You have seen / felt swelling directly? Hmm... I get sore spots on my head, but haven't noticed any bumps, external swelling. Has your doctor seen or felt them? I'm curious, have you had a SPECT scan? I know that just shows perfusion (blood flow), but I'm wondering if it is indicative of other (related) abnormalities. Do you get any headaches? Have any issues with lying down or sleeping?
I haven't been diagnosed with cerebral edema, but had a doctor tell me I need to be checked out for it. I have water collecting around my eyes, and severe dry eye.
Yes, scary stuff, most definitely.