Bartonella and Depression, who has it bad?

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/12/2009 11:13 PM (GMT -6)   
cry  I had no idea what Bartonella was until I was told that I had it about 2 mos. ago. Then I ran and told several of my Dr.s here in Florida. My Dr. who had been treating me for depression for 4 years and also panic attacks, had never heard of it. 
My depression had gotten to the point where I was very suicidal. I had many plans. My only fear was that I would not be sucessful. And well, that is was a selfish thing to do to my kids. But at that point I had been told that I could no longer care ofor them, due to all of my lyme issues. So, really. For me that was it.
All of the meds that he gave me made me feel worse. Regular doses of anything had very strong effects on me. And at some point they made me even worse. The panic attacks got to where they were happening almost daily. Everything set me off.
When I told my Dr. about Bartonella he typed it into his lap top right there and said..wow..it causes untreatable depression and panic attacks. Well...4 years later. Glad that I was able to be of service. He was happy to have learned this little tid bit from me and happily told me that he learns something everyday.
Lucky for him I like him alot. Otherwise I would have hit him with my purse.
But he is also the only Dr. that I have met that had eve admitted that he did not know something. And moreover, thanked me for "teaching" him something. That alone is a joke. He is brillant.
But why is it that the Dr.s out there who treat for depression do not have a clue about a disease that causes depression?
I now see the same thing happening to my 12 year old daughter who took a handful of pills this week. She too was covered in ticks in the vineyard. She too spends all of her summers in the Cape. I have told this to 4 of her Dr.s and all of them tell me that she is fine. Well....now I think that she has gotten everyones attention.
I am only posting this for one reason. And it is one thing for me to discuss all of my problems openly. But a whole other about my daughter. But if this can somehow help some other mother or father out there with a kid who is so depressed and trying to kill themselves.
Look into having them tested for Bart.
I was given Levaquine for 30 days for mine. I am not sure what made me better. I no longer want to die. I am not sure if it was all of my treatment for my lyme or what. I only know that I have my s--- together now. Finally.
But dealing with a sick child, it is the worst.
One day at a time.
shakehead   
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 2/13/2009 11:14 AM (GMT -6)   
I am really sorry about your little girl and hope that she can get the same treatment as you, that literally saved your life. It is very sad for the children to suffer and lose their childhood. It isn't fair. I am so happy that you know what is wrong and there is a path of recovery to follow. My heart goes out to both of you.

I know what you mean about educating your doctor but in my case it got very old. And at the end of his class for the day, he always handed ME the bill, not the other way around!

Did the levaquin "cure" your bartonella in just one month? I am taking it now and dealing with the insomnia. I have a milder depression, more of an apathy about life. I am feeling more connected to myself, have had moments when I actually felt like I wanted to do something, be excited about something. I felt almost manic considering there was something to live for. Depression just creeps up on you becoming the new normal.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/14/2009 1:32 AM (GMT -6)   
Ha, your rigth we should get paid for all the time when spend trying 5to open their eyes.

I don't know if the levaquin cured me. I think if only that worked then everyone on her would be rid of theirs already.
I did feel much better after the first couple of weeks. But that was just CD and Ozone therapy and tons of supplements and zithromax.
It was the first time that I had been given IV anything since 04.
Depression is a scary and tricky thing. The mind telling us one thing and making us see everything so differently, for the worse.
I think that the EDTA killed just about everything in my body, and I do mean everthing.
I think that the brain suffers because the immune system is down. But I am happy and strong and able to deal with all of the problems that I am facing now.
It is keeping me up at night. She is still at her fathers house. She has been living with him since June. And it makes me feel more helpless that she is going through all of this with him.
I am sitting down her her phyciatrist next week. And her dad finally wants to know what Bartonella is. So I am making slow progress.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 2/14/2009 11:52 AM (GMT -6)   
Boy, that is much worse than I realized. I didn't know she was still with her father, who having never had the disease proably has no clue about what it is, what it does or how it needs to be treated - especially when the doctors advising him are also clueless!! Take the book Cure Unknown to her father and make him promise to read it cover to cover. I hope he will be more open minded now when he is faced with your daughters depression being about either - a horrible disease that can be treated OR
something he may have done in his parenting to fail her. . . . which everyone could stay in therapy examing for years or you could just come back around to the first reason and his need for an alarm clock. When he sees how much progress you have made, it will certainly help.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 2/15/2009 3:54 AM (GMT -6)   

Dear Martha's Vineyard,

I hope and pray for the best of health to you and your family.  I can relate to your situation as I am a sick mom with a sick child.  The pain and sorrow felt because of our child's suffering is the worst ever.  I hope things improve for all of you soon.  Your sharing of information-- to help others-- is appreciated by many, I'm sure.

Best wishes, bablymers mom

 


Post Edited (bablymers) : 2/15/2009 1:58:37 AM (GMT-7)


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 2/15/2009 11:49 AM (GMT -6)   
Marie, I am so sorry and hope your daughter is doing better. I cannot imagine the heartache and frustration you must be experiencing but I do know that you will prevail when it comes to getting all those idiots to understand what your daughter is suffering from.

snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 2/15/2009 2:12 PM (GMT -6)   
Marie, just wanted to let you know that I am praying for you and your family.  I am glad you are doing better and you stay strong and hang in there.  It would be a good idea to get her tested and treated.  Thanks again for the Transfer Factor...I told everyone what a generous and cool person you were!  You really brought light and encouragement to Envita!

