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hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 2/13/2009 10:56 AM (GMT -6)   
Has anyone had success in curing/putting into remission bartonella w/rifampin? It seems that the primary choice if levaquin and i know someone personally who claims it was a god send... but my dr didnt prescribe it to me and said alot of his patients had side effects on it
 
I've been on rifampin since thanksgiving and for a few weeks i have the headaches at the base of my skull again as well as brain fog.. my doc switched me off mepron and onto malarone.. so i was thinking maybe its die off and the rifampin is being more effective since im on a lower dose malarone... so confusing!!!

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/13/2009 5:10 PM (GMT -6)   
Hezzener926, I also was wondering if the lower dose of malerone as opposed to the mepron dose I used to be on was making my headaches return. The same thing you describe in the back of my head at the base by the neck. I have been on Rifampin and minocycline along with mepron since September. I am feeling a whole lot better but fear the headache return when it threatens. So far it is only vaguely felt. I am not in remission but improving for sure. LLMD says when I have no symptoms for 2 months I will go on herbals. I have been treating for 2 years straight. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/13/2009 5:16 PM (GMT -6)   
P.S. Levaquin made my tendons ache terribly after being on it only 2 days so I cannot take it.

P.S.S. All literature I have read says we shouuld not take malerone/mepron with rifampin, but my LLMD says taking it and having a little absorbed is better than nothing. Apparently rifampin diminishes the affects of malerone/mepron. I also worry that the babesia is not gone entirely too. Confusing ????There should be another word invented to describe this not knowing what the right thing to do is. In a perfect world we would have LLMDs who know exactly how to treat what we have and find out what we have too!
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 2/13/2009 6:22 PM (GMT -6)   
Thanks for your reply! Right now, I am on malarone, rifampin, zithromax, cefdinir, and fluconazole... I have a bottle of mepron too... I don't know if I should stick it out on the malarone longer as maybe its a bartonella herx or change back to the mepron...

So, right now, you are on malarone? did you notice a decrease in headaches when you switched back to mepron?

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/14/2009 9:16 AM (GMT -6)   
As the headaches are definately returning along with the shoulder neck thing -today I switched back to mepron. I won't be seeing my llmd for 3-4 more weeks.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


skating mama
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 2/21/2009 4:25 PM (GMT -6)   
For my bartonella my ID dr. put me on 600mg. rifampim and 500mg. biaxin taken together once a day for 2 weeks. I felt such a great difference that she kept me on it for 3 months. I got my brain back something I hadn't had for the past 4 years. We all thought it was late stage neurological lyme, but in reality it was bartonella all these years. I had tests for everything and always came up negative, but was so badly symptomatic. I was IND. on Igenex for some bands, never a positive. I was always negative for bartonella until Fry photos proved it, incidently Fry lab test showed negative at the same time. I was negative for babesia at Fry, but the photos showed it. This is not unusual and is more the norm....
I was told after talking with some-one at Fry that there are so many different strains of babs, bart, etc. and there are not the tests for all of them. By having the photos taken of your blood in the blood smear slides they show up in the blood under the microscope and cannot be missed by the testing.
Now I'm being treated for babs with mepron, zithromax, artemisinin, and biaxin for 3 weeks.
We'll deal with the Lyme after the babs is gone.....
I watch my diet: no sugar, no carbs, drink only water and lots of it. I take New Zealand Colostrum: 450mg 2 pills 2 x a day, SAM-e: 400mg, Acetyl-l-carnitine: 1500mg, Vit. B6: 50mg, Glucosamine/Chrondroitin, Calcium/Magnesium, and CO-Q10 100mg 2x a day with Alpha Lipoic Acid 300mg daily BUT not while on Mepron.
I had 2 total knee replacements due to Lyme and 2 IV Picc Lines in the past 3 years due to Lyme with assorted oral abx.
Eating right, taking supplements (you don't have to go crazy), and targeting the co-infections first is definately the way to go.
Burrascano guidelines in his new edition dated Oct. 2008 is most helpful. I live in Delaware and got bit by a sand fly at the NJ shore 4 years ago....go figure...
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