scary heart pounding

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alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 2/25/2009 8:07 AM (GMT -6)   
Hi everyone,
For the past week or two my heart has felt like it's pounding all the time. It gets a little better when I walk or exert myself, and it's most noticeable when I'm lying down. It's getting really scary. The thing is, I feel totally fine otherwise - like my lyme is gone. I'm concerned that it's back and just affecting my heart, or that my heart has been damaged. Or it could be something to do with a nerve or tendon (I do have tendonitis in my left shoulder) and my heart could be totally fine. I don't know if I should see my GP, who doesn't really trust my lyme diagnosis, or a lyme doctor, who would definitely treat it as if it's lyme...I have an appointment with a new GP who's supposed to be really good, but that's not til March 18th.
I'm thinking of self-medicating with the doxycycline I have leftover to see if that helps. I haven't been on antibiotics for several months now, and in the past they've always helped my heart palpitations. If that works, I'll know I need to go back to the lyme doc.
Any thoughts??? I keep thinking I'm having a heart attack, but my boyfriend tells me I'm fine. And I'm not really having the symptoms of a heart attack, but it's still very scary.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 2/25/2009 8:49 AM (GMT -6)   
Thank you Frango!!!! I'm really almost panicking about this. I have not had my hormones tested, but Ticker and others have suggested several times that I get that done...I'm just sort of paralyzed in regards to doctors these days, not knowing who to trust and not wanting someone to harass me and tell me I never had lyme. So does anyone know of a good hormone specialist in or near Philly?? If I got a recommendation, I would definitely go.
I am actually mid-cycle right now, so I'll try to keep track and see if the heart pounding goes away over the next week or so. I did just take a Doxy, though!
Thanks Frango! I'm glad to hear you're figuring things out in regard to your heart-pounding issues.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 2/25/2009 9:21 AM (GMT -6)   

Hi alfers.  I am sorry you are having this, I know it is scary.  Heart palps can also be thyroid related.  If you are also experiencing intolerance to heat, greater hunger than usual, weight loss, insomnia, and/or sweating you may be on too much thyroid medication. 

Believe it or not, some people experience palpitations with hypothyroidism.  I was one of them.  Mine was worse when laying down to go to sleep.  I did not have any of the hyperthyroid symptoms, so I knew it was not that.  This has gotten better for me with more thyroid medication.

Below is a list of hypothryoid symptoms from http://www.drlowe.com/geninfo/hyposymptoms.htm  I am using this list because it includes the heart related symptoms (which I bolded).

68 Most Commonly Reported Symptoms of Hypothyroidism
 

o Fatigue o Swelling of eyelids o Emotional instability
o Lethargy o Dry skin o Choking sensation
o Low endurance o Dry mucous membranes o Fineness of hair
o Slow speech o Constipation o Hair loss
o Slow thinking o Weight gain unexplainably o Blueness of skin
o Poor memory o Paleness of lips o Dry, thick, scaling skin
o Poor concentration o Shortness of breath o Dry, coarse, brittle hair
o Depression o Swelling o Paleness of skin
o Nervousness o Hoarseness o Puffy skin
o Anxiety o Loss of appetite o Puffy face or eyelids
o Worrying o Prolonged menstrual bleeding o Swelling of ankles
o Easy emotional upset o Heavy menstrual bleeding o Coarse skin
o Obsessive thinking o Painful menstruation o Brittle or thin nails
o Low motivation o Low sex drive o Dry ridges down nails
o Dizziness o Impotence o Difficulty in swallowing
o Sensation of cold o Hearing loss o Weakness
o Cold skin o Rapid heart rate o Vague body aches & pains
o Decreased sweating o Pounding heart beat o Muscle pain
o Heat intolerance o Slow pulse rate o Joint pain
o Non-restful sleep o Pain at front of chest o Numbness or tingling
o Insomnia o Poor vision o Protrusion of one or both eyeballs
o Thick tongue o Weight loss o Sparse eyebrows
o Swelling of face o Wasting of tongue

As I have said before, it is my understanding that saliva testing is more reliable than blood testing.  The lab my doctor used for this is ZRT http://www.zrtlab.com/  To find a knowledgeable hormone doctor, I recommend calling a compounding pharmacist in your area.  Many hormone meds are made through these pharmacies so the pharmacists know who prescribe them.

