How to handle Lyme Rages in teens?

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MarriedtoLymeinNJ
Regular Member


Date Joined Sep 2007
Total Posts : 273
   Posted 5/2/2009 10:23 AM (GMT -6)   
My son is going to be 13 in a couple of weeks. I know it isn't easy for a "regular" teen, but with the Lyme/Bart/babs.... it is really hard.

he is typically a good-natured kid, but lately the anger is out of control.

My husband also had this before he was diagnosed, and it was so difficult to deal with.

I want to be able to help my son- who says once he is in a rage, he can't stop it. I heard the same exact words from dh.....

I feel like I am walking a fine line. On the one hand, I want him to be learn how to control the anger. The other side -- I know that he can't.
But I can't excuse his behavior, especially at school.

Anyone have any ideas?
TIA!
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/

Post Edited (MarriedtoLymeinNJ) : 5/2/2009 10:28:36 AM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/2/2009 6:27 PM (GMT -6)   
I have really bad Lyme rage and was just telling my husband the same thing....that I can't control it. It's this terrible feeling I get inside that makes me want to scream and punch someone. It's weird and hard to explain. It's a feeling I've never had before and so different than regular anger. I just want to say that I don't actually punch anyone but it makes me feel like that inside. I feel angry at the world for no reason what so ever. I get really depressed after too and I've also "felt" suicidal. I would never kill myself but the feelings are there. I used to have this at least once or twice a month. I just started taking a pain pill for the muscle pain about a month and a half ago and noticed that it calms me down a lot and I haven't had those bad feelings again. But, we're talking about a 13 year old and I'm not sure what he could take. Maybe something on the natural side that calms the muscles. I also take something natural called Muscle Calm. It calms my muscles and is also used for depression, anxiety and insomnia. It has valerian root in it. Maybe look into something like that. Its safer.

I feel so bad for children that have to go through this. I hope you can find something that helps him out soon and I hope my story has helped you understand the way he feels a little more. The poor little guy probably feels so out of control.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements

Post Edited (CajunGrl) : 5/2/2009 6:31:15 PM (GMT-6)


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 5/2/2009 7:18 PM (GMT -6)   
Hi MarriedtoLymeinNJ -
I am so sorry to hear about what your son has to go through!
I had such bad rages myself some time back (did not know I had lyme) and decided to try some homeopathic remedies; the one which helped me very very much was Stramonium; another lymie I know took Nux Vomica with big success - she said she was very irascible and aggressive at some time and got involved in every fight.
As those meds are safe the natural / homeopathic route may be an option for your son. I pray that he gets some relief from this quickly!!
greetings from dorit

MarriedtoLymeinNJ
Regular Member


Date Joined Sep 2007
Total Posts : 273
   Posted 5/3/2009 5:55 AM (GMT -6)   
He takes Calmicin Plus- it is Valerian and Lemon Balm- when he realizes he needs it. When he is in a full rage, he screams at me that he won't take it. My dh did the same thing to me when I tried to suggest he take a Xanax for his rages.

Once he starts to come out of it, he will take it, and feel better.

Yes, he does get very depressed afterward. he feels ashamed and regretful. I have talked to him when he has been calm about wanting to hurt himself or others and he assures me that he would always come to me or his dad first.

The biggest problems I am having are with the school. They don't get it-- that he gets these huge mood swings. he wants to bring a calmicin in his pocket if he needs it at school. But if he gets caught with it..... Oh I don't even want to got here!

I am going to have to set up a meeting with the school nurse I think.....

I think he is scared too- he saw his dad go through this and it was **scary** for all of us. I know he doesn't want to get like that.

