Question about abx. combinations for bartonella....

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georgiagirl
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Date Joined Oct 2007
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   Posted 3/16/2009 1:39 PM (GMT -6)   
 What is a good combination for bartonella? I am alergic to zithromax and biaxin. I can take rifampin. Is that the same as mycobutin/ rifabutin? Can rifampin be taken alone for bart. or is a combo needed?
I am currently on bicillin shots once a week.
I'm having alot of foot pain again since I came off rifampin a couple of months ago. Especially heel pain.
I had a negative I genex test for bart. but I think I must have it since I improved with rifampin?
Any thoughts? rolleyes

georgiagirl
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Date Joined Oct 2007
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   Posted 3/16/2009 1:42 PM (GMT -6)   
I forgot to add that I took rifampin for 5 months straight, everyday. 600mg

minerals
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Date Joined Jul 2007
Total Posts : 943
   Posted 3/16/2009 2:19 PM (GMT -6)   
I also test negative for bart but believe I have it. Foot pain etc. I have been on rifampin and minocycline since September. I think I have improved allot. Now just today I am beginning modified cowden along with the abx. I am already herxing.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 3/16/2009 3:07 PM (GMT -6)   
minerals, so glad that combo is working for you. What are you taking from cowden?
I was feeling much better when I was on IV rocephin, rifampin and flagyl. I had to have my line pulled because of arm pain and my stomach started hurting so I had also stopped the rifampin and flagyl. I really think I need to get back on rifampin but i'm trying to give my stomach a break, it's still not quite right. I think I have an ulcer.

georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 3/16/2009 3:17 PM (GMT -6)   
I wonder if minocycline, bicillin shots, rifampin and flagyl would be a good combo for LD and Bart.?

I have a really nice ID doctor that's on my insc. but I have to suggest abx. to him it seems. He doesen't talk about co-infections much probably because my tests were negative? Anyway, that's why I have all these questions.

phsinvent
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Date Joined Aug 2006
Total Posts : 1136
   Posted 3/16/2009 3:33 PM (GMT -6)   
What type of allergic reaction happens when you take biaxin? And what complete list of symptoms do you have besides foot pain?

ktp812
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Date Joined Jul 2007
Total Posts : 711
   Posted 3/16/2009 4:12 PM (GMT -6)   
georgiagirl- I felt much better when I was on rifampin too. I am hoping to go back on when I see my doc in two weeks. I was on for 8 months. 3 months and then 5 months. Had to go off for a month cause of low WBC. I have never been on flagyl..I wonder if that would help too. Did you ever take levaquin. I am not sure if it was herxing or side effects but I had really bad depression on levaquin although it did resolve my sore throat of 10 months!
 
Kim

georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 3/16/2009 4:19 PM (GMT -6)   
I get little itchy red bumbs all over from biaxin and zith.
My symptoms started in my feet (anckles) two years ago, major pain, hard to walk. From there I got a flue-like illness that never goes away. I have an all over achey feeling, heel pain, arthritis in my hands and feet with weakness and delay, stiff neck, head pressure brain fog, twitches, internal tremor feeling, major fatigue, insomnia, bladder issues, poor circulation purpleish nailbeds with white fingertips, enlarges blood vessles, numbness in feet hands and lips.
I have had occational night sweats on some treatments. Usually my neck area, I can only remember once having to change all my clothes. I just started having shallow breathing but not air hunger, although I did have air hunger for a couple of days a while back.
I think that about covers it.
What does this sound like to you? Thanks.

phsinvent
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Date Joined Aug 2006
Total Posts : 1136
   Posted 3/16/2009 4:27 PM (GMT -6)   

So wait, you had all those symptoms while you thought you were doing good on rifampin? It is a bummer that you can't take any of the macrolides.

I'd reccomend something like Roxthromycin, Bactrim and Artemenisin. But you are seeing a llmd and would have to follow his protocol. Obtaining roxy would require ordering from overseas and only certain people are comfortable with it.


1bitten2xshy
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Date Joined Jun 2007
Total Posts : 847
   Posted 3/16/2009 5:12 PM (GMT -6)   
My LLMD has me on Rifampin and Levaquin together...whew

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 3/16/2009 6:16 PM (GMT -6)   
Phsinvent, My symptoms got better on IV rocephin, flagyl, and rifampin. After having to stop those abx., i've been going down hill since.
Yes it is a bummer that I can't take macrolides. I may need more IV's at some point, but my arm hurt so bad there in the end. I need a break from that.

1bitten2xshy, how is that combination working for you? I took levaquin for 2 weeks once and it almost killed me. I had horrible pain with it. Maybe it was a "mother" herx. LOL

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 3/16/2009 6:22 PM (GMT -6)   
Isnt Biaxin good for bartonella too?

