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sickof lyme
Regular Member


Date Joined Aug 2008
Total Posts : 110
   Posted 4/9/2009 9:49 AM (GMT -6)   
Marie
 
Can u tell me if your insurance paid anything while at Envita??
Can ou give me an estimate of what your cost was there?
Is anyone else been to envita on here?
thanks

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 4/9/2009 12:45 PM (GMT -6)   
I called them, they take no insurance. They told me a 4-6 week treatment would run me about $40-60,000.00. Not remotely possible for me. 

sickof lyme
Regular Member


Date Joined Aug 2008
Total Posts : 110
   Posted 4/9/2009 2:02 PM (GMT -6)   
wow! I wish I some how could find 60,000.00 .I have not much hope left!

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 4/10/2009 2:10 PM (GMT -6)   
I received a response via e-mail from Envita about a month ago and was told that treatment is approximately $2,500 - $3,800 per week and usually lasts 6-8 weeks. The first rep I spoke to on the phone a few weeks before told me to expect about $18,000 for the entire course of treatment. There seems to be a very big difference in quotes being given. Most of us do not have unlimited funds and need to know exactly what we are dealing with before signing on for a treatment that we will possibly not be able to afford to finish. If cost was not an issue I would definitely go to Envita. Unfortunately, I'm not in a position to do so but I'll keep playing lotto and hopefully one day ....

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/10/2009 8:23 PM (GMT -6)   
Even if I win the lotto, I would like to know

1. What is the cure rate?

2. Is this the cure or just remission?

3. If remission, how long before relapse? Ugh

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 4/10/2009 9:51 PM (GMT -6)   
Unfortunately, I don't believe there is a cure and the best we all can hope for is a very long remission. I guess I'm attracted to the idea of intense short-term treatment which I realize doesn't necessarily translate into long-lasting results. Also realize that because a treatment works for some doesn't mean it works for all.

I am very happy for Martha's Vineyard that she has had such great results from Envita and appreciate that she shared her experience.

Still hoping to win lotto! LOL

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 4/11/2009 12:25 PM (GMT -6)   
My first question to Envita was about the cure rate and they told me there was NO cure for Lyme. Their approach is to boost the immune system to keep the Lyme in check. The owner of Envita has Lyme himself. I DO believe if we can get the immune system working better your body would take care of the Lyme and everything else as it is meant to do. Unfortunately most of us do not know how to do that. I mean, even stress affects the immunity, how many of us can get a handle on that??!   D


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/11/2009 4:21 PM (GMT -6)   
Getting a handle on stress? I believe stress caused me to go down hill.

And even more stress brought on more symptoms...

So my next question is this...Since Envita says there's NO cure in no uncertain terms, and my doctor says there's NO cure in no uncertain terms -- and that they will focus instead of a cure on my ability to "function" thank you very much, can I just stop treatment altogether and should I and what will happen to me?

The reason I ask is I don't want to just "function" I want to L-I-V-E. If I'm just prolonging a life of functioning, well, folks, that ain't livin' that's diein'

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/11/2009 5:06 PM (GMT -6)   
So now I will throw my own cent in here (<-- hope this phrase is correct) - try this route of conclusion:

Nobody seems to know anything about / around Lyme for sure.
Therefore it absolutely does not sound reasonable to me that it makes sense to believe someone could not get rid of lyme.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 3775
   Posted 4/11/2009 6:51 PM (GMT -6)   
I agree with you, dorit. I think we do not have the means to test whether the Lyme (and coinfections) bacteria are gone or not, therefore we cannot say for sure whether there is or is not a cure. The human body has an amazing capacity for healing, we shouldn't underestimate what it can do given the right circumstances.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Ceftazidime (for Pleural Effusion), Colloidal Silver (used topically).


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 844
   Posted 4/12/2009 8:24 AM (GMT -6)   

13 yrs ago when I first met my husband, he was being treated for Lyme in NJ..by a GP no less.

