Mycobutin opinions

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seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 4/2/2009 1:08 PM (GMT -6)   
I am wondering what peoples opinions are on using mycobutin. What did you take with it and how long did you take it for?

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 4/3/2009 10:42 AM (GMT -6)   

I have not taken it but can share this bit of information with you.  It is Rifabutin and similar to Rifampin.  In Schaller's book, a patient was give 500 mg Zithromax and 300 mg Rifabutin for 8 weeks and cured of bartonella.  It is the ONLY thing he writes about that the person was apparently cured although he did continue to need medication for mental problems.

Unfortunately I don't think I can take it as the Rifampin causes me to be dizzy.


runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 4/3/2009 11:12 AM (GMT -6)   
Careful with Mycobutin - in some people it can cause the WBC to drop very low, which can be very dangerous as you then run the risk of secondary infection. This happened to me 6 times while taking it.

Runningirl

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 4/6/2009 8:39 PM (GMT -6)   
I don't know if too many people have tried mycobutin as few responded. But I have been having issues with yeast and was on mino, biaxin, and hydroxy. I don't know if the hydroxy lowered my immune systems ability to deal with it or if it was just a build up of long term abx. So I stopped all meds 3 weeks ago and just took hi dose fluconazole. That really helped some of my brain and spinal cord issues BUT then I had some of my non yeast symptoms flare. I got feverish in the afternoons and the back of my neck got hot and it felt like little sticks or needles were being pushed into my spine bone, and skull and my back ribs and the muscles in the back of my neck. I just told my doctor that I didn't want to take mino for now because I tried to take just a few days worth about a 2 weeks ago and I got the yeast tongue bad (I haven't had this in all the time I've been treating). I also read that mino can create strong yeast issues. Plus summer is coming and I don't want to deal with the whole sun thing. But the yeast thing is my #1 reason I don't want to do the mino now.

Anyway, I am rambling but I'm going to continue... I have had thru out my illness major CNS symptoms where I can feel the crap festering in my spinal cord and up around my brain. So I really need something to cross and deal with that. I hope mycobutin will as I will start that with biaxin tomorrow. If it doesn't I'll have to deal with that when it festers again. I have had a reprieve from this for a couple of weeks. I don't believe this stick/needles poking into my bones is lyme as the flare doesn't follow the lyme cycle. It is more weekly. I took biaxin yesterday morning and last night and then about 4 am this morning my back ribs and spine bone were burning. I'd like to think this is die off as it was not the poking feeling just burning. I would just try the biaxin but worry about biaxin resistant bacteria. This sucks, I try working on one issue at a time (yeast) and the other illness just swoops in. I am hoping that biaxin and mycobutin will calm these symptoms and I am supposed to stay on fluconazole but have read it that the potency of it will be way lower do to the mycobutin. So my doc told me to up the flucon a little. I think I am really taking a lot a stuff that will be hard on my liver but at this point I can't work on one thing at a time because the other flares.

Finally I will ask if others have had this bone pain where it feels like tiny sticks or needles are being poked into you?

Thank you guys for the shared info. I am wondering how often you (runningirl) had to have your blood checked? That is very scary to me. As I believe yeast is actually a "secondary infection" for me that has really done a number on me.
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