MALARONE???? Need help...

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ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 3/13/2009 6:58 AM (GMT -6)   
 Can anyone tell me their experiences with taking malerone. My doctor said he is switching me up to stir up some stuff he thinks is hiding. So now I will be adding Malerone to my Bactrim and Arttemisinin. I'm nervous about it. I hope I don't back slide and feel like I did this past summer. I am so worried about that. : (
Any input is greatly appreciated.
Thanks,
Maria cry
 
PS I have, Lymes plus Babs and Echrl.

phsinvent
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Date Joined Aug 2006
Total Posts : 1155
   Posted 3/13/2009 9:51 AM (GMT -6)   
Don't worry. Malarone is not too strong at all. It contains a far lower mg of atovaquone than mepron. It is more of a preventative drug a traveler would take when entering a malaria infested country.

phsinvent
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Date Joined Aug 2006
Total Posts : 1155
   Posted 3/13/2009 9:55 AM (GMT -6)   
Also, don't forget to take it with fat(milk, milk shake, cheeseburger, cheese, oil etc). Atovaquone is a fat soluble chemical. It does not dissolve in water. If you take it with just water, 95-99% of it will go straight through you and into the toilet. When taken with fat, atovaquone dissolves in the fat and the fat is absorbed into the walls of the intestines, carrying the chemical through.

ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 3/13/2009 3:15 PM (GMT -6)   

beths
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Date Joined Aug 2006
Total Posts : 690
   Posted 3/13/2009 5:02 PM (GMT -6)   
Alternating malarone/zith 1 week, and bactrim/zith the next helped me turn the corner!

bablymers
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Date Joined Oct 2006
Total Posts : 1458
   Posted 3/15/2009 8:21 PM (GMT -6)   
I tolerated the malarone well (I think). Used it with atemisinin. It may have helped me but for some reason I started having liver and kidney problems so I had to stop all drugs. I'm not sure if it was all the toxins from the meds or die off that pushed me over the edge. My hope is that you are able to get blood chemistry tests to monitor how you are doing on the meds. Take care.
bablymers mom

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 3/16/2009 7:05 AM (GMT -6)   
Thanks Everyone. bablymers did you get rid of your Babs using the Malarone?

Ticker how are you feeling now with your Babas?

beths, How are you feeling now? Do you feel like your Babs is now under control?

beths
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Date Joined Aug 2006
Total Posts : 690
   Posted 3/16/2009 8:16 AM (GMT -6)   
Considering 2 years ago, I was housebound-I'ld say the malarone helped!  I was in remission a few months ago, but I went off too soon...had a slight relapse-doing well now.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 3/16/2009 8:28 AM (GMT -6)   
beths glad to hear your doing good now. Best of health to you..
maria

minerals
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Date Joined Jul 2007
Total Posts : 943
   Posted 3/16/2009 9:12 AM (GMT -6)   
I tested positive for babesiosis a few years ago. Along with abx I was on mepron for about 21 months, then malerone. I had no bad reactions to either of them. Malerone is much milder than mepron. The treatment worked for babesia (I HOPE). It was very difficult to get rid of. I am now on a moderate cowden protocal along with abx to treat any residual parasites.Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 3/16/2009 10:02 AM (GMT -6)   
minerals. I am happy to hear you are so much better,. I wish you good health forever.
Maria

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 3/16/2009 10:04 AM (GMT -6)   
Ticker Thank you so much, I also answered you on the other post.
Thanks Again hope you feeling well,
Maria

beths
Veteran Member


Date Joined Aug 2006
Total Posts : 690
   Posted 3/16/2009 11:44 AM (GMT -6)   
Minerals-what Cowden herbs do you take for babs? I didn't think they had any, only lyme.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/16/2009 1:16 PM (GMT -6)   
Samento which is cats claw (I think) which is also an antiparasitic and antiinflamatory etc, along with parsley and cumanda to start. These are in the form of drops to begin slowly and increase as tolerated.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 3/16/2009 6:40 PM (GMT -6)   

Hi ria,

I did not take malarone long enough to get rid of the babesia.  I have been on all natural treatments now for a long time because of my body's intolerance to meds.  I have improved a little over time, and was  recently put on the drug Alinia for a cryptosporidium infection (gut infect., water borne parasite).  I was told it would hit the babs too.  I was on the Alinia for 3 weeks, and now I will start it again for another month.  Don't know yet how long I will be on it.  Just had a blood chemistry test to see how I'm handling the meds and will get the results this week.  I was told a long time ago by an llmd that Babs is hard to get rid of and treatment can last around 7 months to kick it.  I'm not sure how long it takes with all natural stuff.  I'm hoping my immune system gets strong enough to do the job itself!   Best wishes to you.  bablymers mom


Post Edited (bablymers) : 3/16/2009 6:46:24 PM (GMT-6)


ria123
Regular Member


Date Joined Aug 2008
Total Posts : 348
   Posted 3/23/2009 7:33 AM (GMT -6)   
Thanks for the info. : )
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