Lab questions -- please help!

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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 4/26/2009 8:28 PM (GMT -6)   
Hello, it's your little thorn in the side Newbie again w/ more questions.... :-)   
Tomorrow is my appt w/ a new PCP. All I know about him is that he has diagnosed Lyme, but he does not treat. I have no idea of his literacy or non, but I had to start somewhere.
 
I'm not staking my life on a first lab test, but really want to make it at least count for something. And I at least want to try co-infection testing, based on all of your advice. I would at least like the CHANCE of finding out something.
 
Quest does the Western blots, so for starters, I think, rather than shelling out a ton of $$ to Igenex for the New Master Panel, I will start w/ a request from Quest.  I feel like Ehr. and Rocky Mt are out, at least at this point, but at least want to attempt a hit on Babs and Bart.  What would be the best kind of test to request for co's like Babesia and Bartonella?  Could be wrong, but  surmising that my Dr may not know, other than the Western blots for Lyme. I also plan to request testing w/in 12-24 hrs.
 
I'm hoping to at least try to take charge, somewhat.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 4/27/2009 5:36 AM (GMT -6)   

Hi LymeUnknown.  Labs like Quest and LabCorp do not list all the Lyme-specific bands on the Western Blot that IgeneX does.  I recommend getting tested at a Lyme reputable lab.  Maybe this doctor has the test kits for IgeneX since he has diagnosed Lyme.  If not, you can have IgeneX send a kit to you and you can have the testing done after you get it. 

Good luck at your appointment.  Let us know how it goes.

 


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 4/27/2009 5:40 AM (GMT -6)   
Just want to let you know, I'll be praying for you and you family.

Lala429
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 4/29/2009 2:01 PM (GMT -6)   
You may want to request a CD57 - to my knowledge only LabCorp does this test, but google CD57 Striker Panel, it is one of the best indicators of chronic Lyme. I had a negative Western Blot (which cost a bloody fortune - I'm on 80/20 plan and I had to pay $200 for it) and my CD57 levels were very low (normal range is 60-300; mine was a 16). Out of pocket costs about $120 - not sure if your insurance will cover LabCorp tests? I am now on IV Rocephin (2 months now) and Doxy and am just starting to feel improvement. My doc told me that the Ehrlichia, Babesia, and Bartonella tests are not accurate either - it's a waste of money unless your insurance covers it.
Good luck - keep us posted.
Hugs,
Lala
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