Need a LLMD in PA

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lmcclure4477
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/27/2009 8:16 PM (GMT 0)   
I need to find a LLMD in Pennsylvania and I am wondering if anyone can please help me.  I really think I may have lyme and I want to try to schedule an appoitment ASAP!!  I live about 1 hour north of philadelphia in allentown, pa.  If anyone has a doctor they love or access to a list of doctors, please let me know.  Thanks!!

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 3/27/2009 8:15 PM (GMT -6)   
Sorry to hear you may have lyme. It is important to get to a good Lyme Dr. right away. Dr. names are not posted on the fourm, but you can e mail me at shmeeter2003@yahoo.com. I also live in Pa north of Philly. and could give you a few names that I know. I hope you can get the help that you need.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 3/27/2009 8:37 PM (GMT -6)   

Hi lmcclure4477, welcome to the board!

How long have you been sick?  Below is a Lyme disease symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

When Lyme disease is a possibility, it is very important to see a knowledgeable doctor.  Many doctors do not understand Lyme and treat with outdated protocols.  No test is completely reliable, and results can vary by lab.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  

bIf you need a doctor recommendation, you can email me at ko_@bellsouth.net  

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.

I hope you can get answers soon.

Post Edited (ticker) : 3/27/2009 7:42:46 PM (GMT-6)


alfers
Veteran Member


Date Joined May 2005
Total Posts : 2671
   Posted 3/28/2009 10:19 AM (GMT -6)   
Hi lmcclure4477,
There are several good doctors in New Jersey pretty close to you. The one I used to go to (I don't go to one at all anymore) is in Howell, NJ, which is probably about half an hour from you. Email me if you'd like his name and number, or Ticker can give them to you if you've already emailed her. To get my email address, click on my member name anywhere you see it as a link, and you'll get to my member profile with my email.
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 8/3/2010 3:31 PM (GMT -6)   
lmcclure4477
If you find an LLMD in Pa, Philadelphia area, please let me know. I am looking for one, also. I was already given one contact, but I did some background check on that doctor, and he has complains on a different forum, similar to this forum, so I won't use him. PLEASE share your connection with me if you can find one, and I will do the same.

Tk U!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/3/2010 3:33 PM (GMT -6)   
lmcclure4477

I leave about an hour away from you. So please let me know if you find anything, ok? Lets help each other out!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/3/2010 3:39 PM (GMT -6)   
not again:

I emailed you, too. I also need a LLMD and I leave about one hour (well, that really depends of traffic) away from Philadelphia. Any help would be appreciated. I am BF at the time and I am scared to death that I may pass it to the baby.
I was + last year, and pregnant with her, and I took Ax for 3 weeks. I was fine for a year, and now I am much worse than before. I have been in a car accident and my doc gave me steroids, and ever since then, I feel much worse than I did last year. I had 2 tests, this year, one was + and one was --. PLEASE HELP!
Thanks!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/7/2010 6:33 PM (GMT -6)   
I have several names of LLMDs in Pa.  Let me know if you are still looking.  If you PM me and it doesn't work, let me know and I will try to PM you. 

Good luck!

madrebean2
New Member


Date Joined Aug 2010
Total Posts : 1
   Posted 8/18/2010 5:24 PM (GMT -6)   
i could use some names of llmd close to bethlehem, pa. i can not travel far so any help would be great. my son and myself are both sick. he is expieriencing nuerological and muscle problems and i have been diagnosed with psorriatic arthritis even though i had a 3 inch bullseye for 2 months and 1 positive band on the western blot. my son has twice tested negative on the lyme titer and he had tick embeded about 6 to 7 months ago and last year. his doctor put him on mental pills thinking he is nuts. but i see the changes in him and he is not crazy

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/18/2010 10:18 PM (GMT -6)   
madrebean2:
Sorry you have to go through this. How old is your son? I can't email you because your email is unavailable. You must change your profile and add your email to it. Than someone here will help you. Hang in there! You will find that we are caring and compassionate and many of us went through misdiagnoses before we found a good doctor. We do not post the name of doctors here, so please make sure you update your profile and someone will contact you.

Not2bforgot10
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/2/2011 12:34 AM (GMT -6)   
Simela- Can you please respond here and email me as well doctors in Philadelphia who specialize in LYME? Not2bforgot10@yahoo.com

Also, feel free to send me your #. I would like to talk to someone about this! Thanks!

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2323
   Posted 1/2/2011 6:25 AM (GMT -6)   
I sent you an e-mail, not2bforgot.

peoplepleaser
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/13/2011 8:40 AM (GMT -6)   
Simela, Please do not take steroids!! I believe they can kill a lyme patient in time! Google "Danger of steroids and Lyme Disease" and it should bring up an article at MDJunction. Lyme patients should say they are allergic to the stuff.

JeannieM
Regular Member


Date Joined Feb 2009
Total Posts : 90
   Posted 1/27/2011 11:56 PM (GMT -6)   
Hope no one minds I brought this back. I am also in eastern Pa and looking for a LLMD. Can someone please email me the list? Thank you!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/28/2011 1:49 AM (GMT -6)   
Hi Jeannie,

Welcome to the forum! We're so glad that you found us:) Here are some places to help you find a Lyme Literate Medical Doctor. I'm sure others will be around soon to help too.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:
phassan@optonline.net

If you'd like more doctor suggestions, you can email stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS(International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

For great info and links, read the topic at the top of the forum titled,"New To Lyme?......Start Here!" It will help to get you started learning about Lyme Disease.
Co-Moderator- Lyme Disease Forum

Lyme Disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds:Sulfasalazine(RA), Medrol pack(Steroids), Cymbalta(Fibro),
Oxycodone(BT Pain), Tramadol

Supplements:Folic Acid, Probiotics, Vitamin D, Multi Vitamin

Donjoe
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 2/2/2011 8:05 AM (GMT -6)   
If you all go to lymenet.org, sign in then go to flash discussions you can ask where to find a doc in PA. You can also e-mail me and I will help you. I am from PA.
Fibromyalgia, rheumatoid arthritis

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2323
   Posted 5/3/2012 9:34 AM (GMT -6)   
Hi thelymie,

Welcome to the forum. I am very sorry to hear that you have suffered so long.

You will need to enable your email option so that members can shoot you an email. We don't mention the names of doctors or practitioners here on the forum.

Or you can send me an email, I have a doctor that is about two hours drive for you in NJ. He is really very accomplished and moderately priced. I travel two hours to see him. Just click the envelope icon under my name.
Co-Moderator Lyme Disease Forum

Linde57
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/11/2014 10:22 AM (GMT -6)   
Does anyone know of a good lld in the Harrisburg pa area? I've had Lyme for 20 years now with many neurological issues and was never treated. Please help..
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