Hi momto4kids, welcome to the board!
I am sorry you have been sick for so long. Below is a Lyme disease symptom list. You can have any combination of symptoms.
When Lyme disease is a possibility, it is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab. It is my understanding the ELISA or titer is the least reliable test and the one most doctors run first. Is this the test you had done?
Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.
If you need a doctor recommendation, you can email me at email@example.com
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.
I hope you can get answers soon.
Hi momtokids and welcome to the forum. I am extremely sorry to hear of all of your debilitating symptoms and can relate with you in many ways. I am a 24 year old male suffering from many similar symptoms that you are having and I know how painful it is both physically and psychologically. My neurologist has diagnosed me with many things over the past five years such as migrains, myosfacial pain syndrome, chronic fatigue syndrome, fibromyaglia and the list goes on. Definately take both scorpio1960 and ticker's advice as they have been a great deal of help to me and extremely kind and honest individuals. I am in the process of seeing an LLMD and am looking forward to the appointment and getting a second oppinion from a credible source. My questions for you are do you live in an area or travel to an area known to have ticks and a high rate of lymes disease? And do you ever remember being bitten by a tick during your lifetime? Take care and know that you are not alone!
Hi momto4kids. Many doctors believe Lyme disease is rare in certain areas. Lyme is now the fastest growing infectious disease in the US, and it is in every state.
I am sorry your symptoms are so severe. I highly recommend getting evaluated for Lyme and the co-infections by a Lyme reputable lab. Night sweats, heart palpitations, and being cold like you describe are hallmark symptoms of Babesiosis.
Many people are bitten by ticks without knowing it. They are tiny, they inject a numbing agent so you cannot feel them on you, and they often go in hard-to-see places.
You can email me for doctor recommendations closest to you.