relapse and frustration

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needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 225
   Posted 5/3/2009 8:49 PM (GMT -6)   
Hi everyone,

Just wanted to get your thoughts. I was making very good progress with my treatments (400 mg doxy, 1g biaxin ---7 months). I would say that on many days my life was almost normal (80% of my former self for roughly the last 6-7 weeks). All of a sudden I am getting much worse and very quickly. It is a painful reminder of how bad I felt months ago. Any ideas on what is going on? Any of you have similar experiences?

I see my LLMD a week from tomorrow. Hopefully he will have some ideas.

On a side note, I have decide to pursue studying this molecular biology of Lyme after I finish my current postdoctoral position (probably sometime next Summer). Hopefully something good can come of this god awful misery I have been through.

Hope everyone else is on the track to recovery.

Brad

spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 5/3/2009 10:40 PM (GMT -6)   
Hi Brad,

I understand how disappointing it can be when you suddenly backslide. I've been there. I started oral abx treatment in Jan/08, and I was noticing some slight improvement until Aug/08, when I started feeling very sick again (mostly bedridden). It was very difficult for me, trying to ascertain if the decline was due to herxing, antibiotic overload, the wrong abx, or the re-emergence of babesiosis.

As it turned out, in Oct/08 I ended up changing meds to re-treat babesiosis. Those babesia buggers are very hard to eradicate, as you undoubtedly know. I initially treated it for 15 wks (Mepron + Zithromax). So this time, I want to complete six months of Mepron, Zithromax. We have also added Plaquenil effective Oct/08.

Hang in there until your LLMD appointment. I hope your LLMD gives you some answers. Try not to stress yourself too much, as recovery can take a long time, and we do hit a few bumps on the road along the way.

Take good care!
*Abx combo tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '04; Essential Tremor ’03; Fibromyalgia ’01; Osteoarthritis; Depression; IBS; Interstitial Cystitis

Post Edited (spaztick) : 5/3/2009 10:43:21 PM (GMT-6)


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/5/2009 8:24 AM (GMT -6)   
That is what always happens after doing the abx. It comes back. I couldn't let my 5 year old live on 1,200 mg of amoxy.
There are things that work. Drugging on abx is not it.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


danandamy77
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/18/2010 7:59 AM (GMT -6)   
You have to build up the immune system as I understand it simultaneously otherwise you are just spinning your wheels. Just my two :)

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 4/18/2010 8:09 AM (GMT -6)   
I had the same experience as spaztick -- it was just time to change up the combination of antibiotics. After that progress will resume. Do as much as you can to keep your immune system working well until you go and see your llmd. This doesn't mean you are on a downward path -- just time to change direction as you herd the lyme bacteria and babesia into an every smaller realm of existence. Good luck!
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