At that point in time, I knew ZIP about Lyme and did not ask too many questions of him.

He was smart enough to know when he saw a bullseye to get to the Dr. pronto.  Even though he had the bullseye, the GP said I do not think you have Lyme, but did put him on 30 days of Doxy..no clue what the dose was.

My husband said he had joint pain, horrid headaches and very tired for about 3-4 months.

Sure enough his WB came back Lyme positive.  Now, he was never tested for co's (not even sure if they knew too much about them 13 yrs ago).  He only did 30 days Doxy and to this day is fine.  Cured...remission...I do not know. 

His best friend also contracted Lyme, same protocol and is OK as well.

I have often wondered, that even though they caught it very early...why it was that only 30 days and no co's and they seem to be fine all these years later.

He is a contractor and where they were working, he said they would pull literally 100's of ticks off of them daily.

I cannot help but wonder if it all had to do with the immune system taking over.  Maybe because they got it so quickly and were on abx's right away, their immune system kicked in high gear.

 

 

 



Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 3775
   Posted 4/12/2009 5:28 PM (GMT -6)   
My understanding is this: If a person has a healthy immune system when they are first infected, and they get the right antibiotics right away, then their chances of making a complete recovery are much greater than those of us who either never got the necessary antibiotics right away (or were not given abx for sufficient amount of time) or did not have a strong immune system to begin with.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Ceftazidime (for Pleural Effusion), Colloidal Silver (used topically).


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 4/15/2009 8:18 PM (GMT -6)   
30 days is a great treatment.

I had 10 days and hear I go, posting again. It's been nearly a year and I have issues still. I am taking a break from mega doses of ABX to make up for the tomfoolery an idiot doctor put me on. And then I returned numerous times -- before my neck started popping and I became fatigued etc.

Anyways, your husband and his friend got a lot more than I got. They had the chance to rid their body of something. I don't feel I ever got that chance. Oddly enough, I have read anecdotally at least that doctors probably put themselves on ABX for a year to rid themselves of something that they can never confirm they have.

Love the inspiring posts about not enough is known to say we can't be cured. That's the best thing I've read ever on any forum yet. THANKS guys.

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 4/16/2009 6:09 PM (GMT -6)   

OK Here's my 2 cents..... I have had lyme and co onfections for about 18 years before being treated 2 1/2 years ago with antibiotics,  IV the works. Through the years I saw over 32 doctors who all said I was fine--even though I dragged my entire left side and was losing my sight  along with dozens of other symptoms. I have had so many different combinations of drugs I could open my own pharmacy. Now I am adding cowden herbs in hopes to get off antibiotics some day this year. One hour I can feel great and the next feel awful..thats the way this is sometimes. But mostly I feel better. In the past when I got tired of the meds, I went off only to have the symptoms come roaring back.

While I still have some symptoms I have improved enormously as my immune system gets stronger and stronger. Last year I couldn't even drink filtered water without my tongue burning as if I had hot pepper on it and I couldn't take suppliments and had many chemical sensitivities which have gone away completely as I kill the bacteria.

Bottom line.....I say this with caution because many times when things get better other things surface..tomorrow I may feel differently, however today I believe I will get this in remission. Hang in there--stick with meds even if they make you feel like crap which is how they make me feel after I take them sometimes because you must get the bacteria or it will get you. It will creep back slowly but surely it will get you. If you are having symptoms then you need to be on something..... meds or herbal but something.

