Conference in KC, Fry Labs

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lfinva
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Date Joined Feb 2008
Total Posts : 160
   Posted 3/30/2009 11:18 AM (GMT -6)   
Any word yet on Fry's announcement?

hiker53
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Date Joined Aug 2008
Total Posts : 81
   Posted 3/30/2009 7:40 PM (GMT -6)   
 I was wondering the same thing.  Paitence is not one of my virtues. smhair
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rk8950
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Date Joined Feb 2008
Total Posts : 15
   Posted 4/1/2009 9:05 PM (GMT -6)   
anyone hear anything? Snake1979 have you heard anything?

snake1979
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Date Joined Apr 2008
Total Posts : 282
   Posted 4/2/2009 9:06 AM (GMT -6)   
I would have posted about a month ago, but just wanted to wait for the conference.  Simply stated...it is a PROTOZOAN.  This organism is not a bacteria.  It has DNA properties of Toxoplasmosis Gondii and Malaria.  It is the "malaria" of North America.  This organism is not seen in the Tropics because it cannot survive at that tempreture.  It is a single celled...Apicomplexa.  It has a tail and is so small that regular blood sears will not find it.  It feeds off arginine and the reproductive cycle is currently unkown.  A DNA match is pending...because this could possibly have already been recognized in the Vetenarian world.  It is a destructive pathogen that adheres to RBC's and it believed to be behind the majority of most of our symptoms.  Finally, it is thought to live around and in water. 
 
This is basically all the info I have.  There is new data coming out everyday.

seeingstars
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Date Joined Apr 2008
Total Posts : 266
   Posted 4/2/2009 9:12 AM (GMT -6)   
Do you know if this stuff stays in your blood stream or is it gram negative?

snake1979
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Date Joined Apr 2008
Total Posts : 282
   Posted 4/2/2009 10:02 AM (GMT -6)   
They are using a similar stain to gram negative and YES!! it is ever present in the blood!

seeingstars
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Date Joined Apr 2008
Total Posts : 266
   Posted 4/2/2009 10:26 AM (GMT -6)   
So are you saying it is gram negative? It can be found outside of the blood? Do you think it actually could show up on the Western Blot as 41? (having a tail?)

rk8950
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Date Joined Feb 2008
Total Posts : 15
   Posted 4/2/2009 11:49 AM (GMT -6)   
Hey Snake what is your email address if you dont mind?

runningiri
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Date Joined Jan 2008
Total Posts : 373
   Posted 4/2/2009 12:17 PM (GMT -6)   
So what is the treatment for the protozoa. If it is not a bacteria then why is Dr. Fry still recommending biaxin, which is an antibiotic? Just curious.

Runningirl

hiker53
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Date Joined Aug 2008
Total Posts : 81
   Posted 4/2/2009 1:25 PM (GMT -6)   

  Is there anyone here who only has the Fry parasite and no other co-infections.  If so, what are the symptoms.  I am trying to figure out what is common among those with a positive Fry test, but because other co-infections come into play it is hard to figure out.

My only remaining symptoms are muscle jerks (myoclonus), some fatigue, some imbalance, and muscle twitches and muscle cramps occasionally.

 

Hiker53

 


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snake1979
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Date Joined Apr 2008
Total Posts : 282
   Posted 4/2/2009 3:22 PM (GMT -6)   
Hiker- I have the same symptoms.

Runin - First of all good to hear from you. Biaxin inhibits the protein synthesis of Protozoans.

Seeingstars - This is the organism that is showing up as #41. Thousands of people have #41 positive and nothing else...including me.

RK8950 - email...snake19791979@yahoo.com

runningiri
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Date Joined Jan 2008
Total Posts : 373
   Posted 4/2/2009 4:24 PM (GMT -6)   
Snake,

Good to hear from you as well. From my understanding, the biaxin and plaquenil combo is not curative but instead only serving to control symptoms. It appears, from what I am learning, that many are still testing positive for this bug after even after prolonged usage of these drugs. So, what happens when the drugs are stopped?

Runningirl

mich2604
Regular Member


Date Joined Jul 2006
Total Posts : 319
   Posted 4/2/2009 4:52 PM (GMT -6)   
Does anyone know if this bug could possilby cause bladder symptoms?

I find it interesting that I was swimming in a lake prior to getting sick.


thanks snake for this info :-)

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 4/2/2009 4:56 PM (GMT -6)   
I am confused by this. I was tested back in 2004 by Bowen Lab in Florida and was sent a photo of my blood with the organism, tail and all. How is this NEW news?? Am I missing something?   D

dorit
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Date Joined Nov 2008
Total Posts : 375
   Posted 4/2/2009 5:21 PM (GMT -6)   
I am also very curious about the "new thing" ...

