Finished my treatment at Envita in Az. for my bart and Lyme and...

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 12:56 PM (GMT -6)   
I finally finished my treatment at Envita in Az. I got started last Oct.2008 And just got home back to Florida over the weekend. I am happy that they were able to put me back together again. My mind is clear. I am not 99 years old anymore..lol.
In looking back over this whole ordeal I feel raw. I am a bit overwelmed with trying to get my life back together again. But one day at a time. It is hard.
The last part of my treatment, the EDTA was hard to do. Since I was the one that was having to take myself there everyday and get myself back to the hotel as well. I would advise others to get a ride. It was really hard. It made me very nauseated and dizzy. So much so it was hard to walk to my car.
I finished! I am however on abx for a while. And I still have my port. I don't feel like having a surgery any time soon. So I am going to keep it for a while. I also like the the Ozone therapy and I am going to find someone in Florida that does it. I like the idea of having my blood all sterilized and cleaned. Lyme free.
After all of this high drama with my lyme for years one thing seems to be sure to me. And that is that there is no way that I am going to be able to not be re infected with lyme again. If it is true that mosquitos and flees and ticks can all carry it, then I am going to get it montly. lol
But the thing that I learned alot about at Envita was how important diet and vitamins and supplements are. I have always been a bit of a health nut, but never took all of these things. So it seems to me that the most important thing it to build the immune system up as much as possible to help the body defend itself.
I am now taking so many supplements. I have a drawer filled with them in the frig. But many of them are common sense. I am sure that I got lyme in the vineyard about evey summer. Had to, I lived in my garden with the deer.
I think that the clinic helped me greatly. I am tired because I am finally home and I am doing way too much. It has always been a problem of mine. sitting still. I do worry about the relapse that I read so much about. I can only do what they have told me to do, with the diet and supp. and abx. And sleep right, and exercise and day by day hope that this worked for me. If it works for me then the Dr.s out there can make it work for others as well.
It was great when I was leaving the clinic to meet some of the others on this forum getting treated as well. Sitting in their chairs, weak and hopeful. And smiling! Hang in there Jacob!
I would be lying if I said that I was not scared. I just sort of keep waiting for it all to hit me again. Sorry if that sounds negative. 
I am happy to be home! I get to go and pick up my daughter from school today and take the dog for a walk to the beach...so far, so good. one day at a time!
 
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 4:26 PM (GMT -6)   
hey deb,
hang in there girl. you will kick this darn thing! it is a battle for sure and such a tricky one at that.
they sent me home with a bunch of perscriptions and I am not too pleased to be taking them. I am on Zithromax, 650 a day twice a day. Oh yeah...sure. That is going to be pleasant. Hold on...I will have to go and get the other stuff to check.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 4:41 PM (GMT -6)   
I liked it so much better to just get these drugs in me without having to out this stuff in my stomach. It seems silly to be so concerned about diet and then pour this stuff into my raw stomach.
I am on CEFDINIR 300MG. Twice daily. And then I have to take that for a week, then take a different one for a week and then back to first. It is complicated no?
Herxing? If herxing is when you feel like you are dying..then yes that was my last week there. It was my final week and I also had my periode just to make things better. lol
I did notice one thing that scared me and that was that I was having trouble finishing some sentences again. But it was not so bad as before.
I should add that it was the ozone along with the perioxde in the begining that made me feel so different and so quickly.
I had the Ozone first and then the perioxide and then the cd. I was also started on all of my supplements at that time. For the first time for me.
I felt better after 4 treatments than I had in a long time.
gosh..the 5 top vitamins that I would take. I like the pack that has 5 in it. Because it is easy. I listed all of the vit. that they put me on in a post in dec. It took me forever to write out. Can you access it? I will see if I can find it too.
I am not even sure what some of these things are Deb. like the 4life transfer factor pills. I am taking handfuls twice a day. Have you done perioxide? or CD? I just don't think that the abx alone can be tricky enough to kill this disease.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 2/10/2009 6:26 PM (GMT -6)   
Marie,
I am so glad you are home and able to walk on the beach with your dog, cuddle with your daughter and do the little things that mean so much to you.

One thing I noticed from last week, to the week-end and now this latest post, is how much clearer you seem to be.

In fact, I wouldn't mind walking that beach with you. That would be an Abbott/Costello picture if there ever was one!

I appreciate the things that you have shared and I pray that each day brings that peace now that the war is beginning to take the back seat. I can understand your fears. We just hope and pray that as each day goes by, you are able to channel it and that before long, it is no longer so constant.

I can't imagine anyone who's known the depth of the battle now, not appreciating that.
We can all watch now to see the long lasting hoped for success that Envita has brings for you and that can potentially offer others perhaps in the future..

You know I think it takes allot of courage to do what you did, especially knowing it was alone and hearing what some of the experience was like for you. I am all that more grateful that you are home safe and sound. Therein lies the constitution of the woman.