I hope you can find out soon what is causing this. 


alfers
Veteran Member


Date Joined May 2005
Total Posts : 2671
   Posted 2/25/2009 9:28 AM (GMT -6)   
Wow, thanks! Yes, I don't think I have any symptoms of hyperthyroidism, and I am on a low dose of Synthroid for hypothyroidism. I saw an endocrinologist who poo-pooed the idea that I had hypothyroidism based on my test results. So that's what I am a little scared of docs now.
I'll try making the phone calls you suggested.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/25/2009 11:08 AM (GMT -6)   
Hi All,
I have a question for Frango & Ticker,
My TSH was 0.938 the "normal reference" was 0.350 - 5.50.  All the doctors that have seen the results have said normal.  Do you think I should have it retested when I see my new doctor next month?  Would you say this is a normal reading?
Thanks, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/25/2009 11:10 AM (GMT -6)   
Hi Again,
I just found another TSH result from the same time as reported in my other post.  It was
0.65 (same reference parameters).
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/25/2009 11:45 AM (GMT -6)   
Hi Frango,
The other tests are closer to middle of the normal range.  I had to reschedule my yearly gyne visit until the beginning of April.  I am just menopausal as of Feb.  What test would you recommend I ask to have run?  I was also experiencing sore soles in the AM.  I tested neg for Bartonella thru Igenex.  Do you think hormones were to blame for your sore soles, or do you think you have a Bartonella issue?
Thanks, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


alfers
Veteran Member


Date Joined May 2005
Total Posts : 2671
   Posted 2/25/2009 1:27 PM (GMT -6)   
Frango - I completely forget where you are located. If you were remotely near Philly or NY, I'd go to see your doc! But yes, I'd be so grateful if you could ask him if he knows anyone near Philly. Thank you!!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/25/2009 3:39 PM (GMT -6)   

Hi KO-LD.  Many doctors use the outdated TSH range that goes to 5.5.  I believe the high end of the new range is 2.5.  Normal results may not be optimal for you.  Too many doctors rely solely on the TSH result.  It is important to monitor the Free T3 and Free T4 levels.  There are also T3 and T4, but from what I understand the Free Ts are more accurate. 

If you have thyroid antibodies present, this indicates Hashimoto's Thyroiditis which is an auto-immune thyroid disorder.  People who have this can have normal results but treatment is warranted.  This happened to me.  For years I knew I had a thyroid problem.  Doctors repeatedly ran the TSH, T3, and T4.  I was told the results were normal and nothing was wrong.  Meanwhile, my thyroid symptoms kept getting worse.  Finally, my Lyme doctor tested the antibodies.  The normal range for one of these tests is 0-34, and mine was over 1000!

There are T4 only meds such as Synthroid and there are T3/T4 meds such as Armour.  Armour is natural and used to be the only one prescribed until the synthetics were created.  Then many doctors wanted to prescribe only those.  I started off on Synthroid, but I wanted to switch to Armour.  It took some time to find a doctor willing, but I did and it works much better for me.  Some people do better on T4 meds, some do better on T3/T4 combo meds.

During treatment, some people's TSH becomes suppressed.  This happened to me even when my Free T levels needed improvement.  Many doctors will then decrease the meds solely on what the TSH result is.  Many people who have hypothroidism feel the best when the Free T levels are in the upper 1/3 of the range.  This is what I am trying to achieve.  It took a long time, but I have finally found a doctor (not an endo) who is working with me and it is helping.  In my experience, endos are the worst to see for this.  For me it would be like seeing an infectious disease doctor for Lyme.  This is just my experience.  I am sure there are endos who don't rely soley on TSH results, but I have never see one.

I recommend learning as much as you can about this so you can get the best treatment if needed.


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/25/2009 3:45 PM (GMT -6)   

Frango, I totally agree about the importance of hormone testing for both men and women who have Lyme.  The sooner you know if there is an imbalance, the less time it will take to fix it. 

I had saliva testing done for all hormones including cortisol.  I knew the cortisol would be low, but I was surprised to find that all of them were low!  Imbalances can cause many symptoms, including some similar to Lyme.

I also agree about having B12 levels checked. 


