Hormones and Lyme

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hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 2/24/2009 6:17 PM (GMT -6)   
Has anyone out there improved with hormone therapy?

The reason I'm wondering is that a few days before my period I feel great. And during my period I feel great.

It's when my period ends that I take a dive.

Is this coincidence or hormone related.

How do I know for sure?

Thanks Martha's Vineyard for inspiring this post.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/24/2009 7:20 PM (GMT -6)   

Hi hopingToFindCure.  Lyme disease can definitely affect hormones and the menstrual cycle. 

You can read a recent post regarding homones at http://www.healingwell.com/community/default.aspx?f=30&m=1377192


bgpa
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/28/2009 1:46 AM (GMT -6)   
OK!
Just a little input, for what it's worth from the male side of the gender tree. scool
I have been battling LD for many years. While very ill I moved back to Sth TX w/ family, not knowing it is a region where LD is simply not an acceptable diagnosis. Reason I say that is often my symptoms are up/down/all over the map & the treatment I get locally is strictly symptom based w/ no one asking the why ?s. about a year ago I started railing at my Dr.s about something profoundly changing. Not just fatigue that I've always battled, but but 10x worse. Finally in some blood tests I remebered my brother once saying he had taken oral testosterone so I asked my Dr. to run that. The normal parameters are 270 -> 430. I should be in the 350 range. My level was 19. That's NINETEEN. He didn't believe it & reran it, twice. shocked (to this date, some dozen or so Dr.s have never heard of that low a level - from a LIVE body anyway. It's a statistical 0 ) First we did the oral pills - barely moved. Then a gel I had to slather all over myself - barely a # budge. Then shots every week! Dr. was excited when my # crept up to 160, then last week a periodic test showed my # back down to 86. Despite the shots, my body is not retaining the hormone. Simply, something is eating it up.
So now I have to wait the weeks to be referred to an Endocrinologist.
Now I know this has been of little help. Maybe somebody has some input for me. Any input I could give would be to go to an endocrinologist or a Women's Health specialist. My experience (possibly not everyone's) is that sometimers my GP holds onto an issue longer than he should feeling he knew the basics well enough. Often to find myself w/ the proper specialist shaking their heads, then on to suitable treatment.

Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 2/28/2009 5:45 PM (GMT -6)   
Hye hope that is so odd. I mean....That is just odd. I think that most of the girls on here think that they atre losing their minds or relapsing because all of their bad stuff comes back rigth before their time. But....hmm...that is so odd that that is a god time for you???
I am trying to think why? I am sort of at a loss. Could it be because your body likes the extra estrogen? I know that my hormones are in check. And only because of the million blood test. But maybe your body likes them. I had one women that told me that she felt best when she was pregant. And that all of her pains and joint problems would just stop. But that after she had the baby....she just had her fourth boy in 6 years. Then she feels terrible.
Well the good news is this. Ask your gyno to let you try a birth control of some sort. Maybe with the extra estrogen you will feel great...
My gyno had her best friend and her friends son both die of lyme. They both had a stroke.
So when she saw my positive blood test, and when I told her that my "worst" time was before and during, she said...hey well...lets keep your hormones stable. And she put me on a pill. Within about 5 days...I just coulnd't walk. It was like I had rolled a car. So I stopped it.
But maybe is would work for you. You will know very quickly. Who knows...tricky stuff here.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 3/15/2009 11:52 PM (GMT -6)   
Because I got so severely worse (lyme symptoms exacberated before during and after period) I felt i really had two herxes a month I know a girl who has MS she said she was better during her time. In NO way am I suggesting you have MS. I just wanted to share because my brother was double diagnosed lyme and MS (drs were fighting) I just think all avenues should always be explored. My faith is my best friend please don't be offended if I pray for your healing. I was low on estrogen so maybe that contributed to the terrible time I experienced on my period. This disease will try one's soul lisa

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2421
   Posted 3/16/2009 3:46 AM (GMT -6)   
Since being ill, my periods have bene worse. I get vertigo during PMS etc.
IS it lyme? Who knows, but I am very leery about blaming lyme for every thing that goes on in my body.

