do you herx with bartonella?

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nefferdun
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Date Joined Feb 2008
Total Posts : 900
   Posted 2/10/2009 10:49 AM (GMT -6)   
I am being treated for bartonella with Levaquin which I just started last week.  When I first started doxy for lyme I had a huge herx, symptoms becoming so much worse I was bed ridden for weeks.  There seems to be little change with this treatment.  With Lyme I have noticed waxing and wanning of symptoms every 28 days, which I know is common.  Mine come with the full moons.  But this full moon I did not have the typical muscle twitching and spasms that I normally do. The day after starting Levaquin I had a "silly" uncontrollable crying spell which is totally unusual.  Afterwards I begin to feel my nerves were less irritated.   But after a few days of the drug my shins, which always hurt, hurt more.  I had a low grade headache and my eyes which are always dry, felt very irritated.  Is this a little bit of a bartonella herx?  The only other thing I notice is that I do not feel so disconnected from myself all the time.  I am actually starting to sleep a little better.  Last night I slept 10 hours without any kind of herb to knock me out. Wierd as it was a full moon and I never sleep well during that time.  I did not have the most common bart symtoms like sore feet or the rashes.  I guess my question is, how to you tell if the medication is working?  Does this sound typical?

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 2/10/2009 1:23 PM (GMT -6)   
nefferdun said...
 The day after starting Levaquin I had a "silly" uncontrollable crying spell which is totally unusual.  Afterwards I begin to feel my nerves were less irritated.   But after a few days of the drug my shins, which always hurt, hurt more.  I had a low grade headache and my eyes which are always dry, felt very irritated.  Is this a little bit of a bartonella herx?  The only other thing I notice is that I do not feel so disconnected from myself all the time.  I am actually starting to sleep a little better.   Does this sound typical?
Totally.  That's like textbook Bart herxing. 

hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 2/10/2009 1:29 PM (GMT -6)   
I changed from mepron to malarone and i started having brain fog and stiff neck and headache in the back of my head... now, i dont know if this is a bartonella herx.. perhaps a lesser malarone is allowing the rifampin to be more effective? possible?

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 2/10/2009 4:08 PM (GMT -6)   
Great. I am glad it sounds like the good side of normal. I would hate to be sick for months and I hope 3 months will take care of it, which is what the LLMD thinks - but not for the lyme, which he projects up to 2 years.

sosickoflyme
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 2/11/2009 1:28 PM (GMT -6)   
I have the itchy eye thing bad.  And now I have developed a migraine.  I have had this before, but still migraines make me nervous.

Dx Lyme Oct 2007....symptomatic for at least 3 years.  Oct - Dec 2007 Doxy 200 mg/day, Jan 2008 Ceftin 1000mg/day, Jan 2008 - 10 weeks IV Rocephin, April 2008 - August 2008 Ceftin 1000mg/day with Zithro 250mg/day,  changed LLMD's Oct 2008...currently dx with Bart and Lyme maybe Babs too...on Septra, 2 Malrone/daily; Omniceff 600mg every other day
 
"Gees, you don't look sick."


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 2/12/2009 11:40 AM (GMT -6)   
sosickoflyme, I tested negative for bartonella. The labs only test for 2 out of 30 strains. That is also true of lyme as the strain originally used was actually from Germany! Often you just have to go by symptoms alone.
I took 40 doses of imitrex in 2 months before finding out I had lyme. My headaches still come back and imitrex like drugs help (I actually get it from India to save money) but I realize it is across the forhead behind both eyes- not behind one eye . Across the forhead behind both eyes is bartonella like, I was told. As I get an upset stomach and feel weak when they come on (typical of migraine), I was quick to seek the imitrex and did not let them get bad enough to realize it was not migraine.
My eyes are a mess.
My shins feel like my sock are too tight or I have sunburn or like they are swollen with edema (which they aren't). Those symptoms never went away, not even for one day. We will see what happens.
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