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/16/2009 12:47 PM (GMT -6)   
It is frusterating to have given him the book...more than once and many others and even the DVD. And to no prevail. But it was she, CK, who cried her eyes out to her father, and he would in turn call me and tell me off for worrying her..lol
I was just bumping into walls and didn't know who anyone was...and oh yeah. Nailing the cop that sits in front of the school in the morning, lucky for me I was in a golf cart. And man did I think that was funny! She is very upset with me for failing her. Her Dad is now seeing what I had to put up with . But she never tried to take her life with me. She has tried it twice at her dads in the last two weeks. She is a momma's girl. And needs to be with me. I have been telling him all along what is wrong with her. I am blue in the face. or maybe that is my collidal silver. lol. I did have all of her blood work done at Igenex and she can back positive for lyme and bart. But he thought the clinic was a goof becuase it did not match the others done on her. Soooooooooooooooo where to begin. I am just trying not to kill him at this point. I have a hard time going at things so darn slowing when I see my daughter melting. But I am back, I am ready for battle now. I am in shape for it. Mentally and physically.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/16/2009 12:55 PM (GMT -6)   
Hey Snake.
How are you feeling? I tried to write to you directly but you do not have access to your e-mail. So write to me! The vitamins that they are pushing is extremely important to take. I know there is alot of them. But think of it this way. How would you expect your car to run if you did not put the best oil and gasd into it? The vit. are to help your screwed up immune system get armed and ready for battle. It has been stripped off all its nutrients. So it needs the help big time. That is why I gave you the most expensive one. But you need to get on the others. They all have to work together.
And gosh my skin looks great..and can you believe? I have more energy too. yes I know what your thinking..how could she have more energy. lol Well some one has to be jumping on the bed!
Marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Tracy Will
Regular Member


Date Joined Jan 2008
Total Posts : 37
   Posted 2/17/2009 11:58 PM (GMT -6)   
We have groups for both Bartonella and Depression on www.lymefriends.com. The site crashed last week and we had to rebuild it from scratch, but it is back up and running. There are a lot of people in the Bart group; you might find some helpful information and support there.

kelly1234
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 2/18/2009 1:45 PM (GMT -6)   
So sorry to hear about your daughter. Will keep her in my thoughts. Thank you also for the information about bartonella and depression/anxiety. I am dealing with crazy anxiety/depression since I started this journey. Could you tell me whether you were treated with pills or intrvaneously?

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 2/18/2009 1:47 PM (GMT -6)   
Marie,

I am so sorry to read about your daughter. My heart is heavy for all you have gone thru. May your daughter find the healing you have had. You are in my thoughts.

Sending you lots of love and light,
Jeanne

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 2/18/2009 8:45 PM (GMT -6)   
I am keeping you and your daughter in my thoughts. I hope your husband sees the light soon.
A bit of advice - Take good care of yourself so he can see how well the treatment worked for you - follow the clinic's instructions precisely, so you don't relapse - otherwise, it will be hard for you to be there to take care of your kids and it will look to your husband like treatment does not work. I am saying this because I remember you said you were tired of the abx and thinking about going herbal.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/20/2009 1:05 PM (GMT -6)   
Hi Kelly,
I did IV but not through my arm. I had a port put in under my rigth collar bone. I needed heavy in and out flow at the clinic. For the ozone therapy. Otherwise I don't think you need a port. Many on here have them in their arms. Which to me...just seems so painful. But they handle it and have lots of tips on taking care of them.

Thank you Jeanne. All of this with my daughter has hit me hard. I am trying to keep it together for my 5 year old too. While I was gone. My 12 year old dropped all of ther friends, dropped out of her school of 7 years and moved in with her dad. And she is furious with me for being sick and leaving her. It is all hard to take. And now right before my menstrual cycle, the scary and true test of treatment..I am trying to remain calm. Honesly I am suprised that my migrains and pain have not come on full speed.l..yet. Only cramps. So I am at least happy about that. It is just all very depressing for me. And having to explain to everyone where she is..and why she left...and I am just not up for all of it. So I am dodging people.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/20/2009 1:11 PM (GMT -6)   
Kelly,
So tricks of the trade. When my depression got scary low. And I mean when you are thinking about ways out of life. I have a ipod with all of my favorite music on it. I have the angry as hell music. Rap...lol, and some hard rock and roll. But they all have words that would make me dance and get pissed..and get stirred up and motivated to figth..lyme.
Like the song that says, that which will not kill me will only make me stronger...Older better faster stronger..lol. Yes rap..but it mad me feel motivated. Plus you can put the videos to your favorite music on and watch them. To totally tune out the bad. And get great ear phones so you can blast it.
No sad love songs...lol, only stuff that would make you want to dance or drive your car fast. :>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/20/2009 1:17 PM (GMT -6)   
Neffer,
I called the clinic and told them that I would not be taking the abx that they sent me home with. I have taken enough of those. I am trying to get back on my feet after my two treatments at envita. I was running a record for the lab rat of the year.lol
So I am only taking all of the vitamins and supplements that they put me on. My stomach is so shot now. I can't even do that twice a day as I am supposed to. I am eating rigth. sleeping and taking walks on the beach everyday. And working on my home and planted a herb garden with my lilly in big pots. I love this stuff. And filled my house with flowers. All tricks to keep my head up. I am trying not to stress out. But with my 12 year old....man.
I just cannot handle being sick right now. I feel fine and I am only going to work on my immune system and look into the herbs and yoga.
My body needs to build back its good bacteria and besides the diarria was just beyond with the abx. I am not going down that road again.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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