Hi lazynewt, welcome to the board!
I am sorry you have been so sick. Below is a Lyme disease symptom list. You can have any combination of symptoms.
When Lyme disease is a possibility, it is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab. It is my understanding that the ELISA or titer is the least reliable test and the one most doctors run first.
Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. I am not a medical professional, but to me many of your symptoms sound like they couild be from Lyme and Babesiosis. Some of the hallmark symptoms of Babesiosis are night sweats, heart palpitations, and dizziness.
You can call IgeneX Lab at 800-832-3200 and ask them to send you a testing kit. You can take the kit to a doctor who is willing to draw the blood and send it in. The results will be reported to the doctor.
If you need a doctor recommendation, you can email me at firstname.lastname@example.org
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.
I hope you can get answers soon.
Post Edited (ticker) : 4/7/2009 5:39:08 AM (GMT-6)
I'll go ahead and post this link -
Making too many assumptions about what it can't be is one of the things that slows down diagnosis.
Here's the IgeneX web site which has a lot of good info.
Hi lazynewt. I edited my post above to list Dr. Burrascano's more recent treatment guidelines.
Many people who have Lyme have had it for a long time before getting diagnosed. Sometimes people can keep the symptoms at bay until their immune system is additionally stressed such as from an illness, accident, divorce, etc. I think it is possible that the antibiotics you took could have helped somewhat.
Many people who have Lyme are often tested for just about everything else also. Doctors often do not consider Lyme disease as a possibility. Of course it is good to have other things checked.
I recommend that you be evaluated by a Lyme knoweldgeable doctor and get tested by a Lyme lab such as IgeneX. Many doctors will run the ELISA or titer test which is the least reliable test for Lyme.
Hi lazynewt. Dr. B. discusses diet and supplement recommendations starting at the bottom of page 27.
Many people who have Lyme benefit from cutting out sugar, white flour products, and processed foods. Exercising whenever possible, doing things to strengthen the immune system, and detoxing are very important.
I know of a couple of Lyme doctors in the UK. You can email me if you would like their names.