i am curious how many people, who were not cdc-positive for lyme, but were treated, have actually gotten better????? i know there are probably no official numbers, and the people who were treated and got better probably aren't on this forum much, but i feel like i hear no stories of that. i am very unsure as to whether or not i should go down the lyme path and spend all that money to see a doctor and be treated when i have to wonder if lyme's is over-diagnosed. i do not mean to offend or belittle anybody's situation here because i completely believe in lyme and doing anything possible that makes one feel better, but i also worry that lyme is often blamed when nothing else "fits." not that i think diagnoses like chronic fatigue syndrome and POTS (which have been my diagnosis) are any better, as they are names that just describe symptoms and there is no treatment, but lyme's is a very very expensive disease to pursue!!!
so anyways, i have heard many stories of people who had been sick for awhile, then tested definitely positive for lyme, were treated and got better. i grew up in a lyme area in maryland, so i knew many. however, i don't feel that i hear any stories of people more in my situation - cdc negative, but with all the symptoms and a questionable igenex test - who are treated and get better. and by better, i mean not needing antibiotics.
i am just hoping for anybody's thoughts on this.