Pace yourself.
Blessings,
Diana

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 6:27 PM (GMT -6)   
I felt better in oct and nov and dec. before the 2nd part of my therapy. I do not want to take all of these oral abx. I am going to try to get my immune system back in check after all of this bs.
I feel good. I am clear headed now. I am back to myself. But I am not into taking the hords of abx that they gave me on my way out. I am just not going to do it.
I am going to try homeopathic meds to build up my system.
I get bitten every day buy mosquitos and flees. I am working again in my garden.
I can't live in a bubble or in fear of bugs. I am hearing some good things about biological medicines and that is what I am going to try to put myself back on track.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/10/2009 7:02 PM (GMT -6)   
Thank you so much Debra!
You are a saint. Thank you so much for your kind words and support through the toughest times for me. And for the extra push to finish my therapy.
I am taking it one day at a time. Trying to make each day count. It is odd that I feel so emotional as of late. Raw if you will. It is hard to explain to people. But when I picked my Lilly up from school today, I did not know who any of her new friends were. And they were like...who are you? Ok.....
But I have my Lilly in my arms for starters. And a bulldog that is ever so happy to have me home as well.
I do want to chat with you about my other daughter. I am afraid that is not good news at all. But do not want to go into that on here.
Remember when you need a side kick to say all of the things that you are too much of a lady to say....call me!..:>)
Marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 2/10/2009 8:40 PM (GMT -6)   
I have read your posts about Envita and see such a huge improvement in your state of mind. Don't worry about re-infecting yourself - lots of bug spray. Before you throw the abx out the window, wait until you are symptom free for a couple of months or at least pretty certain that you can control what is left with herbs. And when you do decide to go the herbal route, rotate them frequently. I made the mistake of quitting abx too quickly.
I do not know you or even what you look like, but I can sure picture you walking along the beach with your bull dog, holding your little girl's hand.

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 2/11/2009 9:13 PM (GMT -6)   
Congrats Marie...

I'd follow their orders after all that time and trouble.

They may know a little something about treatment!

Glad to know you're well though. Awesome news.

LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 2/12/2009 3:33 PM (GMT -6)   
Congratulations again Marie!!!

WOW - your home, walking on the beach and with your family again! Amen to that!!

I agree with the other posts here. You stuck it out at Envita, stick it out just a little longer. All our prayers are with you to help, so you can't go wrong.

Hope all is well with your other daughter. You and your family remain in all our prayers!!

Please splash in the water for me- Lisa in Ca.
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/12/2009 9:51 PM (GMT -6)   
I am happy that I seem to be better. I am of course weary. But pleased.
I just really feel that I need a break for all of the abx for a while. I had been on them very heavily before I went to Envita. And I was in very had shape when they got me.
When I first started therapy there they had one way to treat it. But then the "other" cam in and they did that one to me also. So I basically went through two different treatments there. I like it that one was all about my immune system and the other was a hard slap in the body to kill whatever could be living in there.
But now, I am feel well. And I am going to go a different rout. I am more interested in building my immune system up as much as I can now. And getting into the herbs and everything else. I am taking a ton of supplements. Like 55 a day. And frankly. I am not going to do the abx for now. I just take take anymore right now.
I need my strength and need my mind to be able to deal with the very seriose issues that are happening to my 12 year old now. So....
If I feel bad..I still have my port and will dash by envita for a 4 day ozone therpy. which did wonders for me. my new idea of a spa...lol yuke...ha
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/12/2009 9:54 PM (GMT -6)   
I look forward to the day that you guys are all walking down the beach too. And free of all the bs that kept us indoors.
I live two streets from the beach. And it is my first time there in.......um...3 years.
The heat, the sun the walking...gosh. I don't take one step for granted I will tell you that. I just can't believe that I am able to function again. I just don't believe it. But now I have my biggest battle with my sick 12 year old. She has gone off the deep end.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Coaster Man
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/26/2009 9:06 PM (GMT -6)   
Hello, 
  I have been following your journey and I am wondering how you are doing now... its been 5 months since Envita.  I have been looking into going there myself since January.  I live in Maryland so the expense in pretty much the primary thing holding me back.  I have been on abx since Feb and i am currently under the care of Dr Stephen Bock at the Rhinebeck Health Clinic in NY.  This road is a difficult one and i dont want to make an emotional, fear based decision without giving the abx a real shot.  I had a pic line placed 8 weeks ago and am on iv Rocephin (ceftriaxone) twice a day for 4 and off for 3 days a week, and i still feel half drunk most days.  I'm not sure how long this will last and i dont want to risk long term damage by delaying additional treatment.  Anyhow  I just wanted to check up on you and see how you were doing... 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/26/2009 11:43 PM (GMT -6)   
Martha's Vineyard,

All I can say is WOW!! I LOVE hearing these stories and you bring so much hope to this board. I can tell by the way you type that you feel better. Yay! I am so happy for you. You go and have a nice peaceful walk on that beach and enjoy every minute of it. You deserve it! I'm truly so happy for you!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 7/27/2009 9:32 AM (GMT -6)   
Hey E,
Thanks for the direct e-mail Hope I can help you.

Thank you Cajun,
The good thing that lyme did to my life, it it showed me what is most important in life. My chidlren, my friends, my home.
Not the designer bags and shoes.lol. Not that I was able to use any of it anyways.
My biggest step was to get my port out two weeks ago.
I cried, and then when the Dr. taking it out to me told me not to sweat the small stuff. Like Lyme....
I took his head off...:>)
The nurse loved it..and he ran...ha
Oddly she questioned me for a good 10 min about lyme and what my symtoms had been etc. Oh, I have to tell you, getting my port out was not a lovely exsp. I had it done with out only local. I took my head phone and blasted my music and cried. It was just all so gross to have that thing dug out of my chest and that long chathader being pulled out.
Yes I am a baby.
He did not give me anything for the pain. And it even hurt to smile and more my right arm. But guess the turd hit a nerve. But it is all fine now.
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