bad you are?? Did he give you any advice what you could do (or should do) in the meanwhile?

hugs, dorit

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 3/5/2009 9:29 AM (GMT -6)   
Hi,

Thank you again for the doctor's name. I was there and he did a bloodtest for lyme. I asked him about co-infections, but he said he will check only lyme :( So now I don't know what to do. He said if the test is positive, I will get ABs for 6-8 weeks.
I'm in a very bad shape. I feel I'm dying. I feel if i start to take ABs and get Herx, I will die from it, because I can't handle worse than I have now.

The doctor said I can take Human Gammagloguline 2ml/week, Vitanax PX4 3x2,Vitamist Multi50+, Vit.C, Hepabene 3x1, Olive oil, Protexin, until I get the result.
Is there anybody who takes them? What if I only take ABs without these things?

Hugs

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 3/5/2009 1:11 PM (GMT -6)   
Hi hope!

I took something similar to Hepabene (help liver to detox) and Human Gammaglobuline (useful when the body is too week to fight infection or somebody cannot take abx etc.)
Do you have insurance to cover the costs for some of those meds the doctor said you could take until you get the bloodtest results? Did the doc say why he does not test for co infections and why he will give you abx only for 4-8 weeks?

Nobody can predict if you will have a lot of herxing; but there are meds to help with this too.

It is very necessary to detox properly when you fight lyme !!!! When the bacteria is dying in your body it releases poison which causes symtoms similar to lyme itself; detoxing helps the body to get rid of this and recover.

There is a thread called " Detoxing??" from yesterday (8:07 am) with some good instructions form Deejavu; There are many many herbs which help a lot with detoxing and work antibacterial too; some are not very expensive and can be bought at a pharmacy or natural food shops as teas. With some you can even cook like with turmeric.

Hugs, dorit
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