California Lymies

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LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 3/23/2009 2:57 PM (GMT -6)   
Hello all from Ca,  smilewinkgrin
I'm in Livermore (east bay area) and haven't been able to find a support group.
 
Are any of you in one?  Where at? 
 
Or, are you interested in starting a new group?
I would love to!
I know some of you are in the Sacto area and even some in
central Ca.
 
Let us all know your thoughts and interests-
Thanks, Lisa
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


pjbat
Regular Member


Date Joined Dec 2007
Total Posts : 119
   Posted 3/23/2009 9:41 PM (GMT -6)   

Hi - I'm in the Sacramento area. I found this site on CALDA that lists support groups around California: http://www.lymedisease.org/california/california_support_groups.html  I've thought about it, but haven't gone yet. It probably would be a good idea, I know I've met some interesting people just in the waiting room of the doctor's office - in fact one person I met there was mentioning he goes to the support group - I think in the East Bay.

 


 


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 3/23/2009 10:06 PM (GMT -6)   
I found a support group on that website. It's supposed to be in San Ramon. But it doesn't sound
like anyone ever showed up to monthly meeting, and they stopped. Bummer!!

If you hear where one is let me know!
I may just have to start a new one?
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


pjbat
Regular Member


Date Joined Dec 2007
Total Posts : 119
   Posted 3/24/2009 9:39 PM (GMT -6)   
I wonder if you could contact CALDA and ask them more about it, or ask them about starting one in the bay area. I'm guessing there are plenty of people out there that would be interested. I would probably be interested in something local, but even the one here (in Sacramento area) is quite a drive - 45 minutes to an hour.
 


kelly1234
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 3/24/2009 10:01 PM (GMT -6)   
Hi,

I live in Alamo, Ca and haven't looked into finding a support group. I would love to connect with you.

teenLymer
Regular Member


Date Joined Dec 2006
Total Posts : 186
   Posted 3/25/2009 4:56 AM (GMT -6)   
"bablymers mom" and I are in central valley farming area of CA.  Near Fresno, CA.
 
By the way, anyone here going to San Ramon April 18 CALDA Lyme conference?  Will I see any of you there?

pjbat
Regular Member


Date Joined Dec 2007
Total Posts : 119
   Posted 3/25/2009 9:45 PM (GMT -6)   
I was looking again on the CALDA site, at the blog, 'touched by lyme' and it mentions the woman who writes it is co-leader of a support group. It might be worth it to try and contact her.

http://www.lymedisease.org/news/touchedbylyme/index.1.html
 


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 3/27/2009 9:33 PM (GMT -6)   
Hi All,
 
Kelly, I'd love to hook up.  k-lgem@comcast.net
 
Hi Patty, yes, I'm definetly going to the April 18th conference.  Dr. Metzger, my LLMD, will be speaking.  I'm excited to go. I want to learn how these conference thingy's work and maybe help organize them in the future.
 
Pj, thanks for the CALDA info! I'm looking it up.
 
Lisa
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 4/14/2009 1:49 PM (GMT -6)   
Hey everyone,
  The San Ramon Calda support group can be restarted.
 
Who's interested?
 
Please email me at  k-lgem@comcast.net
 
Reminder:  April 18th is the CALDA Lyme conference!! register on their website.
 
Lisa
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
1/29/09  Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.   

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