when I lay down to sleep my body will suddenly twitch violently! Does that happen to anyone?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 3/22/2009 7:47 PM (GMT -6)   
It is so sudden it is accompanied by the sound in my brain in my ears swooshing. But I will suddenly twitch through my whole body. One big starteling twitch. I believe I read this can be a Lyme symptom? confused

teenLymer
Regular Member


Date Joined Dec 2006
Total Posts : 186
   Posted 3/22/2009 8:20 PM (GMT -6)   
I'm not sure what happens to me is the same as you.  Right before I drift off to sleep my body will sometimes jerk/twitch all of a sudden.  My whole body will jerk.  And no warning.  It just happens at random.  But my symptom might be related to the other sensation I get sometimes:  like I'm falling from a height, and jerk awake.

ria123
Regular Member


Date Joined Aug 2008
Total Posts : 336
   Posted 3/23/2009 8:59 AM (GMT -6)   
That happen to me in the beginning of my treatment. Make sure you tell your LLD that you are having that symptom. It is the Lyme he told me and he added another antibiotic it is much better now.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/23/2009 9:45 AM (GMT -6)   
Everyone experiences a "myclonic" jerk shortly after going to sleep (the feeling of falling) hence 'falling asleep'.

However the jerking and twitching you describe is also what I had for many years after being bit in early 90's. I had that even before I experienced any of the debilitating symptoms that were to follow as time went on.

Another thing that is similar is that startle reflex which caused me to jump at the slightest noise.

In addition to ringing, clicking in my ears I also had the swooshing in my head that was an obvious distraction when trying to go asleep.

With treatment this goes away. I have been in treatment for 2 years and my husband says it is gone. Hope you get better soon.
Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 3/23/2009 12:26 PM (GMT -6)   
I get this when my nervous system is agitated.

phsinvent
Veteran Member


Date Joined Aug 2006
Total Posts : 1136
   Posted 3/23/2009 3:16 PM (GMT -6)   
I used to have exactly as minerals described. It went away with treatment (2-3 years).

LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 3/23/2009 4:05 PM (GMT -6)   
I had this also. Sometimes during the night I would jerk so hard it woke me up. Quite irritating to say the least! I also had a "restless leg" type condition that made it really uncomfortable sleeping.

Before my treatment started, my magnesium levels were real low and that probably made it worse.

It has gotten much better with treatment!!
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


phsinvent
Veteran Member


Date Joined Aug 2006
Total Posts : 1136
   Posted 3/23/2009 4:08 PM (GMT -6)   
Oh my gosh. Don't get me going about the restless leg syndrome. That used to drive me up the wall. Used to take hours to fall asleep.

judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 3/23/2009 5:43 PM (GMT -6)   
I had a hyper active thyroid and felt I thing what you guys are describing, my left side chest , back and legs would vibrate, at first I thought its a high heart rate, but maybe it goes up a bit up to 75-80 , thats not bad at all but it drives me crazy especially when it happens at night and wakes me up, i found that 3 advils makes me not feel it, if someone can explain to me why I would greatly appreciate it, I also found that exercise helps, I am feeling much better and can walk 25 minuites a night, I do remmeber the times I couldnt walk to my mailbox.
I now t hink its fluctuating blood pressure and pulse but cant figure out  what it is, should I see a neuro, maybe it will pass?My thyroid is fine by now

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 655
   Posted 3/24/2009 12:10 AM (GMT -6)   
Well I guess it means the lyme has moved into our nervous system.

saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 666
   Posted 3/24/2009 7:07 AM (GMT -6)   
I remember sitiing in a hospital bed watching my legs dance by themselves.

It was over two years later that I finally found LLMD's.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 3/24/2009 9:34 AM (GMT -6)   
P.S. Restless leg was a huge problem for me as well, I was absolutely unable to keep my legs still when trying to go to sleep and during sleep but it too has gone away with treatment.
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


Tallison
Regular Member


Date Joined Jun 2007
Total Posts : 416
   Posted 3/25/2009 11:05 PM (GMT -6)   
Hi,
 
Ditto almost everyone's comments, I have the same experiences.  Judy, what decreased my 'fast heart rate wake up' (for lack of better wording) was getting my sugar levels in check.  My endo said there is a good test called IGBFP-1.  I've been told it is more accurate of a test than a glucose tolerance test (and much easier, just one blood test). 

I too, had the twitching early on.  However, it would come and go (now it is there every night, AND in the morning when I wake up and relax in bed).  Does anyone struggle with this in the morning as well?
 
I think you are right minerals, about the nervous system being agitated.  It seems that my night twitching is worse when I have some allergic sensitivity or exposure.
 
I keep wondering why these symtoms (hyper-reflexia or startle reflex), the myoclonic jerking, and the parch waking that I have, all happen at nighttime.
 
Judy, I'm curious as to when you would take the advil?
 
