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pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 4/12/2009 3:08 PM (GMT -6)   
My shoulder feels like it comes out of it's socket at times when I am flaring. Does this happen to anyone else? I have been in PT for months- it got better then just woke up with that feeling and now it feels wiggly and inflamed. The orthopedists I have seen are so clueless- all they suggest is steroid injections for pain- which I would not consider. Are there docs in NewEngland who are good with Lyme joint problems?

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 4/12/2009 3:17 PM (GMT -6)   

Hi pcpc.  I am sorry you are having this, I am sure it is very painful.  I have not had this, but I know of other people who have.  Maybe your Lyme doctor or an area support group could recommend a doctor.

I hope this resolves for you soon.


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 4/12/2009 3:42 PM (GMT -6)   
pcpc, I am having arm pain and back pain. You haven't taken Levaquin, have you? Mine started when I was using it and it can cause tendonitis. At this point, any kind of abx causes mine to worsen so I am taking a long break using herbs instead. This evening I am starting an herb called jiaogulan which reduces inflammation and increases circulation, among other things. If my pain gets better, I will post.

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/12/2009 4:44 PM (GMT -6)   
I had problems with my shoulders also; they really hurted bad; had not been dxed with lyme that time. I started using Rhus toxicodendron at that time basically for inflammation of my hurting wrist and was happy it also reduced the shoulder pain surprisingly effective. I had never expected that !!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 4/12/2009 5:34 PM (GMT -6)   
Dorit,

My family and I have long used homeopathic Rhus Tox. for joint-related complaints, especially if the stiffness and pain is worse with first movement but improves with continued movement, and it works very well for this. According to the Homeopathic Materia Medica, Homeopathic Ruta Graveolens is another good joint pain remedy.

Nefferdun,

The tendonitis caused by some antibiotics can be prevented if a person is getting enough magnesium, according to a study I read a while back...

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), IV Ceftazidime (for Pleural Effusion), Colloidal Silver (used topically).


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 4/13/2009 8:09 AM (GMT -6)   
Thanks Razzel, I was taking over 1000 a day during the time I was on Levaquin but not as much now. I will be sure to keep the dose high until this is resolved. I know magnesium is related to the relaxation of the muscles and also helps with the nerves and heart. I have a horse that will cramp when he does not have enough and become very stiff and sore. Valerian is good to relax the muscles so maybe that will help also. My dizziness is gone a few days after quitting the abx.

Jiaogulan is an excellent herb, a powerful antioxidant that stimulates the immune system, stabilizes blood sugar (good for diabetes and insulin resistance), lowers bad cholesterol, promotes sleep etc. It is an adaptagen so if your blood pressure is low, it will raise it and if it is high, it will lower it. It also helps the same way with energy, helping you to relax when you feel nervous and giving you energy when you feel sluggish. It increases blood circulation and reduces inflammation. It has been used for longevity in parts of China for hundreds of years. I became familiar with it because it is used for horses with laminitis, a painful destructive conditions of the feet caused from toxins in the blood reducing blood flow and the tissue dying. Used with magnesium and a low carb diet, it has restored many horses to health. As much of our pain is related to a build up of toxins and poor circulation, I am giving it a try. It should be taken on an empty stomach because protein disrupts it's nitric oxide effects.

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/14/2009 6:36 PM (GMT -6)   
Hey Razzle -

thanks for letting me know about the Ruta Graveolens!! I appreciate your info and advice very much and always love to learn more!

Greetings from dorit

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 4/15/2009 12:32 AM (GMT -6)   
Yeah, I've had this as long as I can remember. I believe it to be part of my Ehlers Danlos. It's not too rare and I definetely do not have the severe kind. Mine is more of a "rag doll" ability... which has always included popping my shoulders in and out.... usually while trying to get comfortable in bed.... they just "slip" in and out.

I'm getting ready to have 2 steroid shots in my neck due to a spur in the neck area of my spine (C3, C4 and C5). I did my best to have every friggin' LD, co-infection, etc., test run prior to the steroid shots. I feel like a Frankstein "experiment".... will she wake up? will she be paralyzed? will she do cartwheels? more to come..... stay tuned.

I'm ready to take the chance and if it works "correctly" it will have all been worth it.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs

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