I'm 42 and in perimenopuase so I know my hormones are changing. I have an appoint soon with a wellness center than only deals in hormones so I'm sure I'll be taking bio identical hormones soon, so I'll let you know if it helps.
My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


MarriedtoLymeinNJ
Regular Member


Date Joined Sep 2007
Total Posts : 273
   Posted 3/16/2009 8:29 AM (GMT -6)   
peacesoul, I am looking forward to hearing what you come back with. I have always had hormone/period issues. Lyme has made it 1000 times worse, or at least the combo if it is crazy.
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 3/16/2009 9:59 AM (GMT -6)   
Estrogen dominance is a very bad thing so you do not want more of it. What you probably need is progesterone which is what your body is producing right before you have your period and what you have a lot of during pregnancy. It is the "feel good" hormone - helps you relax and sleep.
When you have severe hormone fluctuations such as when you are peri-menopausal, you have terrible body pain, mood swings, headache, migraine as well as hot flashes. Some doctors address this with simply estrogen but progesterone is even more important.

The key is bio-indenticall hormones which are compounded specificly for you.

bgpa, you should try the bio-identical hormones also. Ask your phamracist which doctors are prescribing them.

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 3/16/2009 11:03 AM (GMT -6)   
I feel so EXTREMELY Horrible and worse the day of my period and during it.

I have had all hormones checked and I am told I am GOOD. There was a tiny bit low on testosterone. :) Had a little compounded. I did not feel better or worse on it but upon new labs it shot through the roof. So high it must have been a lab error. I did not continue because of no benefit.

I had actually hoped I was on that road towards menapause and it would be the answer to some of these horrible times. At least to give me some hope that I could treat and feel better.

I have never heard anyone say they felt better during their period? So interesting. And if I feel so much worse .. why oh why?

So do the opposite of what is happening to me and I should feel better? Yeah right. If only.

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 3/16/2009 12:12 PM (GMT -6)   
KeepHope -

I am really sorry to hear that you have to suffer and fell so bad!!

Have you thought about trying to give you some progesterone with food? It is i.e. in Dioscorea villosa/ yams (great deal for all who love the african cuisine btw.). The substance in the roots is Diosgenin; I think there should be even more plants who have something similar available.

Frango`s idea with the docs he mentioned and the bio-identical stuff is really great.

Hope you get some relief soon! greeting, dorit.

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2421
   Posted 3/16/2009 12:35 PM (GMT -6)   
KeepHope said...
I feel so EXTREMELY Horrible and worse the day of my period and during it.

I have had all hormones checked and I am told I am GOOD. There was a tiny bit low on testosterone. :) Had a little compounded. I did not feel better or worse on it but upon new labs it shot through the roof. So high it must have been a lab error. I did not continue because of no benefit.

I had actually hoped I was on that road towards menapause and it would be the answer to some of these horrible times. At least to give me some hope that I could treat and feel better.

I have never heard anyone say they felt better during their period? So interesting. And if I feel so much worse .. why oh why?

So do the opposite of what is happening to me and I should feel better? Yeah right. If only.
I hear ya! I feel horrible on at PMS and on my period. I never used until up until 2 yrs ago.
 
There really is no solid way to check hormones. The FSH test is not reliable and that's the test dr's go by. It's as reliable as the ELISA.
 
Were you on bio identicals? If so, who gave them to you?
 
 
My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2421
   Posted 3/16/2009 12:40 PM (GMT -6)   

Frango, interesting! One of my good friends is a transgender and her dr knows a lot about hormones, but her doc is having trouble regulating her hormones. She is coming with me to the Wellness clinic to see if they can help her.
But I agree, these dr's are a lot more knowledgeable about hormones than a endo or gyno.

Frango, also, high doses of vit d deplete the body of magnesium, so if anyone is taking a lot of D, make sure you eat enough foods high in mag.

