What is your success with IV treatment with Rocephin?

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Eventer
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/3/2009 1:50 PM (GMT -6)   
I started my IV treatment with Rocephin 1 time a day about 3 weeks ago. My doctor is putting me on it for 6 weeks. I was wondering what success people had with this treatment? I have severe nurological problems from the lymes, balance, memory, etc and I am hoping this will fix everything as I have not been able to work for the last 3 years. I train horses so balance is a must. Would also love to hear the side effects that you had. Thanks.

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/3/2009 4:25 PM (GMT -6)   
I have been on IV rocephin for 5 months straight. It has definently helped me but not like I had planned. I'm thinking that I might have a co-infection of some sort even though I tested neg.
I know that 6 wks. would not have been enough for me to tell a difference. Do you have the option of keeping the line in longer?I also have alot of neuro. issues.

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 2/3/2009 4:41 PM (GMT -6)   
I've been on it twice in a year. Each time was for 3 months. It is a good drug for the lyme but if you have co-inf. you will NOT get better. So it actually will help you know if you've got a co-inf. because you just won't get better. Some of my symptoms got better but for the most part I got worse.

Good luck.

I will mention that after I started it, it only took a week or so and I could tell some die off occurred. But, I could also tell something was not getting hit.

Tracy Will
Regular Member


Date Joined Jan 2008
Total Posts : 37
   Posted 2/4/2009 10:38 AM (GMT -6)   
I just started a week ago! We can be IV buddies. The key thing for me is that I am also on about 5 other antibiotics. My LLD is very aggressive and is adamant that if you don't hit Lyme and co's all at once, you will never get well.

I believe her. I'm feeling better every day, and I can't believe it.

Eventer
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/4/2009 12:02 PM (GMT -6)   
Thanks for all the information everyone! I have been tested for co infections and I am negative. I was on Tindamax, Omnicef, and Bioxin for almost 3 years on and off and then I swtiched to my new doctor and he said to get the IV stuff right away. First 2 weeks with my port hurt really bad. Couldn't use my left side because of muscle pain from the port. Though when I get the needle changed once a week I don't notice it much, so that is a plus. I see my doctor on the 9th so I will find out what the plan is.

Hehe IV buddies sounds like a plan for me! I am not up to much since I have been so ill the last couple of years, but if anyone wants to see what I was/did before I got sick go to http://mattsontraining.net
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