Hi springsjean, welcome to the board!
I am sorry you have been sick for so long. Below is a Lyme disease symptom list. You can have any combination of symptoms.
When Lyme disease is a possibility, it is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab. It is my understanding the ELISA or titer is the least reliable test and the one most doctors run first. Is this the test you had done?
Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you been tested for these?
If you need a doctor recommendation, you can email me at firstname.lastname@example.org Doctor names are not posted on the board.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.
Hang in there okay? Good help is available.
Will do. Thank you.
But now the EIA screen came back negative. Is that pretty reliable or no?
Hi becky723. I am sorry you do not like your doctor. What dose of Doxy did he put you on?
Feel free to email me at email@example.com for recommendations.