Post Edited (Vin) : 2/26/2009 9:42:33 PM (GMT-7)
Being on steroids is not a good idea with lyme disease, it will really suppress your immune system making the little critters have that much more control over your body. Yes, it is going to be a process of the right combo of meds at different times. Also, you will have to find out if you have any other tick borne coinfections. As far as pain meds, if you are truly in pain you will not become addicted. It is when people use it without pain to get high on that become addicted. If you need it to function so be it. I hope you have found a good lyme literate doctor. I have had lyme for at least 13 years, I was diagnosed 5 years ago. Try to eat as healthy as possible, stay away from processed foods and sugar. Drink lots of water, eat lots of greens and low sugar fruit.Be sure to rest when your body tells you to. Good Luck in your journey! There is lots of info online, sometimes it can be overwhelming!! I wish you well in your journey. There is a pretty good book called The Lyme Disease Solution. It will tell you all about the antibiotics, detoxification, pain control, and a good anti-immflammatory diet. dozer
Vin - have you ever considered that your chrons might actually be a complication from Lyme + coinfections and not actually chrons? I know of several ppl who see the same LLMD as I do who were diagnosed with chrons and then later found out they had actually developed these issues bc of complicated Lyme cases. I hope your appointment brings you understanding and hope!
If I were you, I wouldn't waste your time or health on pain meds. Before I started my Lyme journey and begain to understand what was going on I had been in so much pain I was given Oxycotin and shots (I forget what they're called, but the shots they give women in labor)... neither worked. Probably bc the pain was being caused but underlying issues - Lyme.
What I can say though is it sounds like a lot of your pain is inflammatory and that can be controlled almost 100% by diet (I didn't believe it until I tried it!). I've been Vegan for several months now... plant based diets are very anti inflammatory - and I've never felt better. I'm still fighting Lyme and my co infections but I know one day I will be better.
Again, good luck with your appointment and make sure to discuss all your concerns with your LLMD. There is hope.