major surgery and LD.....

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georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 2/6/2009 11:53 AM (GMT -6)   
I am posting this for a friend. She is pretty sure that she has LD because of her history and posative bands through igenex. She has been sick for 20 yrs.
We live in GA and she needs a LLMD but they are hard to come by around here. My doctor is not taking any more right now. She is very sick and depressed and doesen't know what to do at this point. She doesen't really trust doctors anymore. They all tell her something different.
She also has very bad neck (disk degeniration?) pain and back pain, headaches flue type aches etc....
She really needs surgery on her neck but is scared to get it because of the untreated LD.
Should she do it? Have anyone of you been through major surgery w/ LD?
She has had surgery in the past and became very ill afterwards.
I really wish I could get her to a LLMD.
Any sugestions?
Thanks. D. 

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 2/6/2009 12:02 PM (GMT -6)   
I am not a doctor but I also have the bad neck. What I would suggest is for her to try to treat the Lyme BEFORE any major surgery. My neck problems are from an old car accident but are aggravated by the Lyme. When the Lyme is "quiet" the neck is much better. So, definately have her try some sort of treatment first. Neck surgery is just too risky, I would not consider it and yes they recommended it to me. That was over 20 years ago.  D

georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 2/6/2009 12:16 PM (GMT -6)   
Thanks Dowa. What have you found out about your neck? Is it degenerative disks as well?
My friend is desperate for some relief at this point....major pain constantly.....

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 2/6/2009 5:16 PM (GMT -6)   
Yes, degeneration and I had two ruptured disks from the accident. Also x-ray showed osteo-arthritis. I have a few friends that have had surgery without good results and I just would not take the risk. Lyme almost always involves the neck, that is why I suggested she try some kind of treatment first. D

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 2/6/2009 5:41 PM (GMT -6)   
Hi georgiagirl!

did your friend have an MRI done of the neck and back? does she know it is disc degeneration or could it also be a prolaps or muscle tenseness; the tenseness may sound bit funny as you wrote she is in bad condition but one should never underestimate that. My neightbour ended up in hospital unable to move, low fever since months, real bad shape and it turned out that she had such a severe tenseness that her nerves got inflamed. She had no clue what was causing her bad shape at that time, she was really afraid of being really sick. (no lymie)

Maybe more details make it easier to estimate the success of lyme treatment and she may in addition have some physiotherapeutic help.

Just what I would do.....
My best wishes for her and I wish I could help more! dorit

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/7/2009 5:53 PM (GMT -6)   
Thanks alot. Yes, an MRI of her neck showed the problem. She is in so much pain all over that she doesen't know where to start.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/7/2009 7:02 PM (GMT -6)   
Load up on vitamin C.

GreenT603a7
Regular Member


Date Joined Mar 2007
Total Posts : 136
   Posted 2/7/2009 11:33 PM (GMT -6)   
I have had major surgery with lyme. It wasn't fun, but everything ended up ok.

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/8/2009 2:17 PM (GMT -6)   
Thanks Greentea. I will pass this on to her. What type of surgery did you have if you don't mind me asking? Where were you in your lyme treatment?

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/8/2009 2:55 PM (GMT -6)   
My neck shows many issues on MRI of disc and nerve problems and  I was in so much pain I couldn't stand it. However soon as I began treatment for lyme and babesia the pain almost comopletely went away. When I over do it I get achey neck but that is it. So I would advise getting treatment for co-infections and lyme first. Many MDs suggested I get surgery, I am happy I didn't. Blessings

DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/10/2009 6:37 PM (GMT -6)   
She is in bad shape. The doctors are telling her that one wrong move or wreck etc. and she could be paralized for life. She is so scared and in so much pain.
Thanks for the replys. D.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/13/2009 4:25 PM (GMT -6)   
It all sounds so miserably familiar even being told one wrong move could paralyze me. They must all take that same class in med school. Hope she improves soon.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/13/2009 5:42 PM (GMT -6)   
Thanks minerals

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 2/13/2009 6:55 PM (GMT -6)   

I had hernia surgery last December and was ok for about 48 hours afterwards, then had a pretty substantial worsening of my LD symptoms. Any of us could easily guess that surgery is going to weaken your immune response for some period of time afterwards, and I feel like that's exactly what happened to me.  For a short period of time my weakened immune system was able to hold it's ground, then crashed.  3rd day after the surgery I began suffering brain fog so severe I think I could've easily been misdiagnosed as having Alzheimers. Worse than it'd ever been before.

My .02 is that if your friend's surgery is really as imperative as the physicians think, then she needs to work those immune system supports hard for a month before the procedure, then restart it all immediately afterwards. A good quality Cat's Claw, glutathione, ALA and CoQ10, and if she can tolerate it, large doses of C.


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/16/2009 12:28 PM (GMT -6)   
Thanks sulma for your .02!
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