Hi Deftones, welcome to the board!
I am very sorry about what you and your ex have been going through. I think it is great that you are so supportive and want to understand the disease.
Below is a Lyme symptom list. There can be any combination of symptoms.
You sound like an incredibly supportive BF and hopefully, one day she will be able to see that. Keep educating yourself so you can continue to support her with information.
As to what you should about the relationship, it may be best to back off. Irregardless of why her mood toward the relationship has changed - (from a herx or if her feelings have truly changed or if it has to do with her self-esteem) - pushing yourself on her will likely result in pushing her away.
Let her know that you care, that you want to help, that you'll be there if she wants it but then walk away. It'll be very hard to do, I know. She may realize that you are what she needs. It gets very lonely when you are in a lot of pain and perhaps the thought of having you there will become appealing to her.
Hi Deftones. I am sorry she has so many symptoms.
It can take time to eradicate co-infections. If she did not eradicate them with her first round of treatment, they need to be addressed. Many Lyme doctors believe the co-infections need to be treated first. How long has she been on treatment this time? It is good she is seeing a knowledgeable doctor, often that is half the battle.
Talking with others who are experiencing the same thing is not always right for everyone. I am glad that she talks to her psychiatrist.
Keep us posted on how she is doing okay?
Hi Deftones. I suggest reseraching as much as possible to make sure she is getting treated long enough. Six months of treatment is not very long for someone who has been infected for several years. The majority of Lyme doctors treat until the person is symptom free plus a few months longer.
There are some excellent books available. I recommend "The Lyme Disease Solution" by Kenneth B. Singleton MD; "Cure Unknown" by Pamela Weintraub; and "Everything You Need To about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner.