Does this sound like Lyme's?

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springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2040
   Posted 3/17/2009 3:49 PM (GMT -6)   
I have been suffering for three years with severe anxiety, joint/muscle pains, headaches, etc. etc. etc. 
 
Finally able to obtain labs from 2006 from dr. I went to once who said I was fine and be thankful I don't have cancer.  (Needless to say, never went back to that dr.) 

However, endo, although finding mild hashimoto's, because of symptoms wants to now test for lyme's.  So I went back and got copies of old labs which show the following:
 
WB IGg
P66 abnormal
P41 abnormal
P39 abnormal
Interpret. negative.  c-reactive protein was high as was D-dimer and platelets
 
From my short research, most sites say P39 is specific to lymes.
Can anyone tell me if P39 is one of the most likely bands to confirm lymes' and if not, are their other diseases which this band would be abnormal.
Thank you so much.

dcordes
Regular Member


Date Joined Aug 2005
Total Posts : 389
   Posted 3/18/2009 8:40 PM (GMT -6)   

yes it is specific to lyme - sounds like lyme to me

Bands specific for Borrelia burgdorferi:
14-kDa ?
21-kDa
22-kDa OspC
25-kDa OspC
28-kDa OspD
31-kDa OspA
34-kDa OspB
35-kDa
37-kDa
39-kDa
47-kDa
50-kDa
83-kDa
93-kDa
94-kDa


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/18/2009 8:50 PM (GMT -6)   
dcordes, Please go to a lyme literate doctor and do not waste your time with anyone else. The sooner you get treatment for your symptoms the sooner you will feel better. Ticker on this board can probably give you a name of one in your area. It seems like you may have lyme and a co-infection or 2. I also have hashimotos. I found out when I found out about my co-infection. Within a few weeks of treatment I was feeling better. It has been a long road but as the weeks pass the symptoms leave. Also it is better to take natural armour thyroid rather than synthestics. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2040
   Posted 3/19/2009 6:00 AM (GMT -6)   
Thank you both so much.  Everyone says "it can't be lyme's you would be sicker."  They don't realize I have struggled everyday for the past 3 years to be myself again.  Yes I have good days but just when I start to feel better, I backslide.  Right now I have shooting pains throughout my body which I have never had before.  I am so worried it is getting worse. But when you are told over and over again by doctors that it is menopause, anxiety, hashi's and now fibro, you start to think you are crazy and imaging things.
 
Can these bands be positive for other reasons?

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/19/2009 9:51 AM (GMT -6)   
P.S. You may not realize this but lymes can cause Hashimotos. It is when the body attacks it's own thyroid! That is how it began for me then it led on to many chemical sensitivities and allergies. I saw over 32 doctors on 10 years! Everyone said I was fine. Look at my meds in the past 2 years> Do you really want to see another doctor who knows nothing about lyme?
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2040
   Posted 3/19/2009 2:09 PM (GMT -6)   
Thank you so much. Sent these old labs to new endo and she believes it is lymes all this time and is sending me immediately for retest. I said the interpretation was negative sinc eonly three bands but she agreed that they are lyme specific ones and her interpretation is lymes. Thank you so much. I will let you know.

P.S. How do you go about getting tested through Igenex rather than your usual lab? How do you get blood to send to them?

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/19/2009 7:33 PM (GMT -6)   
I hope you are aware that tests ate not always conclusive and that is wht you need to go to a Lyme literate doctor who will treat your symptoms rather than tests. Lyme leaves the bloodstream and hides in the tissues and came go undetected by blood tests. That is why many people are tricked into thinking they are OK. If you have the symptoms a LLMD will recognize them and treat you. An endo is not the only place to be right now!
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!

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