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lymelight3
Regular Member


Date Joined Jul 2006
Total Posts : 151
   Posted 2/23/2009 7:07 PM (GMT -6)   
I was curious if anyone here has had treatment from the mayo clinic?

lymelight3
Regular Member


Date Joined Jul 2006
Total Posts : 151
   Posted 2/23/2009 7:27 PM (GMT -6)   
Thanks so much Frango, I know of someone that is wanting to make an appt there. I figured that it wasn't a good choice but thought I'd ask you all first. THANKS

runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 2/24/2009 9:35 AM (GMT -6)   
Yes, DON"T waste your time with Mayo Clinic. They will NOT help at all with lyme. I went and it was a total waste of time. They said that I had "idiopathic immune dysfunction" whatever the heck that is???? They sent me home with some antidepressants. The most expensive bottle of zoloft ever!!

Runningirl

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 2/24/2009 5:37 PM (GMT -6)   
Mayo is a waste of $ and time. I've known of more people who went to Mayo with high hopes, only to be completely disappointed. Basically, their modus operendi is proving whether a patient's symptoms are psychological or not, and they tend to err on the side of psych vs. not psych. They do not believe anything except their own test results, and if what you have doesn't fit in a nice neat diagnostic box that they themselves have established, they automatically label you a psych case and send you home with antidepressants. I know far too many local doctors more than willing to give me antidepressants, so why spend all that $$ and time going to Mayo to get the same??? Just not worth it in my opinion...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Cipro (for G-tube site infection).


lymelight3
Regular Member


Date Joined Jul 2006
Total Posts : 151
   Posted 2/24/2009 9:12 PM (GMT -6)   
Thank you all so much. I will pass this onto my friend that was considering it. How very sad that this is probably labeled as a psychological disease to many people that do not know anything about lyme.
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