There are certain probiotics that combat the diarrea you suffer with-you should be on them. If you don't know what they are let me know. Blessings


DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/2/2009 9:22 AM (GMT -6)   
ok.....
here is my two cents..Since she did ask me a question. Sorry I did not gt back to you sooner. I did not know that you were asking me and only found it today.
Envita may not like me for this. But here goes. I would only to the supp. and the Ozone and the perioxide and the CD and do the lymph flushes.
That is it. That treatment made me fee great.
Does it cure anything....bet not.
Did it give my blood the advantage over all the crap in my system...believe so.
My x paid for all of my treatment. He is wealthy. It also cost me a hotel. He paid for that too. He was also stuck with two of my kids...only one of them being his.
So.
My hotel was over 50,000, and my treatments were out there. I did two different treatments. Now after all is said and done. I would not bother with the chelation deal.
The Ozone made me feel on top of the world. And fast. They also gave me minerals and huge amounts of vit. c in the viens...ie..port.
I did the Ozone...gosh...oct, nov, jan, and till feb 8th. so about 4 times a week....hmm....I did Ozone about 48 times.
And I am on round 4 of so of their supplements.
I feel that this is what helped me the most. Plus. None of my Dr.s that are on the other side of the Lyme issue...had anything negative to say about this.
SOOOOOOOOOOOOOOOOOOOOOOO
If I did not have any $$$. I would look to see if Ozone was done in my state. I know that it is not allowed in the state of Florida. Some other people wrote to me and told me that alternative medicine places in there cities offered this. Most of the envita stuff.
But must add...the Ozone therapy is no walk in the park. It must be done in a steril place...involves surgery. I had 5 nurse and 4 MDS at my service.
And twice during it I felt like I could not breath. Sooooooo
The Hyro 3 gas that they use does get into your lungs sometimes and causes this problem. MY body did actually have air....but I have asthma and it scared me. But they all jumped on me and fixed me asap. So not to be taken lightly.
I would have Ozone done to my kids. I wish that they treated kids..maybe they will soon.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/2/2009 9:41 AM (GMT -6)   
ok...now that the kids have left the room and I could read all of the comments above. It sounds like everyone is on the right track. yippie.
I am now growing a garden with my 5 year old. Lilly got lyme too many times and again last summer. Some days her legs hurt alot. And we call it her old lady days.
She is sensitive to the sun...loud music and gets mirganes easily. So....since I took her to Envita and they said she was too little to treat just yet.
Oh...I aslo flew her up to see Dr. Jones In CT. in Dec.
She was super ill when she first got it when she was 11 mos. Oh gosh..I will have to post a lilly story. Too much for now.
In short: heavy abx made her scary worse. I felt awful and scared of killing her on the abx. She couldn't attend school. And of course many Dr.s could not agree on her illness...even with Tick in hand in jar and bulls eye.....@#$%^&*(*&^%$#
So...back to our GARDEN....LOL We grow tomatoes and hot peppers.
The plants that we water everyday..sometimes twice a day, and do not let get too much sun, and put in the best soil, and give fert. to every week or so...yes worm castings. Are going nuts.
The soil is everything. And so is the tons of water.
So this helps me with her. She thinks of herself as a plant now. And she drinks a lot of water...on her own...no junk....no coke ever.
And she takes all of the immune stuff stired into her juice that enivta gave to us.
We also take extra vit. C in a gummie bear form.
And flint stones chewable. etc.
Of course we watch her diet, but she loves suger. So she has gone from being sick every two weeks, to every 3 mos now.
And she had not had a 106 fever in a long time. I make sure she gets her rest. Does not over do it..and we stick to a very strict routine...kids love that. I also suggest that for adults. I did not like suprises when I was sick. Couldn't handle new stuff at all.
I must say that I did not do the whole envita protical. I refused to continue abx. I left with a bag full. I did not take them.
I wanted my body to get over everything and to see where I was.
Just like a little tomatoe plant. One cannot spray for bugs every day and expect any fruit.
I have been great for 6 mos now.
The chelation made me feel awful and I think it was a waste of my time. My two cents. I think the supp. were key in my success, cause I am always starving myself to be thin. And the Ozone gave my body the boost...like a battery boost to defend itself some and put the lyme in jail. I don't think it is gone...just in jail now.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/2/2009 9:44 AM (GMT -6)   
What is ozone? Are you still feeling up to par?

