scalp hurts....

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jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 4/15/2009 9:23 PM (GMT -6)   
hello everyone...i have been off my meds now for about 2 months....i had an appointment with my dr last week but i had to cancle it and now i wont see him till july grrrrrr....anyways for the last 2 months the top of my head my scalp has been really sensitive...i had hit the top of my head a few months ago and it hurt from that and then i got headaches but i still get sorness on my scalp and it hurts a bit to touch it...is this from my lyme...i mean is that possible.
 
also one of my toes has been killing me...i thought i broke it...the one next to the big toe. i dont remember hurting it at all.also my wrists have been awful...every morn i wake up they hurt and feel loose and crack and pop..i have tendernitis in my right hand but this feels more like arthritis and in both wrists. i dont know what to do. I cant see my dr...which is annoying and i dont know if i should go back on my meds. i have one refill on my cef and i have a half of bottle left of my doxy but that wont hold me till july...i dont know what to do i really dont wanna go back on meds but will it help my joints to not be so achy and cracky and popy....
 
thanks for listening any advise will be great...thank you...jennie
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 4/16/2009 2:04 PM (GMT -6)   
Hi jennie48 -

I could imagine that the scalp hurting comes from you hitting your head; there is not much between skin and bone on the scalp that could absorb the impact from hitting. There is kind of skin covering the bones (sorry my dictonary does not know the right word for this in English!) and on places like the scalp or shinbone where the bone lies closely under the skin, hitting affects this "bone - skin" and that often hurts for LONG.

Does the other pain get somewhat better during the day? There are homeopathic remedies which may help you - and they are safe at least. You could try Rhus toxicodendron and another one which is similar and mentioned by Razzle in pcpc`s thread "shoulder pain" is Ruta Graveolens - may be this one could even be better for the scalp pain too; boths are good joint pain remedy. I took the Rhus tox. for tendonitis but it helped with my other pain surprisingly good also.

Hope you get better soon! greetings, dorit

Post Edited (dorit) : 4/16/2009 1:07:23 PM (GMT-6)


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 4/20/2009 1:03 PM (GMT -6)   
Hi jennie,

My daughter has had a really painful scalp on the top/back of her head that hurts so much it even hurts to touch the hair! It comes and goes. We finally found out from her naturopath that it is a virus. We are being treated for viruses, so hopefully this will go away. There are both prescription meds. (like Valtrex) and natural supplements (like Dr. Jernigan's Virogen) to help with viruses. Ask your doc about them.

For the joint pain, you could try using natural supplements until you see your doc. Some people find omega 3 oils helpful, as well as glucosamine or chondroitin. MSM sometimes helps too. Be sure to ask your doc for suggestions of what to try.

I hope your problems are solved soon. Best wishes. bablymers mom

jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 4/20/2009 9:43 PM (GMT -6)   
hello thank you both for your responce......

my pain doesnt get worse through out the day it pretty much comes and goes and stays the same...my foot is feeling better but my wrists are bothering me 2day andsnap and poped alot today.

my scalp is sensitive only sometimes....what was the virus called that your daughter had...its soreto touc my head and i get headaches once and a while...my sister was dying my hair tonight and it hurt a bit and she told me i should get it looked at but i have so many medical bills right now from my cone biopsy that i have to chill out with the drs for a bit....
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


bookfreak
Regular Member


Date Joined Oct 2007
Total Posts : 46
   Posted 4/24/2009 12:16 PM (GMT -6)   

WOW! I am also having scalp pain, headaches and both of my wrists are painful and snapping! It's been worrying me and while I am sorry to hear you are experiencing the same thing it makes me feel better to know it's not just me.

Maybe it's because it's spring and they say that lyme is "seasonal." I have been off antibiotics since last September and am rifing so I don't know if it's just a new area of my body where the bugs are living (or dying off) or what. This wrist popping thing just started a month ago.

I don't want to go to the doctor either because of the cost and they will probably want to inject my wrists with cortisone....   ugh!

Let me know how it goes..... 

 


babs123
New Member


Date Joined Apr 2009
Total Posts : 10
   Posted 4/25/2009 5:02 PM (GMT -6)   
nono  On the sore scalp where it even hurts to touch hair...I've had that off and on for the last year.  I've had Lyme and other tick borne illnesses for over a decade, but this was a new one!  I chalked it up to someway sleep wrong on my long hair...so I'm glad to hear that others experienced this also.  I too would like to know more about the virus that was mentioned. I've also am being treated currently for babesia and thought it might be related to that. babs123

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4027
   Posted 4/25/2009 6:39 PM (GMT -6)   
Joint pain (at least in my case) responds well to Nettles.
Ginger Root is a natural anti-inflammatory that has been helpful for some with joint inflammation (joints that snap & crack can be an indication of mild inflammation) and pain.
The covering on the bone is the periosteum. When this bone covering is bruised, Ruta Graveolens is a good homeopathic remedy to try.
I find myself that I'm more sensitive to touch when I haven't been sleeping well.
I've also had the hair sensitivity thing...seems worse when I go too long between hair-washings.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 4/28/2009 12:13 AM (GMT -6)   
hello everyone.....i have short hair and when i were it in a headband it tends to irritate my scalp more...??? i never sleep well so maybe thats why my bones are cracking alot....i am tired of my wrist poping and snapping and my finfgers hurting....

i am currentyl not taking anything at all.. i want to try to go on a waiting list with my dr...but i dont want to go back on abx. i feel that they made me worse.....i will have to look into ginger root....with that help with my joints?