NO ONE should take extra progesterone without first checking your hormones or seeing someone with knowledge on hormones.


Suzanne's Sommers web site has lists of dr's who treat with bio identicals.



My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 3/16/2009 1:26 PM (GMT -6)   
http://www.ama-assn.org/ama/no-index/physician-resources/7157.shtml

I think at times we forget the whole endocrine system

Adrenal glands
Divided into 2 regions; secrete hormones that influence the body's metabolism, blood chemicals, and body characteristics, as well as influence the part of the nervous system that is involved in the response and defense against stress.

Hypothalamus
Activates and controls the part of the nervous system that controls involuntary body functions, the hormonal system, and many body functions, such as regulating sleep and stimulating appetite.

Ovaries and testicles
Secrete hormones that influence female and male characteristics, respectively.

Pancreas
Secretes a hormone (insulin) that controls the use of glucose by the body.

Parathyroid glands
Secrete a hormone that maintains the calcium level in the blood.

Pineal body
Involved with daily biological cycles.

Pituitary gland
Produces a number of different hormones that influence various other endocrine glands.

Thymus gland
Plays a role in the body's immune system.

Thyroid gland
Produces hormones that stimulate body heat production, bone growth, and the body's metabolism.

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 3/16/2009 1:32 PM (GMT -6)   
http://www.womentowomen.com/bioidentical-hrt/bioidenticalhormones.aspx

A place to start learning a little about bioidentical hormones. My best friend did not even know what they were and I was pretty shocked. She did not know her choices.. Education is the key.. I really believe that.

Some people.. (many I know even) just go to the doctor and do what they say. Even my best friend and then just tells me what they are doing to her as if that is just how it should be done. When i ask questions its like a alien is talking to her and there is a Whole Huge world missing for her.

I try.. to help.. and though.. there are some people .. even my best friend.. who live in another world when it comes to doctors and medicine. The one i do not want to live in.

I say .. educate .. educate.. educate.. research.. research research.. ask ...ask.. ask.. ..

Always keep your options open and never close a door...

: )

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2421
   Posted 3/16/2009 5:36 PM (GMT -6)   
KEppHope agreed x 100000000000000000000000000000000000!!!!

I got some GREAT info on bio identical from the clinic. They send a great package before the appointment.
My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 3/17/2009 7:09 PM (GMT -6)   
This is what I had to do to help myself. The normal amount prescribed to most patients of biest is 2.5-3 mg and the normal amount of progesterone is 200 mg. I told my doctor to give me this. He didn't even know what it was but the pharmacist did. I got it in a sublingual form which is a liquid you measure yourself, drawing it up into a surringe and then put under your tongue. I could adjust the amount to find out what worked best for me. I found half the normal dose is all I need.
You should check the symptoms of low estrogen and progesterone to try to determine which ones you may need more of. I realize now that I have had low progesterone all of my life having suffered from heavy irregular periods, insomnia and several miscarriages.

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1335
   Posted 3/18/2009 7:09 AM (GMT -6)   
Hi hoping to find a cure. I am exactly like you and have been on this path of wondering what the correlation is as well. I too, feel so good the days leading up to my period and then I crash about 2 days in and the week following. It is on point every month and I end up looking forward to those days leading up as I know I will feel great. I also felt great after giving birth last year and the months following when I had no period at all. So I know for a fact there is a connection. I just don't know what it is or how to go about getting my hormones to whatever level they were during those times (or if that is even possible). But, I am in the process of finding a good ob/gyn (my doctor was good, but knew nothing about lyme) so I can get my hormone levels tested and start down this road. My lyme specialist also knows there is a strong connection between hormones and lyme and symptoms flaring up, he just doesn't know yet why, but is researching it so the community is onto the connection, but who knows how long it will take for something to come from that.
 
If I learn anything on my journey, I will post it here. If you do as well, I hope for the same, but I am in the very same boat as you.
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