Hi Keeping the Faith,
My son has been on a form of IVIG for just about a month. Instead of getting it via IV, we give it to him sub-cutaneously. It's called Viva Globin and we infuse it once a week at home.
Dan has "isolated IgG deficiency". At the urging of our LLMD we went to mainstream immunologists at Long Island Jewish Hospital. They "don't believe in chronic Lyme", but they saw a sick young man and were willing to try to help him. We have been told that the effects are cumulative and it may take a while to see results, but, both my husband and I believe that we have seen small improvements: the way he carries himself, he doesn't shuffle when he walks any more, a slight lessening in fatigue. His seizures are not quite as long or as severe..
I'm so sorry you had such a bad experience with Dr. K. When we first started seeing him, we were warned that he is not really knowledgeable about Lyme, but he has helped Dan. He is a bit eccentric.
If your daughter has autoimmune problems, are you currenly seeing an immunologist?