I understood it can cover a lot of ground and types of infections including bartonella

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 3/16/2009 7:24 PM (GMT -6)   
KeepHope, i'm not sure about that, maybe phsinvent will let us know. Thanks

phsinvent
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Date Joined Aug 2006
Total Posts : 1136
   Posted 3/17/2009 4:11 PM (GMT -6)   

Biaxin appears to be one of the better options. I would take biaxin and just add to it accordingly. Biaxin, Rifampin is good. Biaxin, Bactrim is a nice one too. Biaxin plus herbs is good too, cumanda etc. Of those that have done biaxin, they appear to get results rather fast. I think biaxin has a greater effect on lyme but also some effects on babesia and bartonella. Zithromax appears to be less effective in the oral form.

You really have to experiment until you find something that makes the symptoms go away after an initial increase of symptoms. Sometimes people chase bartonella when in fact they should be going after babesia. And sometimes they go after babesia while ignoring or missing bartonella. The best approach is to cover them all. Below are some of my favorite meds. I've tried sooooooo many different abx and antimalarials but the first list below is what brought me back to reality. I didn't take them all together, but each in different specific combos. And what i was infected with is not the same as others.

Roxithromycin, Bactrim, Biaxin, Rifampin, Minocycline, Artmenisin, Samento, Plaquenil, Diflucan. 

Meds/herbs i've tried but not a big fan of. Amoxicillin, Doxycycline, Lymecycline, Tetracycline, levaquin, Cipro, Avelox, Mepron, Malarone, Garlic, HH capsules, humaworm, oil oregano, olive leaf extract, Zithromax, Flagyl, keflex, Augmentin etc.  

 


bigdreams87
New Member


Date Joined Mar 2009
Total Posts : 16
   Posted 3/17/2009 10:14 PM (GMT -6)   
Phsinvent - did you ever try silver like ACS 200?

KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 3/18/2009 2:20 AM (GMT -6)   
I was looking for the theraputic dosing for biaxin. I have trouble with higher dosages so I helps to know if there is an issue with lower dosages compared to higher ones?

I know each abx is different. What do you know about Biaxin and is that a different number if used with Plaquenil??

1bitten2xshy
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Date Joined Jun 2007
Total Posts : 847
   Posted 3/18/2009 6:39 AM (GMT -6)   
I seem to tolerate it pretty well. It can be hard at first...emotional I find the hardest. This is my 2nd round of that combo.

phsinvent
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Date Joined Aug 2006
Total Posts : 1136
   Posted 3/18/2009 11:17 AM (GMT -6)   

I think the max for biaixin would be about 1500mg. I did 2000mg for many months in the past without any problems but i think i was asking for trouble. The norm appears to be 500mg-1000mg. Yes, for the first 2 months, i was an emotional wreck. It was very tough emotionally in the beginning but through time, i couldnt even tell i was taking it. Must of been some type of emotional herx.

Sorry bigdreams. I never took any nano or colloidal silver.


georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 3/18/2009 3:16 PM (GMT -6)   
would rifampin and bactrim be a good choice for bartonella since i'm alergic to zith. and biaxin? I did pretty good on rifampin but I think I need to add something else in. Is bactrim good treatment for babesia as well? I am currently only on bicillin shots.
If so what would be a good dose for me. I weigh about 105 lbs.
Should I pulse oral abx. or take them everyday? What has worked for you guys? Thanks

1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 847
   Posted 3/18/2009 3:21 PM (GMT -6)   
For Lyme my Dr. had me pulse. For yeast on diflucan straight and made huge strides with that. For Babs for on straight and for Bart on straight for 3 weeks, then break for 3 weeks, then hit again for three weeks.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 3/18/2009 8:42 PM (GMT -6)   
I just had to quit Levaquin. I am having tendon problems now - snaps here and there and there is sudden pain but then it goes away - thank goodness. I am going to call for another perscription tomorrow. It is good to know what you all think works best with bart. I can look up side effects.
I am sick of this - can't believe it - what a nightmare.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/18/2009 9:03 PM (GMT -6)   
nefferdun, I had huge problems with my tendons from levaquin and cipro on the 2nd day of taking them. Keep trying and you will find the right combination for you that will make the difference, and if that stops working you will find another one. In the end perhaps herbs will see you through when it is all over so you can stop antibiotics. Whatever way you get there..... you will get there.

We are all sick of being sick and yes it has been a never ending nightmare. But it is one that we share and it helps to have company in our misery doesn't it? I hope you feel better soon.
Ouutstare the darkness and you will see the light again. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 3/20/2009 8:20 AM (GMT -6)   
Would bicillin shots (one a week) rifampin, bactrim, be a good combo for bart. and LD? Would doxy. or doryx be better to add than bactrim.
What would be a good cyst buster to add to the mix? I might possibly have babs. but I will have a hard time convincing my doctor to treat with mepron or something like that. Is dorx a good one for babs?

kendal122
Veteran Member


Date Joined May 2007
Total Posts : 1087
   Posted 3/20/2009 8:54 AM (GMT -6)   
phsinvent, is this the site that you ordered from www.edrugone.com. did you have good expericence with them? do you still order from them? Thanks,

kendal122
Veteran Member


Date Joined May 2007
Total Posts : 1087
   Posted 3/22/2009 5:06 AM (GMT -6)   
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