Terrible dr. appt for hormone check!!

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alfers
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Date Joined May 2005
Total Posts : 2671
   Posted 3/17/2009 1:55 PM (GMT -6)   
Hi all,
Per Ticker's recommendation, I called a compounding pharmacy and got the name of a doctor who has supposedly ordered meds from them, meaning she probably tests for hormone imbalances. I drove an hour to see her today, and it was a COMPLETE waste of time!! I told her I was having cyclical heart palpitations, fatigue, and some other symptoms (I forgot to mention the cyclical nightsweats) and had already been diagnosed with possible low thyroid function AND have been dealing with chronic illness for many years. She asked me if I had regular periods. When I said yes, she said, "Well, you've told me everything right there. If you're having regular periods, your hormones are fine." Then she went on to say that hormones have no effect whatsoever on the heart, so my palpitations might be caused by a heart problem that a family doctor could recognize. Um, she apparently didn't realize I've been to all sorts of docs and even had an EKG to test my heart!! She said she saw no reason to even test my hormones because my periods are normal.
I am SOOOOOO mad!! If I google heart palpitations and hormones, I come up with so many websites discussing the link, and the same goes for regular periods and hormone imbalances. I can't believe she flat-out said there was no connection!!!
So now, once again, I'm hesitant to see any new doctor, even though I really need these issues addressed. Any advice??? Do any of you out there who see docs for hormone issues live remotely near Philadelphia?? I'll travel at this point!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/17/2009 2:04 PM (GMT -6)   
Alfers, So sorry you are again disappointed in the medical establishment. I am not surprised. I haven't met a gyn yet that is knowlegable about lyme and hormone connection. While I still get palps and some pounding, most of the heart issues have gone since babesia, bart and lyme treatment. Every now and then that returns but doesn't last. Also I was supposed to have valve surgery, now I don't have to. Not that my valves have improved but the breathlessness has left. Hope you get some relief soon. Blessings

DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 3/17/2009 2:35 PM (GMT -6)   
Yes I feel your frustration!!!
 
I just got done doing a google search on that also for my sister who is perimenopausal and been having heart palps.
 
And yes, hormones play a huge role!!!  That doc is whacked.  Forgive her for what she doesn't know and move on.
 
My LLMD is a GYN MD.  My periods starting coming every 3 weeks and she told me that the Lyme might be sending me into early menopause.  Yeah! Like I don't have enough crap to deal with. ?
 
Anyway,  I had a horrible herx a month ago with significant heart palpitations and a heart rate of 115 for over 4 hours.  Went to the ER, had a normal EKG, so the doc wrote me off.  I tried to explain the Herx thing and I realized he just wasn't gonna get it.  Saw my LLMD/GYN and she gave me "Bi-Carb formula" from Klaire Labs for the next time my heart palpitations are irritating.
 
Also, I was taking Biaxin and Cipro. Which together can give you heart palps.
 
you might want to do a search for naturopaths in your area.
 
Good luck and God bless!!
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 3/17/2009 2:42 PM (GMT -6)   
I am so sorry to hear this, alfers, but I know that is only small comfort right now.

I also should get hormons checked I think but I`v ducked from doing b/c I still hesitate to start another endless journey convincing the "med estabishment" about the necessity to look into this matter... Frango came up with a good idea about docs who may know a lot about hormons in the other thread "Hormones and Lyme" - I was thinking to check that out as I live in a metro with a huge gay community as well; could this also be an option for you? -would be worth a try may be, we do not have that much to loose - besides our patience.
Let`s try not to give up !!! greetings, dorit

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 3/17/2009 4:36 PM (GMT -6)   
Sorry you had such a bad experience. I have written a book called The Natural Hormone Makeover and it may be very helpful as I clearly address permenopause. There are 2 doctors experienced with hormones in your area is Dr Eugene Shippen (610-777-7896) .. and Dr Magaziner 856-424-8222. Check them out. DHEA and pregnenolone are very helpful with Lyme - these docs will know of this- your DHEA-S should be above midrange and pregnenolone should be >30......these are detailed in the book.......good luck

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 3/17/2009 4:58 PM (GMT -6)   
I understand your frustration. My hormone levels are completely out of wack. I went through menopause at 42 with NO symptoms (some say I am blessed with that) and now 15 years later my estrogen and estradiol are FOUR times what they should be and my testosterone is like that of a man. So, YES YES Lyme can completely mess with your hormones. Glad that you have some docs suggested here to see, I wish I was in your area, I would also make an appt. Good luck-  Dowa

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 3/17/2009 6:36 PM (GMT -6)   
I also understand your frustration. You can have your LLMD or your family doctor prescribe them for you to see if it makes any difference. A normal dose would be 2-3mg biest and 100-200mg progesterone. Start low and work your way up. If these hormones are compounded separately to be used sublingually you can adjust the dosage yourself. I would then ask for 3mg biest and 200 progesterone. You fill up a small dropper with mg measurements and put each hormone under your tongue. This is what I did to find the right dose for me. It changed my life (then came the tick bite).

