Newbie...What To Do Next????

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b_lyme_ied
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/23/2009 8:42 AM (GMT -6)   
Hi everyone,
 
I was just diagnosed with Lyme a couple of months ago by my cardiologist, who I had gone to see because of extreme fatigue, chest pain, and blood pressure problems (both dropping low and creeping up too high).  I have gained about 70 lbs in the last 2-3 years and have blood sugar problems (both high and low as well) so figured I was at risk for a heart attack.  I was shocked when the Lyme test was positive, but it explains a lot.  It would take an entire day for me to list all my neurological symptoms, but as I read everyone else's entries I have everything everyone else has.  I had a several-month spanning cyclical illness (fever, swollen glands, vomiting, headaches, etc.), then the autonomic dysfunction, now neurological and MS-type muscle & joint symptoms and am finally doing my first 28 day treatment.  The truth is I'm totally lost, there are so many co-infections, so many things to look at in the lab results, and I don't know ANY of it, and more frightening, I don't think my doctor does either.  Of the two LLMD's that were in my area one is applying for a license in another state and has closed her practice and the other's secretary said cryptically that his schedule is "on hold".  I wish someone could point me in the right direction of what I should do, and what about my kids?  I've had three children since the first onset of symptoms nine years ago, and my doctor refuses to test them for it.  Do you think I could have passed it to them?  I did have antibiotics while in labor because of Group B Strep but only for the labor and then afterward I breastfed for several months.  Anyway sorry for all the questions and I will be grateful for any easy to follow (not so good these days mentally) information anyone can give me. 
 
Also, just so I feel like I'm not alone in this I've started blogging (I am a freelance writer, so...I guess I have something to write about), so feel free to visit my blog @ http://www.b-lyme-ied.blogspot.com/ and I'm writing about my IV infusion on Twitter.  http://twitter.com/b_lyme_ied  Not to trying to shamelessly plug, I just feel really alone and this is all helping.  Thanks everyone.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/23/2009 5:26 PM (GMT -6)   
Hi b_Lyme_ied,

I'm truly sorry you have to deal with all of this. You truly NEED to see an experienced LLMD. They are the only ones who will be able to treat you right. Ticker will probably be able to tell you who is closest to your area. She is very knowlegeable regarding Lyme and Lyme Literate doctors.

about your kids....it is proven that the bacteria can be passed to the fetus. It is also in breast milk. They definately need to get tested.

about your test results...what do you need to know?
Symptoms started in 2003 with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder. Took Lexapro for two years and symptoms never got better. Suffered off and on for years.
2007 found an LLMD and was diagnosed with Lyme. WB was negative but had ++ on Lyme specific numbers. I decided to not do treatment because I didn't know enough.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, couldn't find the right words, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.

Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia

Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 4/24/2009 5:52 PM (GMT -6)   
Hi LymeKiller,

Yes, my thinking has gotten alot better. I take a bunch of supplements but the main thing that helps me is a supplement called DMG. It is used for mental clarity. The other thing that helps me is getting a foot detox done. A bath detox helps but in my opinion, a foot detox had helped me alot more.

When you are taking antibiotics and the toxins start dying off, you will most likely have brain fog. Yeast dying off does the same thing.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:
-Chronic Lyme Disease
-Hashimotos Thyroiditis
-Ulcers
-Hypoglycemia
Medications:
-Biaxin 250mg to start (starting slow and working my way up)
-Mepron
-Ultram(muscle/joint pain)
-Thyro Complex 60mg(Thyroid)
-Probiotics
-Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

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