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/25/2009 3:47 PM (GMT -6)   
Thanks Ticker, Thyroid issues have always confused me.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/25/2009 3:57 PM (GMT -6)   
KO-LD, it is confusing!  I would start with getting the Free T3, Free T4, and thyroid antibodies tested in addition to the normal panel.
 

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/25/2009 4:11 PM (GMT -6)   
Hi Ticker,

I just went through all my old bloodwork, I did have a Thyroid Antibodies and a Antithyroglobulin Ab test done about 1 1/2 years ago.

Thyroid Antibodies result was <10 0 - 34 was the normal range
Antithyroglobulin Ab <20 0 - 40
T4 Free 1.39 0.61 - 1.7
Reverse T3 259 90 - 350
T4 8.0 4.5 - 12
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 2/25/2009 4:22 PM (GMT -6)   
KO-LD, I would have them done again, including the Free Ts, since it has been a year and a half. 

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 2/25/2009 5:00 PM (GMT -6)   
Thanks, Frango, & Ticker!
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 2/25/2009 5:41 PM (GMT -6)   
2 years ago I had this pounding for many months before being treated for hashimotos thyroiditis(hypothyroid), babesia and lyme. The pounding was most noticable at night. Can't tell what it was from because I got meds for all 3 issues at the same time. I am still taking armour for the thyroid, lyme babs and bart meds. Hope you clear it up soon. I know how it can interfere with rest if you can get any at all.Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 2/26/2009 11:00 AM (GMT -6)   

Hi ,

I live approx 1 hour from Manhatten, do you know of a doctor that would do hormone testing, I think that is my next stop or what should I ask my endo or Ob to do?


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/26/2009 2:21 PM (GMT -6)   
I understand the feeling well. It feels like a heart attack. And even when you are laying in bed it sort of feels like your heart is rolling over.
I personally would not take abx for the heart. But I had noticed that I was getting this feeling all the time before and it scared me.
The mind and stress can effect the heart very easily and so can your hormones. So look to see when this is the worst.
I had been put on a medication for it. And it is called lamotrigine. My father is bi-polar and it seems that I am more likely to be so also. It had never been a problem for me but when my lyme got worse the heart and the moods and the stress got worse. It was also things that maede me very happy. Like once while my daughter was opening presents I went down...EKG in the foyer.
We all know that they lyme can cause problems in the brain, and the brain can cause your heart to race. The lamotrigine stopped this for me.
I am not allowed off of it because of my past history in Sep and oct. So I am remaining on it. Till everyone is sure that I am not still at a risk.
I read that the lyme all knows that within 20 minutes of taking abx to wrap itself into a shell, abx , resistant sheild.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


alfers
Veteran Member


Date Joined May 2005
Total Posts : 2671
   Posted 3/3/2009 9:41 PM (GMT -6)   
I just wanted to tell you all that I finally took Ticker's advice and called a compounding pharmacy near me. They gave me names of several doctors in the area, and I made an appointment at one for two weeks from now (actually about an hour from me, but still kind of in the area). I really hope this doctor can figure out the heart pounding thing!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 3/3/2009 11:07 PM (GMT -6)   
Hi Frango,
Sorry if you did answer this already, but it's really late and I'm beat.  Do you think your sore soles is from hormone issues or Bartonella?  I've been thinking I may have Bartonella, but the sore soles are within the last year or so. 
Thanks, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 3/4/2009 6:49 AM (GMT -6)   
alfers, I am so glad you will be having this testing done!  I hope the doctor is knowledgeable.  Make sure you let us know how it goes.
 

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/4/2009 9:17 AM (GMT -6)   
Ticker, Thanks for all the information on thyroid. You really explained it all so well. I have hashimotos and take armour. All was ok for me. I went to an endo last year and she said I was taking too much medication. My llmd prescribed it for me so I paid no attention to her. However, now that I am getting better from lyme and co-infections, many things such as allergic responses are also going away. In your opinion is their any chance hashimotos can improve or is it a life-long thing? I am having anotherthyroid test this week for when I return to llmd next week. I have a prescription for free T 3, T4 and thyroid panel is there anything else to test for?

Thanks again and blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 3/5/2009 10:43 AM (GMT -6)   
My md was able to check my hormones in a simple blood test. Not a big deal.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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