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 3/17/2009 6:38 PM (GMT -6)   
She's (for lack of a better term) an IDIOT!
Heart palps are a symptom of hormone issues.
 
I have an appointment with a wellness clinic in 3 weeks for to check my hormones.
 
 
Here is the list I got from Suzanne Sommers web site. She is the Queen of hormones.
 
 
NEW JERSEY
Dr. Vladimir Berkovich
1707 Atlantic Ave., Bldg. B
Manasquan, NJ 08736
732-292-2101

Gary Klingsberg, DO
66 N. Van Brundt St.
Englewood, NJ 07631
201-503-0007

Dr. Allan Magaziner, DO
Magaziner Center for Wellness and
Anti-Aging Medicine
1907 Greentree Rd.
Cherry Hill, NJ 08003
856-424-8222
www.drmagaziner.com
 
PENNSYLVANIA
Dr. Adrian J. Hohenwarter
Family Practice & Alternative
Medicine
745 S. Grant St.
Palmyra, PA 17078
717-832-5993
Also compounds hormones

Ruth Jones, DO
342 S. Richard
Bedford, PA 15522
814-623-8414
Conrad Maulfair, DO
403 N. Main St.
Topton, PA 19562
610-682-2104

Dr. Ralph Miranda
196 Old Route 30
Greensburg, PA 15601
724-838-7632
My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


pjbat
Regular Member


Date Joined Dec 2007
Total Posts : 119
   Posted 3/17/2009 8:26 PM (GMT -6)   

It's definitely worth pursuing with a good doctor. When I was first searching, I spoke with a doctor who said menopause wouldn't cause you to feel 'sick,' rather, just tired and lacking energy. I knew that wasn't completely true since I had a friend who was very sick when she went into menopause - stomach cramping and migraines. She went on hormones for a limited time and was fine. 

So, I kept searching and found a doctor I like. I went through all the testing and am now on the bioidenticals. He also put me on a drug for thyroid since my number was on the lower end of the scale (not out of range, but low). My hot-flashes have decreased significantly and I'm feeling better overall.  My theory is if I can get this in check, not only will it make me feel better, but my body will be able to better fight the Lyme. The more I've learned about all this, the more I think hormone and thyroid imbalance is a real epidemic - for women both in perimenopause and postmenopause (I fall into the latter.)


 


alfers
Veteran Member


Date Joined May 2005
Total Posts : 2671
   Posted 3/17/2009 9:17 PM (GMT -6)   
Thank you everyone!! I'm so angry that I wasted half my day going to that useless doctor. I'm only 30 and I don't think I'm going through perimenopause (as I said, my periods have been totally normal), but I do have almost all the symptoms of low progesterone. And all my other lyme symptoms seem to be gone, and I haven't been on meds for a few months now. What I have left, that I *think* could be hormone-related, is a little bit of fatigue and lack of motivation, night sweats the week before my period, major heart palpitations in the middle of my cycle, a bit more sweating than usual, a little less of a sex drive than usual, and weight gain around my tummy in the past few years, despite eating really well and exercising. I also get severe breast tenderness and other PMS symptoms for a good two weeks or so before my period...Which basically means it feels like my hormones are behaving normally for about a week out of every month!
Dr. Magaziner sounds wonderful - I just looked through his website. I think I'm going to make an appointment with him, once I recover from today's awful doctor's visit. Thank you!!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 3/17/2009 9:19 PM (GMT -6)   
I had a cardiologist come into my room, flip through my chart, and ask me if I was still menstruating. When I told him that I was, he said there was no way I could have any heart problems. He told me not to waste his time and I could come back when I was in menopause if I still thought I had heart problems.

I never went back to him.

amandapoo
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/20/2010 5:42 PM (GMT -6)   
My advice? Be careful of any alternative doctor you choose and do research on the doctor when you do. I went to a holistic doctor and he was trying to balance my hormones for 4 years which is way too long plus I suffer from CFS. Because of the CFS I couldn't do my job any longer and lost my health insurance. This doctor wasn't treating anymore after that and I just left me on hormones that were off balance and I suffered greatly because of it. I'm now off the hormones and still not feeling right but BETTER THAN WHEN I WAS ON THEM. Another words, if you loose your insurance while you are under treatment for hormone imbalances THEY CANNOT TREAT YOU ANYMORE BECAUSE THE TESTING IS VERY COMPLICATED. SO BE CAREFUL. I WILL NEVER TRY THIS TYPE OF TREATMENT AGAIN UNLESS I KNOW I AM GOING TO KEEP MY INSURANCE AND I KNOW THE DOCTOR IS TOP KNOTCH!