Thanks for you thoughts!
Chris: Diagnosed Lyme, Chronic Mono
Married to Lyme in NJ aka Gary: Lyme, Bartonella
Mom to Scott: Lyme, Babesia, Bartonella
Mom to Caitlyn: Lyme, Bartonella
My Blog: http://faerywings.wordpress.com/


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 5/3/2009 11:06 AM (GMT -6)   
I have always been a very calm person that never gets angry. Fortunately, if the Lyme makes me angry, it probably makes me act more like a normal person anger wise. My daughter on the other hand goes off the deep end about so many things. Wanted to know if she wanted steak for dinner the other day and she started screaming because I asked her a question. It is hard on them. And hard on us.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 5/3/2009 12:54 PM (GMT -6)   
This sounds so tough. Having raised kids it is hard enough when they are healthy to deal with the mood swings. I can loose it sometimes because of the bartonella. I would keep trying natural remedies to see what helps. Valerian is very good for muscles and nerves. Magnesium is also extremely calming and lyme depletes it. B vitamins reduce stress and B12 and B6 are depleted. A B 12 dificiencty can wreck havoc on your nerves. St. John's Wort is as good as a tranquilizer. Sam-E is another good one to try. He should stay away from sugar and caffeine.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/3/2009 7:19 PM (GMT -6)   
MarriedToLyme,

Is there anyway your son could take the Calmicin Plus everyday? Maybe take it before school everyday instead of as needed. He may even be able to take it more than once during the day. Maybe before and after school?

Also, magnesium sounds like a good idea. I used to work for a Chiropractor that believed in natural supplements. He would give kids with ADHD. A powdered supplement called Natural Calm. I take it for bowel movement because the magnesium helps with that but it is also used to calm the nerves. Maybe look into that too.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/3/2009 9:25 PM (GMT -6)   
wow...I am so happy that I found this post. My 12 year old has these rages and screaming and the moond swings, It is scary, annoying and exhausting. And it goes on and on and on. And she disrupts the entire home with the slamming of the doors and the screaming.
And then if things do not go her way she threatens suicide. It is too much. I am at tht point that if she tires to od on pillls again that I am going to have her stomach pumped and have he put in a hospital.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 5/3/2009 9:43 PM (GMT -6)   
Martha's Vineyard,

Wow! How scary that is! Poor thing. I bet it's scary for her to have all of those feelings. Hell, it's scary for me and I'm an adult. Maybe try her on something natural as well. I've given the Muscle Calm to my oldest daughter when she was going through some stressful times and it helped her alot. You can't take it if you are taking anti depressants or nerve pills because the muscle calm works in the same way anti depressants work except it doesn't last as long and you can stop them anytime you want. It's not addictive in anyway.

I hope you find something that helps her. Poor baby. I hate seeing kids suffer.
2003 symptoms started with very intense panic attacks and anxiety. Also had sound and smell sensitivities. Was in and out of the hospital from 2003-2005. Diagnosed with panic disorder.
2007 found an LLMD and was diagnosed with Lyme. Didn't start treatment.
2008 symptoms came back with a vengence. Muscle pain, joint pain, floaters, stiff neck, rib pain, slow thinking, brain fog, etc...
2009 went back to see LLMD. Diagnosed again with Lyme plus co-infections....Babesia and Bartonella.
Illnesses:-Chronic Lyme Disease,Hashimotos Thyroiditis, Ulcers, Hypoglycemia
Medications:-Biaxin 250mg to start (starting slow and working my way up, Mepron(babesia), Ultram(muscle/joint pain), Thyro Complex 60mg(Thyroid), Probiotics ,Caproyl(intestinal candidas),Psyllium Powder(intestinal cleansing support),Bentonite Magma(absorbent aid for intestinal detoxification)
-Plus a ton of other supplements


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4282
   Posted 5/4/2009 4:00 PM (GMT -6)   
Hi MarriedtoLymeinNJ,
 
I used to suffer from lyme rage episodes and they scared me more than I could express.  Also scared people close to me as that was "not" me.  
 
Anyway, what worked for me was getting rid of the ammonia in my brain.  Curious me, I had to know why I had ammonia in my brain and where did it come from?  So I researched and learned when lyme bacteria dies, it leaves a toxin (one of many) that converts into NO (Nitrate Oxide).   NO converts into ammonia.  
 
Anyone with too much ammonia can cause lyme rages, pains in joints, muscles, etc.  Another friend of mine had a problem with her liver shutting down due to an overload of ammonia from lyme.
 
There are many products out there to clear out the ammonia but the product I took was Dr. Jernigan's Neuro-Antitox CNS/PNS Formula.   That worked great for me and it's all natural.
 
I hope this helps,
Denise 
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 

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