Lyme or Alzheimer's ??? What do you all think...

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HopeFloats
Regular Member


Date Joined Dec 2005
Total Posts : 123
   Posted 5/12/2009 6:25 PM (GMT -6)   
My husband has been diagnosed with lyme since 2002 - but we believe he was bit in 95 and went untreated.  He has had problems with memory, confusion, dizziness, no sleep or too much sleep, etc etc etc.  His neurologist has always been hell bent on it not being lyme even thought he had a positive spinal tap - he also suffers from babesia and Q fever. 
 
This neurologist has performed MRI and SPEC scan both inconclusive for alzheimers - reports say not consistent.  So confused and don't know what to think -
 
Is it lyme ??????

gotlyme
Regular Member


Date Joined May 2009
Total Posts : 21
   Posted 5/12/2009 8:17 PM (GMT -6)   
I think your first concern should be finding a new neurologist who isn't anti-lyme, or at least one who will actually pay attention to results of tests I can only assume he ordered. Why run tests if he is going to disregard the results when they don't meet his guidelines? What reasons does the neuro give for not believing it to be lyme?

I would go with the test results and symptoms to get my answers, but I only have my common sense and my SPMD (Self Proclaimed Medical Degree,) I don't know his reasons although by nature I question his motives.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/12/2009 8:30 PM (GMT -6)   
lyme just gets in there and messes everything up across the board. My mri and spec showed noithing either. and I could barely drive there.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 5/13/2009 5:06 AM (GMT -6)   
A positive spinal tap? I would definitely pursue treatment for Lyme disease from a Lyme literate doctor.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, possibly just tested positive for koseri IgA, Morganella motgani,Rocky Mountain Spotted Fever (RMSF - yay! another acronym), Typhus Fever, Klebsiella pneumonia, Proteus miabilis, Citrobacter i IgA, Hafnia alvai IgA, NKC4, Interleukin 4 (IL4), IL8, Immunobillin (IM01). 
Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Acidophilus, Lyrica 600mg
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 12:00 PM (GMT -6)   
i would like to know if anyone here does , how can they tell if you have lymes by doing a spinal tap? what is the perpus of this?
my nero wants to do this to me. i am very scared to have this done.do to already haven a bad back.

gotlyme
Regular Member


Date Joined May 2009
Total Posts : 21
   Posted 5/13/2009 4:07 PM (GMT -6)   
the lyme bacteria can be seen in spinal fluid just like it can in blood. Probably more so. But I would ask your dr how it would change treatment before you do it. If you are going to get the same garbage of "the test is positive, but that isn't what it is" or "the test is positive but I still can't help you," then I am not sure I would want it done either.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 6:55 PM (GMT -6)   
Thank you both for your input. i will be asking the nero more about this b4 either going thro or not.

RD

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 5/18/2009 10:54 AM (GMT -6)   
RD,
I think I remember reading that a spinal tap shows positive in less than 30% of the patients with confirmed LD.  Ask lots of questions before consenting to a spinal tap. 
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 

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