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 9/21/2010 7:21 AM (GMT -6)   
Before my lyme diagnosis I had major heart palpatations. It was one of my first symptoms and I went from Dr. to Dr. to ER to ER and after many EKG's and heart monitor's and ultrasounds of my heart, I was told I had Mitral Valve Prolapse and a small heart murmer, but was told they didn't cause heart palps.
 
So after I finally got my diagnosis of lyme a couple years later, I had a cardiologist that I continued to see because the heart palps were so bad. He told me lyme could not cause any problems with the heart and basically that there was nothing wrong with me.
 
Well, I guess in some ways he was right, but he was wrong about the lyme causing heart palps. It most certainly did. The good part was that it did not cause any problems. More of just an annoyance. I don't get them anymore, still have the heart murmer and MVP so I know it was ALL lyme related. Every now and again I feel a extra heavy thump, but have had so many EKG's since then (over 10  years ago) that my heart is fine.
 
I understand your worry. It is a scary symptom, but if you are still dealing with lyme you can continue to have the heart palps. Of course I am not a dr. so it is always best to be checked out, but in my case, it wasn't something I needed to worry about (even thought at the time I did very much).
 
As for hormones, myself and my lyme dr. believe there is a strong connection between them and how we well. After I gave birth and was breat feeding and not having a regular cycle I felt amazing. For just having a baby I thought I would feel the worst, but once my cycle returned 3 months later I started to have some symptoms return. Even now 2 1/2 years later I feel amazing the week prior to my cycle starting and feel worse the following week and I know it is all hormone related. I have discussed this with my lyme dr and he says there just isn't enough research yet on the connection of lyme and hormones.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/21/2010 11:37 AM (GMT -6)   
There was one alternative health care practitioner (he happened to have Lyme himself) I was seeing who claimed that parasites (including bacteria) could duplicate the hormone receptors and thus "eat" our hormones and throw them out of whack. To me, it seems logical that Lyme could be one of these "critters" that could do this, which could mess seriously with any and all hormones (not just reproductive hormones).

Also, I thought there was a lot of info about Lyme messing with thyroid hormones...wouldn't it seem likely that Lyme could also mess with other hormones because of this? Sometimes I just shake my head over the lack of logic in the medical world...

Just my $.02...
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, UCTD, Osteoporosis, etc.; G-Tube; TPN via PICC.
Meds: IV Ceftazidime, Singulair, Claritin, Domperidone, Milk Thistle, Moducare, homeopathy, etc.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 9/21/2010 4:04 PM (GMT -6)   
I have a gynocologist who I absolutely loved. But when i first started with lyme symptoms, she told me early meno. So when I was near nervous breakdown a year later and periods stopped completely, she tested hormones and lo and behold no estrogen. So she put me on HRT and promised me that I was postmenopausal. A year and a half into lyme treatment, my periods have returned WHILE ON HRT! So now I don't know where I am. Unfortunately, lyme is not known by any of the medical society other than LLMDs.
Lyme, erlichosis, bartonella, herpes, EBV. 4 years undiagnosed despite 10 drs.
Current meds: tetracycline, amanatadine, neurontin, xanax, valtrex
Prior meds: amoxicillin, probenecid, doxy. IV refused by insurance.
THERE ARE ROUGH DAYS, TOUGH DAYS BUT ALSO GOOD DAYS. MY BOYS GET ME THROUGH THE BAD AND I SO ENJOY THE GOOD DAYS WITH THEM!

ShelETN
Regular Member


Date Joined Sep 2010
Total Posts : 49
   Posted 9/21/2010 7:06 PM (GMT -6)   
i am sorry you had such a crappy appointment. believe me, i have been to several insensitive (putting mildly) doctors. how dare they treat us that way. if i treated my customers (who pay my salary) that way, i would be written up and fired. what makes doctors think they can talk to us that way. i dont know what they take in school but a course in compassion might be of benefit!!!! just sayin! nono

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 9/21/2010 8:58 PM (GMT -6)   
I  am incredulous that she did not test your hormones, she is inept if she didn't.
Lyme and abx and peri-menopause can cause palpitations,  I found I had NO estrogen not testosterone.  That however wasn't causing the palps, to the best of my knowledge I have MVP and once given a beta blocker I was SOOOOOOOO relieved, the palps bothered me tremendously.  Please see someone else, good luck God Bless sometimes xanax will help until u find out what's going on.
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