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/2/2009 10:12 AM (GMT -6)   
Ozone....they call it something else too.....ask in a post.......many on here are better at posting a link with the specific info. They take alot of blood out of the port....IVing and cleaning it. And then add a gas to it. Hydro. I think. There are two. I think it is the 3. Gezzz....I sound like an idiot...I know.
When I got to the clinic the sight of blood use to make me faint.
I am best going into a surgical thing...not knowing much....or I get ill...lol
I could barely read when I got there anyways and did not care about anything at all.
But they take the blood and it looks like ink...they bring it back in about 5 min.s and it is about 4 times larger....and full of bubbes and much lighter in color.
It is actually pretty. They pump it back in....slowly. I would get this sort of head rush....like I had flipped over in a cart wheel. But it made me feel great.
The only thing that set me back was the actual surgery of the port being put in. But I was able to drive myself around a strange city all alone. That was a big deal for me.

Yes Hoping. I am all better. It is very strange and takes a long time to get use to. It changes you to the very bone. It is much worse than getting better from like cancer. Where they only find a bump and get chemo. Lymies are the walking dead for so long....that we forget how life ever really was.
Or maybe not forget so much. But just never think that we will ever get there again. And with no one really abe to give us the right answers....after 35 DR.s....and so many drugs....it is awful.
But....It has changed me. I am not the same person. I only care about my kids and my animals. I am also able to connect to people better now. I have no desire to shop...and do not care for material things at all. I will not wear jewerly and feel that showing wealth is just tacky as all get out.
I live in flip flops...lol....I take my daughter to school on a double bike now.....talk about green...lol
I take my bulldog Popeye to the beach for his wall....everyday.
I help people everyday. I smile at everyone...mostly the poor. And I thank god every day that I am here to take care of my kids.
I tried to turn in my fancy mercedes for a beattle...lol...but they wanted so much $$$$...ha...so whatever....who knew.
I talk about Lyme every where.....every darn day.
I spray my yard every month...I live in avons skin so soft repellent. Lilly too.
I take handfuls of vit.s a day.
I eat well.
And that is it. I am tearful as I write this, because I fee bad for tellling so many of you who are still feeling so sick how great I feel.
But I am going to post about Lilly who is doing so much better...and not with the aid of drugs and abx..and maybe that will be of help to you...
:>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 5/4/2009 8:34 AM (GMT -6)   
Thanks for your posts I have found them very informative. Also I am so happy to hear you are better--gardening and appreciating the better ,more important things in life. I want you to also know that skin so soft while good for humans had made my dog sick from licking herself. It affected her digestion because it is petrolium based. I was told by a homeopathic vet to use a thing called Flicks. It is a concentrate that is mixed with water and can be sprayed on the animal. It is made of only natural oils that repel insects and doesn't harm them. Google it and you can find it. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/4/2009 8:51 AM (GMT -6)   
gosh after reading everyons comments above...I forget what I am going to say...lol.....:>)
Oh....no, I don't put skin so soft on my dogs...
But I don't take them to public places around other dogs...no way.
I have my yard treated over 6 months.
They have their revelation treatments etc. I give them baths often. I don't let them sleep in the house anymore.
Etc.
I wash their dog bed every other day....
They do not scratch.
And I would rather shot myself than let them near a forest.
I am on the beach. Still very careful.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/4/2009 8:56 AM (GMT -6)   
I got treated for 8 weeks with doxy the day of my tick finding and got so sick I wouldn't stop crying, could hardly walk...instant arthritis ...over night.
Mirgain...dizzy, a wreck. A fever. Couldn't sleep...nightmares when I did pass out...lol
My Dr. did blood test in the vineyard...he wrote me a perscription that day for abx....and weeks later they came back negative..he said that did not matter.
I did not have to prove to him that I was sick. They could sort of tell......lol
Then it hit my 11 mos old....but she was unable to walk and high fever..and throwing up and they told me that she was just teething and asked me if this was my first child...lol
oh....got that Dr. fired by the way....
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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