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Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 9:02 AM (GMT -6)   
I just recieved a call from my LLMD. My IgeneX coinfection results just came in and I show positive for Ehrlichia. They are calling in a order of Zithromax for me. This is my first positive test, to this point  have been treated clinicly for my symptoms and exposure to ticks. I have a couple of question about Ehrlichia I hope someone could help answer.
 
Have you been treated for Ehrlichia? What were your symptoms?
 
Have you used Zithromax? How did you do on it?
 
Thanks
 
 


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 9:15 AM (GMT -6)   
lymekiller,

Yes I have memory problems. Now if you ask my wife she will say they were present prior to my tick exposure. However I have no doubt it has been MUCH worse since my exposure. I remember one morning, I was trying to open a can of cat food, and could not remember how to use a hand can opener : (

Thanks for your responce, hope you are well today!!
 
 


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 9:38 AM (GMT -6)   
lymekiller said...
omg i wish i was well.. same to you... does it really get to you that your brain doesnt function like it used to because this is my most disturbing symptom... how long have you been getting treated and with what??also do you have dark bags under your eyes everyday?? do you have any wierd seeing problems?
I have been sick for three years. I went undiagnosed for 13 months. finally after seeing numerous doctors " that had no clue" I found a LLMD and started treatment. I was on Doxy, Flagyl, & Erythro. for eight months with some improvement. My last LLMD retired, and I am now seeing a new LLMD. I have been off all treatment for almost a year. I just had some new blood work done through IgeneX. My new LLMD started me on some new supplements and just called in an order for Zithromax.
 
 
 
 


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 9:52 AM (GMT -6)   
lymekiller said...
yeah i seen some doctors that said they had no clue its pretty frustrating... they acted like it was all in my head ya know...what bands came up positive on your western blot?
Yeah, they mever actually came out and said they thought I was crazy, but I can read peoples faces very well. : )
 
I showed
 
41++
39+
and had indicators on other bands as well, just not a +
 
 


IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 5/8/2009 10:06 AM (GMT -6)   
I've been treated off and on with Zithromax for a while now. It's been one of the most effective medications for me. I first took it when a doctor suspected that I had an ear infection. I took it for 5 days. On the 3rd day, my ears started ringing, and they haven't stopped since. That was over 2 years ago. Tinnitus is a possible side-effect of Zithromax, but it's also a symptom of Lyme and some of the co-infections.

Zithromax can also be harsh on the stomach and the rest of the GI tract. You should probably take regular probiotics if you aren't already. I think that a combination of Doxy and Zithro is what caused me to become lactose intolerant. I don't know if I'll be able to regain my ability to digest dairy.

Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 10:18 AM (GMT -6)   
lymekiller said...
what did your symptoms start with ?? for me it was fatigue and joint aches and then brain fog with visual disturbances
GI distress
nauseia
icthy skin, & eyes
fatigue
ringing in ears
and the list goes on and on.....
 
 


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 10:43 AM (GMT -6)   
lymekiller said...
which anitibiotic regimen actually kicked the brain fog for you though do you know??
It's hard to say for sure which one but, my brain fog did not go away untill I was on Levequin. I only was on it for a month before I started having tendon pain and had to stop. But I feel it may have helped the brain fog. I was also taking Doxy, Flagyl, and Erythro. for about eight months with no paulsing.
 
By the way, my new LLMD has me on a strict no dairy diet. I never had a problem with dairy prior to my tick exposure. My GI issues were one of my first symptoms well before I started any ABX. Just my experiance. 
 
 


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 5/8/2009 11:10 AM (GMT -6)   
lymekiller said...
did it go away totally.. did your brain return to preillness functioning...im sorry about all the questions im just worried ya know
Most days I feel normal "in the head". I do still have accasional days of mild brain fog.
 
 


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/8/2009 11:38 AM (GMT -6)   
My broken record---- I think we all should get the flow cytometry test. centralfloridaresearch.com
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. getting the Flow Cymetry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. she is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 5/8/2009 3:07 PM (GMT -6)   
Lactose Intolerance can be related to bacterial imbalance in the small intestine. If a person is not lactose intolerant before Lyme, Probiotics and treatment for Lyme/coinfections should improve lactose tolerance. Just my $.02...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.

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