Gamma Globulin Treatment for Lyme

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RMV
New Member


Date Joined Oct 2008
Total Posts : 18
   Posted 3/4/2009 11:18 AM (GMT -6)   
 
 Hey All
 
Hope you're all doing well. I have had a conversation with a PHD Colleague who suggested we look into Gamma Globulin for treating my wife's Lyme Disease. Any experience out there? Please comment. Thx, RMV

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 3/4/2009 3:30 PM (GMT -6)   

RMV: I did the IgG injections, weekly for 6 months with not much improvement, maybe a little less tired. But I think maybe I was actually reacting to the injections as I am also very allergic. Are you looking into the IV or IM? The IVs I understand are around $2,000. a piece. not a possibility for me unless insurance would approve. Are your wifes IgG levels below normal? Mine were and after 6 months they had hardly improved so I stopped them. There is some risk of contamination as it is make from donated blood. That always scared me some. D


RMV
New Member


Date Joined Oct 2008
Total Posts : 18
   Posted 3/4/2009 4:17 PM (GMT -6)   
Hi Dowa

Thx so much for responding. I'm really not sure on how it's administered. Honestly not even sure whether her IgG level is low. I'm sure she has the info. Her Lyme Specialist is very good and he has helped her tr. He has just added the Ceftin to her Mep/Zith Combo. I need to do a lot more research on this IgG before we consider it an option. Thx again for replying. RMV

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 3/5/2009 5:19 PM (GMT -6)   
RMV: I asked this question about IgG awhile back here and did not get much of a response. The interesting thing is Lyme sufferers often have high IgG because their body is fighting and that is what it is supposed to do. Mine on the other hand is Low, right across the chart from subclasses 1-4 and my t-cell count is abnormally high. No doctor can tell me why that is, very frustrating. I would be curious to know if your wifes IgG levels were low like mine. Would you let me know? Thanks  D

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 3/28/2009 12:17 PM (GMT -6)   
Hi,
I will have to do Human gamma globulin injection. I already have strong brain fog, anxiety, depression, head-body numbness, fever... Maybe gamma globulin doesn't have any effect on these symptoms, but I would like to be sure. I'm afraid of getting it. Could somebody tell me if gamma globulin has any effect on brain fog, anxiety or depression?

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 3/29/2009 12:25 PM (GMT -6)   
I was given the injections only because my IgG levels were low. I did them weekly for 6 months and I did not really notice much improvement. I have never seen it given for brain fog, depression and anxiety. Its normally used to raise your globulin levels, are your levels low? There is risk of contamination because they are made from human blood, so I chose to stop them.  D

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 4/15/2009 1:18 PM (GMT -6)   
Hi Dowa,
I don't know how is my globulin level. My family doc did only regular blood test and I don't know if globulin level is in it or not.
Yesterday I got my first gamma globulin injection. I don't have any side effects but since that I'm always very cold. My head is burning like before but other parts of my body are very cold and I have cold shivers. I checked my fever and I have the same low grade fever than before injection. Did somebody experience it?
have lyme for about 4-4.5 years. I've just got positive lyme test.


Dan's Mother
Regular Member


Date Joined Feb 2007
Total Posts : 189
   Posted 4/15/2009 2:45 PM (GMT -6)   
My son just had his 3rd infusion of Sub-cutaneous Immunoglobins.  He has low IgG and three of the lyme literate docs, neurologist, PCP, and psychiatrist, all felt that he would benefit from it.  He has had no side effects other than redness and swelling at the sites of injection.  I guess it's really to soon to tell if it is helping.  I know that some people have been helped, but not others.  It was a very difficult decision to make, considering that it is a donated blood product, but then nothing about this disease has been easy, has it?  As Pam Weintraub says in Cure Unknown, we just have to keep peeling back the layers. 

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 4/15/2009 4:56 PM (GMT -6)   

Hope29: Did you ever have your IgG levels checked first. I guess I dont see how supplementing it would work unless your levels were already low.

DansMom: Did they think that Dan's low levels were caused by the Lyme Disease?? How often does he have them? They never determined why mine were low, but 6 months of weekly injections didnt help much. I understand your concern with contamination.  Thanks D


Dan's Mother
Regular Member


Date Joined Feb 2007
Total Posts : 189
   Posted 4/15/2009 6:46 PM (GMT -6)   
Dowa, Yes they do think the low IgG was caused by Lyme. Dan had been a very healthy, active, young man before Lyme. The mainstream immunologists that we saw said that most people with low IgG have a constant stream infections. Dan didn't really fit the usual profile, but they went out on a limb to try to help him. They told us flat out that they didn't believe in chronic Lyme and had spoken with their ID dept. and felt that it was not Lyme, but they saw a young man who was suffering and are trying to help.........what a concept! I'm sorry that this protocol didn't help you. Take Care, Karen

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 4/15/2009 8:21 PM (GMT -6)   
Thanks Karen. May I ask how often Dan is getting the injections? Maybe I was not getting enough. I hope he gets some relief with the IgG. D
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, October 22, 2017 6:45 PM (GMT -6)
There are a total of 2,885,801 posts in 316,642 threads.
View Active Threads


Who's Online
This forum has 157743 registered members. Please welcome our newest member, ghsebdw01.
435 Guest(s), 12 Registered Member(s) are currently online.  Details
Taylor Mathews, LymeBug21, netsavy006, TotesMagotes, Michael_T, Faustmann, ghsebdw01, three 5's and a jack, LinaJ, Worried Guy, leo77, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer