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momtothree
Regular Member


Date Joined Aug 2006
Total Posts : 293
   Posted 4/25/2009 10:25 AM (GMT -6)   
As I wrote in a previous post, I seemed to be cured or in remission from Lyme from March, 08 until recently.  Symptoms that I have now that I did not before are constant tingling in my feet and legs, and it is now in my hands and face.  I also have numbness in my lip and my left foot.  Does this sound like Lyme, could it be MS?  I saw my LLMD on Thursday and she is waiting for bloodwork.  Treatment has been delayed for a week because we are leaving for vacation later today.  My symptoms of numbness and tingling have greatly increased since Thursday.  I am really scared.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/25/2009 10:31 AM (GMT -6)   
Numbness and tingling are certainly symptoms of Lyme, but they can be symptoms of other things as well. Are these the only symptoms that you are experiencing? I could be wrong, but I think that MS progression takes years in most cases. The rapidness of the spread of the tingling sounds more like either a relapse or reinfection of the Lyme. That's just a guess though.

momtothree
Regular Member


Date Joined Aug 2006
Total Posts : 293
   Posted 4/25/2009 10:35 AM (GMT -6)   
My other symptoms are back lumbar pain and headaches.  Thanks.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/25/2009 10:49 AM (GMT -6)   
Those are also possible symptoms of lyme or something else. That's the tricky about lyme. It mimics many other diseases. Also, when you were tested for lyme before, were you also tested for any other tick borne illnesses? If not, you should insist that they test you for everything. Coinfections with lyme are common. The symptoms overlap, so what your doctor thinks might be attributable to lyme might actually be something else. Coinfections also make treating and curing lyme more difficult.

momtothree
Regular Member


Date Joined Aug 2006
Total Posts : 293
   Posted 4/25/2009 10:55 AM (GMT -6)   
I was tested for coinfections the first time and Igenex came back negative.  I am being tested for Lyme and coinfections again. 

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/25/2009 11:12 AM (GMT -6)   
Unfortunately, there's not much that you can do until the tests come back. I hope that you are seeing a reputable LLMD. The tests aren't reliable. Even if you test negative, you may still be infected. A good LLMD will be able to diagnose you based on your symptoms, not just the test results.

momtothree
Regular Member


Date Joined Aug 2006
Total Posts : 293
   Posted 4/25/2009 11:32 AM (GMT -6)   
She is very good, she trained with Dr B.  Clinically, she thinks Lyme and Erlichia and possibly Bartonella. I did have an MS hug and that is what freaked me out. I need to stay focused on the lyme even if I did not have these symptons before. I just never had numbness in foot and lip.  All this tingling is new to me as well.  I am used to twitches and muscle spasms not tingling and numbness. Thanks.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/25/2009 12:06 PM (GMT -6)   
Given your history with Lyme, it seems much more likely that that's what is causing your current problems. Also be aware that anxiety itself is a symptom of lyme. I mention that because I had that problem, and I was constantly panicking that my symptoms were being cause by all sorts of horrible diseases. It can be subtle at first, and you may just think that you are worrying normally, but it can get worse as the disease progresses. Stay aware of any emotional swings that are out of the ordinary for you, even if they're small changes.

momtothree
Regular Member


Date Joined Aug 2006
Total Posts : 293
   Posted 4/25/2009 12:39 PM (GMT -6)   
Thanks for your input.  I have been having panic attacks as my symptoms started progessing this week.  I will remember what you wrote and try to stay calm. Please know that you have helped me a great deal.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 4/25/2009 12:50 PM (GMT -6)   
I'm very happy that I could help. My lyme symptoms did not progress in the usual order. I got anxiety, panic attacks, and other neurological symptoms very early on. I even called an ambulance at one point. Later, I progressed to other mood swings, such as depression, anger, sadness, and even euphoria. It helped a little to repeat to myself that it was the lyme and not me. It also helps to have someone else around to anchor you to reality. It can be very scary to lose control of yourself in this way, but it will get better once you're on treatment again.
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