Post Edited (LymeUnknown) : 4/25/2009 3:37:26 PM (GMT-6)
Hi LymeUnknown, welcome to the board!
It is possible you were infected in 1971, and it is also possible you were infected two years ago. Many people are bitten without knowing it. Ticks are tiny, they inject a numbing agent so you cannot feel them on you, and they often go in hard-to-see places.
Below is a Lyme symptom list. You can have any combination of symptoms.
No test for Lyme is completely reliable, and results can vary by lab. It is my understanding that the ELISA or titer is the least reliable test and the one most doctors run first. Is this the test you had done?
It is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.
Lyme disease can be passed through pregnancy and breastfeeding. I think it would be a good idea to have your children tested. If you need a doctor recommendation, you can email me at email@example.com
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2008 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the books "The Lyme Disease Solution" by Kenneth B. Singleton M.D. and "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner.
I hope you can get answers soon.
Thank you, Ticker. I have read (and printed) Dr. Joseph Burrascano's 2008 piece (along w/ several other papers) and have read everything else I could find. The reason I ever got on here was not because of the 1971 tick bite -- I had dismissed everything from back then as unrelated and it was my current research that caused me to go back and realize how everything followed that nasty tick in 71.
I ended up here because I had a tick 2 years ago that was attached for at least 2 days. (tiny and my daughter thought it was a mole). But I never got a bull's eye, so never went to the Dr, even when I got sick a couple of weeks later -- because the illness was mild. It was after that everything 'went all to hell'. In the past 2 years I have sought answers to my problems -- because I did not want to go to a Dr and start having a bunch of appts and tests, etc. I feared all the rigamarole in trying to diagnose fibromyalgia or chronic fatigue. I researched living too close to power lines and returned to Lyme disease a few times. It was an article in our local paper that made me look at Lyme again, so at least we know that some are trying to get the info out there.
Regardless of that bite 2 years ago, I live a 'high risk' lifestyle! For 5 years now, my dogs and I have 'hiked' (I've been dragging lately!) in the woods at a tick infested park 5-6 times per week. And I was terrible about not checking myself for ticks!
There are 4 lyme literate Drs here. One does not accept insurance, 2 are taking no new Lyme patients, and I'm on a 9 month waiting list for the 4th. Meantime, since I don't have a PCP, I selected one mentioned on the Lyme Assoc of Greater Kansas City bulletin board, who diagnosed a person on there, altho he wouldn't/couldn't treat her. So that is a start. AT this point, all I want is a diagnosis, and as difficult as I've learned that is, I will just hope and pray that I get the right answers. I will start w/ requesting the Western blots (and skip the Elisa). Depending on those results, I will request testing for co-infections. I also have a list of the IGENEX (?) panels and see if he is willing to order any of those. My insurance will reimburse me for tests that HE orders.
IF I contracted Lyme or something similar in 1971, it must have resolved at some point. Even tho I've had severe back and neck pain ever since, I did have 3 very healthy babies, worked out a lot, and supported my kids myself, waiting tables for 16 yrs. rarely calling a Dr.
This board is a WEALTH of info! THANKS!
OH, one more question: Is it possible for Lyme related severe anxiety to begin within 2 months of the bite or is that too early?
OH, and another one I cannot find: Since deer carry the Lyme and give it to the ticks, do you think it would be possible to contract lyme from deer feces? One of my dogs rolls in it almost DAILY, so we bathe a lot, but you know my hands would come in contact w/ it.
Post Edited (LymeUnknown) : 4/26/2009 10:26:52 AM (GMT-6)
Hi LymeUnknown. You can order a test kit from IgeneX and take it to a doctor who is willing to draw the blood and send it back. The results will be reported to the doctor.
Sometimes people can keep a Lyme infection at bay until their immune system becomes suppressed. The second tick bite may have been what suppressed your immune system. Of course I am just speculating.
Unfortunately, the majority of Lyme doctors no longer take insurance because insurance companies do not reimburse them.
I believe any symptoms, inlcuding anxiety, can start at any time after someone is infected.Deer do not carry Lyme. They get the bad rap because they have a lot of ticks on them. Lyme disease actually comes from mice. Ticks feed on mice then dogs, people, horses, etc.
Since you are in such an endemic area, it would be good to take all possible precautions such as using skin and clothing repellants; walking on well-groomed trails; checking yourself, you children, and your pets for ticks frequently; and treating your yard.