 
 
 

judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 3/26/2009 5:59 PM (GMT -6)   
It is very intresting  what you are saying Tallison, as the vibrations get worse on Saturday the only day I am not 100percent carful on my low carb diet, I am diabetic, but it legs and chest will vibrate on any day and I take Advil and the buzzing and vibrations stop, I sometimes think it may be a nerve issue, I never heard of this test IGBFP-1. I got diabetes and high blood pressure with Lyme Disease, blood pressure is fine besides 2 days of the month day before and day of my period my pressure shoots up 175/100

Tallison
Regular Member


Date Joined Jun 2007
Total Posts : 416
   Posted 3/26/2009 9:57 PM (GMT -6)   
Hi Judy,
Thats interesting, re: Saturdays and you having diabetes.  Do you have a glucometer?  I suppose that is a way you could figure out if the vibrations correlate with some hypoglycemia.  I think I'm going to get one.  Though I'm not diagnosed with diabetes, insulin resistance is 'pre-diabetes'. 
 
I think that I have been having bad experiences of hypoglycemia lately, and just thought it was lack of sleep. 
 
Does the vibration happen during the day?
Do you treat the diabetes with glucophage?
-T

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3744
   Posted 3/27/2009 6:45 AM (GMT -6)   
Hi veromia and everyone else,
 
Luckily I never experienced this when I was sick with lyme but I have read much about it.  Many experience this when their body is lacking magnesium.   You may want to take a magnesium supplement and see if it helps.
 
Below is an interesting article about this:
 
 
Hope this helps,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 3/27/2009 10:37 AM (GMT -6)   

Hi Tallison,

When shaking from hypoglycemia, my whole body shakes, what I am currently feeling is a tremor on my left chest, back and legs, I just stopped Metformin because I lost weight and was going hypo on the metformin, I am on a very low carb diet, eat only one slice of WW bread for breakfast, the rest is protein and vegies. Are you hypoglycemic or hyperglycemic

Deejvu,

Thanks for the response, article you sent a link was exactly what I needed, I didnt take magneisium because I was scared and wasnt sure how much to take, How is Kathy doing?


woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 96
   Posted 3/28/2009 3:25 PM (GMT -6)   
Oh yeah. Happened a lot for a while then it stopped. Changed my abx and it came back.
9/28/08 - 11/8/08 100mg Doxy b.i.d. 42 days
11/5/08 - 11/20/08 Salt/C, grapefruit seed extract, COQ10,
anti-inflammatory herbs with cat's claw & omega 3.
11/20/08 -> reduced Salt/C, omega 3, Acidolphilus and Saccharomyces(friendly yeast),
low carb, no wheat, no alcohol, no yeast, no caffeine, no sugar.
Ceftin 500mg, 2x per day; Plaquenil 200mg, 2x per day; Mepron 750mg, 2x per day;
Zithromax 500mg, 1x per day.

3/26/09 - Doxy. 200mg 4x, Plaquennil 200mg 2X, Clarithromycin 500mg X2
omega 3, Acidolphilus and Saccharomyces(friendly yeast), anti-inflammatory herbs with cat's claw & omega 3.
low carb, no wheat, no alcohol, no yeast, no caffeine, no sugar.


Tallison
Regular Member


Date Joined Jun 2007
Total Posts : 416
   Posted 3/28/2009 4:24 PM (GMT -6)   

Hi Judy,

I am hypoglycemic.  I wish I understood this sugar thing more.  I need to research it, but so tired!  Not sure if the glucophage is doing it or the yeast medicine is.  I think I need a glucometer...

I always like reading that antibiotics took away this symptom for people.  It didn't do that for me, but not sure if I was on the right ones and the right amount, for long enough.

28 days of Rocephin IV and about 6 months of orals (a bit spread out).  Mostly doxy, mino and cipro.

Looks like my magnesium (titer and intracellular) levels are ok.

So validating to read of others with these symptoms.


judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 3/29/2009 12:59 PM (GMT -6)   
I am confused  Tallison, if you are hypo why are you taking Glucophage? I took Glucophage for Hyperglycmia

Tallison
Regular Member


Date Joined Jun 2007
Total Posts : 416
   Posted 6/16/2009 7:53 AM (GMT -6)   

Finally found an endocrinologist willing to work with me and eager to help figure things out!

I learned by watching Mystery Diagnosis, that there were practitioners such as 'Metabolic Endocrinologists' and 'Metabolic Geneticists'.  Made an appt with both of them.  They have already read through my paperwork and know one another, have spoken and seem like they are looking forward to helping figure out the sugar issue. 

I hope that I can figure out why hypoglycemia should be treated by glucophage, and if getting my sugar in check will reduce the twitching. 

I had my first experience of full body twitching in the past few nights.  Usually it's an arm or a leg or a foot or something.  This time, the bottom half of my body goes one way, the other goes another.  Crazy!

Anyone else have any updates on the twitching?

I am also doing NAET (allergy elimination treatment).  I know that I twitch more when I use the plastic (oxygen tubing).  Also if I keep my cellphone near me.  So odd.  So I think it is heightened sensitivity.  Well, of course infection plus heightened sensitivity.

Hoping people are doing better with this .... please update

Thanks! Tracy


judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 6/16/2009 8:52 AM (GMT -6)   
Hi Tallison,
I am doing much better and was encouraged by others on the board to supplement with magnesium , my endo recommeded B6, my twitching is MUCH BETTER! Hope you get better too
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, July 22, 2014 2:18 AM (GMT -6)
There are a total of 2,176,626 posts in 242,020 threads.
View Active Threads


Who's Online
This forum has 153372 registered members. Please welcome our newest member, naturestealeaf.
383 Guest(s), 4 Registered Member(s) are currently online.  Details
Chask, scifigal2k, Gunner34, firelord


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer