left side of lower lip has started to twitch or quiver

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hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/4/2009 6:04 PM (GMT -6)   
I really hate this disease. I though with treatment I'd be better.

Biaxin/doxy combo is either failing or keeping this nasty thing at bay.

I hate new symptoms when I thought I caught it early -- four months in -- and I've been on this treatment for 5 or 6 months now.

Does anyone else have this symptom? I'm kinda frightened. It's slight, but it's there.

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 4/4/2009 7:31 PM (GMT -6)   
I use to get that symptom, i do not get it as much anymore. It started after i started treatment. I also get twitching in my left eye. Iam not really sure what caused it, but you are not alone.

dcordes
Regular Member


Date Joined Aug 2005
Total Posts : 389
   Posted 4/4/2009 7:37 PM (GMT -6)   
this is a scary disease. i have been aftaid many times. it is hard to believe that one disaese can really cause such a wide range of symptoms. yes i have had lip quivers and eye twitches.  the weirdest was the sensation of a snake slithering up my neck. 

 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/4/2009 8:33 PM (GMT -6)   
This is interesting. I had a twitch in my left eye too.

So we all have that in common.

Except for the snake...I'm sorry to hear that one and hopefully will be spared.

Tune in tomorrow for another episode of "as the Lyme churns"

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 4/4/2009 8:49 PM (GMT -6)   
I have not had the snake feeling either. I have had my toung go numb however. Has anyone had that?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/4/2009 9:24 PM (GMT -6)   
That is one symptom I hate too. I get the quivering and vibrating in my lips. When I smile, my cheeks and lips shake really bad too.

I hate the new symptoms. It scares me. I usually get really intense anxiety to the point that I am scared to drive. That soooo is not me either. I love driving.

Edited to add that I also get the left eye twitching. It drives me nuts. I get twitching all over my body too.

Do any of you get depressed while on treatment?
Have a blessed day!

Post Edited (CajunGrl) : 4/4/2009 8:29:06 PM (GMT-6)


Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 4/5/2009 4:33 AM (GMT -6)   
yes it is called belspalsy.
It spreads and move to the rest of your face and then will make half of your face drop. I had a lot of problems with it as well....before.
but during my heavy abx drugging.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 4/5/2009 4:36 AM (GMT -6)   
hoping...try the germans meds..it works for newly infected people
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


dcordes
Regular Member


Date Joined Aug 2005
Total Posts : 389
   Posted 4/5/2009 6:59 AM (GMT -6)   
ok cajungirl - the fear of driving really struck home.  i get tremendous moments of buzzing anxiety and will have to talk to myself when driving on the highway.  i have been taking the train lately to avoid this uncomfortable feeling.  and depresssion?  i had a nurse call me from my insurance company to discuss the "connections" prgram.  she asked about depression and offered to send me a list of anti-depressant medications and this brochure on coping with depression.  i lyme raged at this nurse saying that yes i was depressed and i was open to medication but i did not want to "cope" with the depression as that implies that the depression  stands separate from my lyme disease or worse. may be the casue of it.  i am little oversensitive to any implications that my symptoms are caused by my mental state.  but of course, i do have dark days - sad and angry that my health is where it is. and i also thought i had gotten myself to the point where i was coping with my lyme disease i.e., i was off antibioitcs for 1 year+, heavy into physical therapy and managing my remaining symptoms  - accepting that 85% of who i was was the best i would get.  unfortunately, i got a cortisone injection in my neck - thinking it would be great to get some relief.  i fell apart after this injection...my lyme symptoms came raging back and i felt like i was back on square one.  so yes, this is depressing.  and my herxing is so bad the doctor has cut me back to half the needed dose of doxy, which worries me becasue i want to get better FAST.  i do not need to cope with my depression i need to get rid of my lyme disease and the depression will go away.

 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/5/2009 8:11 AM (GMT -6)   
dcordes,

I understand how you feel. It is depressing. Sorry you relapsed after cortisone injection. My neck is also getting worse (with treatment of course) and I'm having it x-rayed. It's probably just OA -- which they are gonna say is different then Lyme. It pops something awful (worsened with treatment).

What's depressing is getting worse while being "treated". I don't understand treatment. It doesn't seem to work. I seemed to go downhill on it and now I'm better energy wise but am still forgetful and sore etc.

I don't know what works. If anything does, folks aren't posting. Or like you, they are a percent of who they once were. I'd say personally I am about 70%. I used to able to walk three miles a day. Now Plantar Fascitis dictates how far I walk. (I would rank walking as 10% deduction from my former self)

I used to be able to see and took it for granted. Now my floaters obstruct the view -- big ones, small ones, black ones, clear ones. No cure for that.
No treatment. That's never going away even with treatment.

But to be sitting there and suddenly have your feet buzz and your lip twitch. It makes me angry. And nothing can be done.

Lyme disease gets very little respect. And it's hell.

Martha's Vineyard -- I cannot afford to go to Germany. Thanks though. I might give it chance if they have a success ratio. What percent are you back to now that you're out of Envita treatment? What is your ABX regimen these days?


Forgive me for venting here! Woke up again at 3 in the morning.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 4/5/2009 10:09 AM (GMT -6)   
I totally understand. Every time I feel I have gotten this disease under control, it rears it's ugly head again. I have had all the twitches mentioned except the snake- thank goodness. Bart can also cause twitching so you might want to check that out. Mine improved a lot when I got bart treatment. Now I have muscle pain and dizziness which is probably because the borrelia was ignored for a month and then the drugs used against it were not the nuclear strength ones it usually takes to knock it back down. I am feeling very angry as well as depressed with this - just fed up.

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/5/2009 12:04 PM (GMT -6)   
Hoping - we do not have a miracle cure here in Germany. Believe me!!! Doxy is what they usually give the newly infected, up to two months now b/c there was enough in the press and the llmds somewhat longer.

I had the eye twitching too - for years. And I also developed the "traffic panic" - I did nearly all my ways by bike but developed a strong inner feeling that I was getting more and more unable to do that b/c my reactions were too slow or just not there at all; one day I saw a car stopping in front of me and I did not know what to do - I had forgotten that one should use the brakes... I was like "OMG - what should I do now!!!!!" ..... and it made "bum" .. I remembered that there are brakes while I was sitting on the lane, bike broken, cardriver mad as h... ..
I got better over time and still do. Slowly. Whenever I wanted to push I ended up two steps back (at least).

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/5/2009 1:19 PM (GMT -6)   
Decordes,

I feel your pain and know exactly what you are going through. I have rage problems too. I hate to even say that because it is not really me and I hate myself like this. I go off for the littlest thing and find myself apologizing a lot. My poor husband gets the blunt of everything. The depression is really bad for me and I'm debating weather I should try anti depressants or not. My doctor prescribed me Pristiq but I still haven't taken it yet.

about the anxiety....I had to drive 2 hours like that to see my LLMD. It was aweful. I was seeing floaters and getting really anxious. I felt like it was shooting through my body. I truly hate that feeling because I used to have really bad panic attacks and they happened during my sleep. I hate being out of control and that's exactly what this disease makes me feel like.

Anyway, I know how you feel and if you ever want to talk or vent, email me anytime. I hope you feel better soon.
Have a blessed day!


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/5/2009 4:36 PM (GMT -6)   
I'm trying to find and do the things that make me happy.

Life is fleeting and apparently if that's not enough good health is fleeting to -- due to careless docs.

I wish they'd have treated my Lyme rash with two months of doxy instead of 10 days.

I might be doing something besides driving everyone nuts with my constant complaining about the latest.

Yes, everyone's mad at me in my life too. I am a feisty one.
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