I have also developed tendinitis in my right foot. it doesnt feel so good.....i need advise on if i should go back on meds to get rid of this joint pain or should i do it natually...which is better and how do i do it natually....i know you can detox and take pills but...what vitamines are the best for joint pain and for toxins in your body???

jennie
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/28/2009 1:24 AM (GMT -6)   
Razzle,

I get the hair sensitivity thing too when I wait too long between wadhings. It gets so sensitive that I have to my husband to be careful not to touch it too hard.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia
Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


jl3625
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/5/2009 11:27 AM (GMT -6)   
I'm getting tested for lyme today, but one of the first things I noticed was how sensative my scalp hurt, like I had it in a tigh high ponytail for weeks! My friends thought I was crazy...glad I'm not the only one!!

meggie28
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/15/2009 10:42 PM (GMT -6)   
Hi - I'm just am so relieved to hear about other scalp experiences! I just wanted to share that I too have a lot of pain in my scalp, and it began maybe 8 months ago after I'd started getting treated wtih doxycyclin again (for about 2 mos) after a long stretch of years not realizing I wasn't just aging quickly - I still had lyme! Anyhow - while it does show up off and on all day as the "high ponytail in too long" feeling, and it's pretty bad if I wait even a little while at the start of a day to wash my hair, something else happens more and more frequently where I feel like my head/brain is getting stabbed, it started in December as a "tingle" that followed the exact path each time on the left side of my head, starting at the back ending at the same point in my forehead, which really felt like it was going straight through my brain, not my scalp (but I tell myself it must be my scalp because you can't supposedly feel your brain?), and my lyme specialist had suggested I just dismiss it as a lyme symptom, to not seek any further opinion, and continue with the iv and by this point zythro. too for six months, and to just see what happens... I've been off that for about 1.5 month and according to the blood results they finally faxed, it looks like I'm more positive than before, and for about a month now it's not been the tingly distracting line that comes and goes (and ONLY on the left side of my head ever btw) - that never happens anymore. Now, out of nowhere, several times a day, I feel like I'm getting stabbed up there (only on the left). It's so weird. It makes my whole body reflex from it because it's so sudden and strong. It doesn't seem to be attributed to stress, dehydration, hunger, it's very random. It's not always in the same place as the tingly line, but it's always on the left. Has anyone had this symptom? I don't get headaches very often at all, and I wouldn't describe this as feeling as one. A few years ago when, I now understand, that my lyme was getting expressed as tingling in my extremeties and nervous system/balance problems, I had an MRI of the brain prescribed after little almost fainting spells that would randomly occur - I think they were concerned about MS? But anyway, I don't think it's something really inside my head, they checked there, they just hadn't thought to do bloodwork...but then again who knows. Hoping someone here might have some ideas...Thanks! Sorry for my long post!

meggie28
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/15/2009 10:51 PM (GMT -6)   
Btw - I do take super strong B vitamins for a healthy nervous system. They helped immediatately a couple years ago with the tingly hands and lightheadedness. Sometimes I take a LOT of them and it seems to help the tingling/stabbing episodes subside.

And if it's any use to everybody, I am also drinking a couple shots of wheatgrass a day, taking milk thistle, cat's claw, LDM-100 (an anti-viral/anti-bacterial parsley derivative), and strong pro-biotics. Someone told me they swear they keep their lyme at bay with strictly pro-biotics, so I'm keeping up with them even after my antiobiotics are gone. With all that though, and after 6-7 months of antibiotics, I can't really say that I feel much different than when I sought help from the doctor. last september...Lyme is just funny like that I guess!

meggie28
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/15/2009 10:57 PM (GMT -6)   
@ jennie48: have you tried drinking apple cider vinegar? It is both a strong detoxifier and has been life-restoring for my mom and her arthritis. I also have the joint pain from lyme but haven't kept up with trying to target it specifically. She swears by it though for general joint health. If you drink it mixed with grape juice it's not bad at all, or honey, or just thin it out with some water once you get used to it. Straight though is pretty rough... There are detox teas available and wheatgrass juice also has a detoxifying reputation.

Some folks, I think, seek massage for detoxification and lymph drainage. I think light massage by someone who knows what they are doing is encouraged for detoxification - if that's an option you could look into. It can get pricey though...

Hope some of this helps...

mamoo
New Member


Date Joined Oct 2007
Total Posts : 9
   Posted 5/19/2009 9:36 AM (GMT -6)   
Hi All:
 
I too have and do have the scalp problems on and off.  Sometimes it feels as though someone is pulling my hair out of my head.  Often thought I was cracking up, but know that this is one of the symptoms that I have had with my Lyme since the get go.  I have stopped dyeing my hair and letting the gray come in, and this seems to be helping with the symptom.
 
Presently I am experiencing a rash on several areas of my body.  Chalking this up to the lyme, don't know what else it could be.  It is in several spots and large and raised and itchy.  Guess I am just learning to live with this dog gone disease.
 
Mamoo
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