Hi, I have lyme and I think my 3 kids have it too. Maybe born with it? Mine are 10, 13, and 18. I contacted Turner the Corner Foundation and they emailed me like 4 different doctors that see kids. Here is the website and the email address is on there. They were very friendly and helpful! Oh and I live in Ohio and they gave me 2 in PA.
I will email you that list.
I haven't had my kids tested yet but my 1 son if very symptomatic. I have a long symptom list. I myself have Lyme too and was CDC positive in Oct 08. My mom also has it. I would like a doctor that believes in congenital Lyme too. I have the Igenex kits here and someone to draw the blood. I just need a doctor to sign the orders. I know many have a long waiting list and I would like them to order the test while we wait. Because my kids are missing a lot of school and my 1 son is showing neurological symptoms.
So if you have any doctors that don't have a really long list, or might test while waiting to get in please let me know. Also if they don't take insurance I am looking for someone with a lower cost. One doctor I called yesterday wants $900 per kid for 1 appointment!