Worried about new diagonisis to go along with my Lyme!

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Alder514
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Date Joined Oct 2007
Total Posts : 7
   Posted 3/11/2009 7:06 AM (GMT -6)   
 
 Hi, I have had Lyme for six years but not diagnosed or treated for the first three years.I have been treated with oral antibiotics which  helped with my neuro symptoms(Optic neuritis, neuropathy in legs trouble walking, memory problems and extreme fatigue). I was good for approx. a year and then a relapse. I then went to a homeopathic doctor because my stomach would not tolerate the antibiotics again. The homeopathic treatment helped a lot. Now I am faced with a diagnosis of breast cancer and I will have to have radiation after my surgery. I am worried that my Lyme will go haywire with all this invasive stuff happening to my body. Has anyone had a similar experience that they would be willing to share??

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 3/11/2009 6:04 PM (GMT 0)   
A good friend of mine from New England was diagnosed with Lyme while she was going through her chemo after a mastectomy. She said to me,"how would I get Lyme disease sitting in this hospital" and I told her how it can stay quiet for years until your body is under great stress. She actually had her first Lyme symptoms while she was still in the hospital. So, I would say, just really pay attention to keeping your immune system as strong as possible. Good luck with the surgery.   D

alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 3/11/2009 2:11 PM (GMT -6)   
Hi Alder514,
I'm so sorry to hear about your diagnoses. I did not have the same experience, but I DID have surgery recently, and I didn't have a major relapse (I too am almost 100% better after several years of treatment). I did go on abx again for a couple months after the surgery because I was feeling symptomatic again, but all the symptoms went away pretty quickly, and they may actually have just been residual effects of the anesthesia or my body trying to get better. Not sure. I also was diagnosed with cutaneous lymphoma (just affects the skin) while being treated for lyme, and I didn't have a relapse during that treatment either. But that treatment was just phototherapy -- nothing at all like chemo or radiation.
Do you still have a lyme or homeopathic doc you can talk to about all this?
Keep us posted on your progress -- we're all rooting for you.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


Alder514
New Member


Date Joined Oct 2007
Total Posts : 7
   Posted 3/11/2009 4:30 PM (GMT -6)   

 

  Dowa, Thanks for your quick and helpful response. It helps to hear other people's experiences.

 Cathy


Alder514
New Member


Date Joined Oct 2007
Total Posts : 7
   Posted 3/11/2009 4:35 PM (GMT -6)   

 Alfers, Thank you for sharing your experience and for reminding me about getting back in touch with the homeopathic doctor.

Good luck with the cutaneous lympoma and the treatment.

 Cathy


hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 3/11/2009 6:18 PM (GMT -6)   
Hi - and so sorry to hear of your dueling battles with ill health.

I think the Naturalpathic doctor can help you navigate this to come out on top.

You will need to vamp up your own natural defenses to ensure Lyme disease is under control to the extent it's possible.

Take plenty of supplements -- vitamin C and natural antioxidents. Get your rest and exercise when you're up to it.

Same advice as any of us with or without Lyme!

You can fight this and win -- both Lyme and Cancer. Stay strong. Stay positive. Be fearless!

Alder514
New Member


Date Joined Oct 2007
Total Posts : 7
   Posted 3/11/2009 6:29 PM (GMT -6)   
KeepHope, Thank you for your kind words. I live in rural Maine and it is hard to find a LLMD up this way. There is one I used to go to but I know he isn't taking new patients .Hmm Maybe I wouldn't be considered a new patient and under these circumstances, it 's worth a try!
Cathy

Alder514
New Member


Date Joined Oct 2007
Total Posts : 7
   Posted 3/11/2009 8:09 PM (GMT -6)   
hoping to find cure, This is such a great place to post! It seems like such a supportive group! Thanks for reminding me that I need to stay strong,positive and fearless.
Cathy
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