Dowa - may I ask you what interpretation the Lab gave you? did they relate it to an unknown organism? Or to the # 41 so many have positive in their tests? I try to sort information. Thank you in advance and kind greetings, dorit

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 4/2/2009 5:31 PM (GMT -6)   
No, not at all. They take a picture of your blood and it showed the organism. They told me I was positive for Lyme Disease. That is why I was questioning this "new" method, doe not seem new unless I am missing something. They told me then it was an organism. I have Band 41 positive on Igenex (is that what you were asking?) but they considered that negative.  D

dorit
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Date Joined Nov 2008
Total Posts : 375
   Posted 4/2/2009 7:09 PM (GMT -6)   
Thanks for answering, Dowa;

basically I was interested if the lab said the organism on the picture of your blood smear was lyme or another / this new organism. It is all a bit confusing - here`s been kind of small hysteria since this Fry discovery reached us... many people want to send their blood to Fry - but it is still unclear if it`s all about a discovery of a new organism or about a new method of labwork (like a smear which is more accurate etc) which reveals a higher patogene load or maybe both. Thanks again! dorit;

Dowa
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Date Joined Sep 2008
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   Posted 4/2/2009 7:42 PM (GMT -6)   
With the picture of the organism, the diagnosis was Lyme Disease.. D

hiker53
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Date Joined Aug 2008
Total Posts : 81
   Posted 4/3/2009 8:47 AM (GMT -6)   

  Snake,

You said something about not being able to the see the protozoa on a blood smear and that it had a tail.  Did you mean the tail could not be seen on the blood smear or the whole parasite? 

If it is the whole parasite that could not be seen, then what were the dots on the red blood smears on the slides?

Although you and have I similar symptoms, I definitely have/had lyme along with ehrlichiosis, some bart, strep, staph and mycoplasma--not to mention EBV and HPPV6.  So it is really hard to tell what symptoms come from what infection.  I was tested at Bowen, Igenex, and by Dr. R of Kansas City.

Hiker53

 

 

 



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Post Edited (hiker53) : 4/3/2009 10:17:51 AM (GMT-6)


seeingstars
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Date Joined Apr 2008
Total Posts : 266
   Posted 4/3/2009 12:50 PM (GMT -6)   
thanks for the info. one more ? can't bart show up as 41 too?

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 4/5/2009 12:16 PM (GMT -6)   
I have another question. By chance is there a picture of this bug available?

Wiregrassman
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Date Joined Jun 2007
Total Posts : 6
   Posted 4/6/2009 5:23 PM (GMT -6)   
My llmd went to the conference in KC where Fry was speaking, and I am already diagnosed with lyme/babesiosis, and have been on the azithromycin/Mepron combo for many months.

My llmd didn't say specifically, but he wanted to send my blood to the Fry lab for the new testing. He seemed to just want to know if the babesia was still present and not looking for some new organism though.

He didn't mention anything about a new organism at all I remember, but the rest is "brain fog"!!

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 4/6/2009 7:49 PM (GMT -6)   
Wiregrassman- I have a question if you don't mind. Will your doc make you stop abx before taking the fry test? If so, how long?

Wiregrassman
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 4/6/2009 8:24 PM (GMT -6)   
Hi seeingstars,

I don't mind at all, but I'm not positive, because I think he said the test cost around $150(again..brain fog so I could be wrong), and I'm on Social Security disability due to the lyme/babesia(actually for depression/social phobia, but it is caused by the lyme/babesia + any other as yet undiscovered co-infections), and my llmd wanted me to send payment with it by credit card, as he wasn't sure if Medicare would cover it or not.

I couldn't afford the test the day I was in the office, so he told me we could do it next time. But if he was willing to do it that day, I was taking abx at the time which he knew(Ceftin, Zithromax, Diflucan for the lyme cyst form since I can't tolerate Flagyl, and Bicillin LA shots with the Mepron and Artemesia), and he didn't mention stopping abx for the next visit for the test either, so I'm guessing I didn't/wouldn't have to stop abx for the Fry test, but I can't say for sure. My doc may just not have thought about it since I didn't actually get the test done that day.

And, plus he was pretty excited at all he had learned at the conference about Heparin troches and the Bolouke enzyme product both dissolving the biofilms around the lyme, etc. He did Rx me the Heparin troches and is ordering me some Bolouke at his cost since I'm about broke from this disease/s...retail is about $95 and he said it would be about $50 for me...just to break even for him on his cost.

Sorry I can't be of more help. He is currently trying to arrange a PICC line for I.V. therapy this week, so if I talk to him soon I'll TRY wink and REMEMBER confused to ask him about the abx and the Fry test.

EDIT: make sure to see the other post on the next page with Fry's website and phone#

Post Edited (Wiregrassman) : 4/6/2009 8:40:24 PM (GMT-6)


Wiregrassman
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 4/6/2009 8:34 PM (GMT -6)   
seeingstars,

I did find this for the Fry test...website/phone if you want to ask them directly:

www.frylabs.com

Fry Laboratories, L.L.C.
15720 N. Greenway Hayden Loop
Suite #3
Scottsdale, AZ 85260
Toll Free: 1.866.927.8075
Phone: 480.292.8560
Fax: 480.656.4932
Office Hours: Monday-Friday 8AM-5PM

Hope it helps!!
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