A Walk in the clouds

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RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 5:16 PM (GMT -6)   
 
 not sure why or if its due to meds, i am taken Meclizine witch makes me high then they added Gabapentin along with Celerbex i have been on for 9 months now. i can best explane how i feel today is as thouh i am walking in a cloud, my arms and legs along with the rest of me feels as tho i am made of rubber. i cant even think stright, it took me 2 hrs just to wash my dishes shakehead   a'm i goign crazy or do you think its meds. i know i need them.
 
celerbex for joint pain, cant live without it. it doesnt stop it all but makes it barable for me
 
Meclizine for the vitergo, seems to help.
 
Gabapentin for the headaches they are done to a dull throb now, no migrains seen i've been on it, (only 5 days now)
 
any input would be nice. Thank You.
 
  RD

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/13/2009 5:35 PM (GMT -6)   
Celebrex is supposed to be excellent. i know there's some debate about it, but I've heard great things.

Anyways, I believe it's the cocktail of drugs that may be causing this rather unpleasant "walk in the clouds".

Are you under the care of an LLMD or a regular doc?

Either way, check in with the good doc -- whichever -- they only try to help!

Take care RottenDog.

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 6:52 PM (GMT -6)   
Thank You hopingToFindCure,

yes i agree with you on the celerbex. since i have been on it, 9 months now i have not had the useal pain in my left elbow. i have lived with it for 29 yrs now, but now on celerbex wow no pain there, so i can just amagin what my other joints would feel like without it. just my whole body is 1 major pain. and sometimes its worse, like i'm 1 huge bruise. i cant even stand to touch myself. thats the hardest part for me. but now with this cloudy feeling its tuff. i did call the phramise about it and they said it is subosed to make me sleepy.

ok i take a chance of a DUI to go to the docs ugg thats not good or i just dont take meds on doctors dates, witch for the next month seem to be everyother day..lol

ohh ahy they want to see me but not treat me for lymes till they ruleout everything elses, or use up all my alotted money, the butts.

i'm so mad about all this, its like my dog has lymes, my MRI shows lymes as a possable couse of the brain lesions, my lymes test shows lymes. flipping trest me for lymesss dang it.

I want to be able to walk my dogs again, and not take 2 hrs to wash dishes this is bull.

cant we all go to the CDC or whoever and get treatment for us. if enough folks stand together agenst them , you would think they would have to take noties that lymes is out there and they can no longer hide behind there desks, and get folks like us treatment.

sorry for venting, its just no one here at home understands what i am going thro or been going thro for the last few yrs. its like being alinated by everyone who cant or wont understand. like many of you have said b4 you look ok therefore you should be ok. what a crock.

wishing everyone all the best. in health and or treatment.

RD

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 5/13/2009 8:37 PM (GMT -6)   
Rottendog, I'm also sorry for all you're going through. Most of us suffer from so many symptoms it's often very hard to tell when it's a symptom of Lyme Disease or a side effect from the meds.

I get just as angry as you do about it all and think we should all get together and file a class action law suit against the IDSA and the CDC. I'm sure there are reasons why we can't or it would have been done already but it crosses my mind often. We all need to vent at times and thankfully all of us on this forum have a place to do so where others totally get it and understand, so go ahead and vent all you need to. I just did. lol

Hang in there and I hope you feel better.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/13/2009 9:09 PM (GMT -6)   
Celebrex has a bad side effect. Stoke. Happened to my mom.
She would not stop taking it.
For pain..take cymbalta and it will also give you energy and help with faitque..and weight loss for me.
And it will not kill you.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 9:10 PM (GMT -6)   
Thank you Gracie's Mom & scorpio1960,

its odd that the more i read and learn that this was coused by boiwarfair. if this is true in the smallest least amount.then i say we band together with whomever is needed and get the boi labs to stop never make up something they can controle or cure, no matter what its intended for. maybe it was intended for a test run on some socalled island , but look who is paying for it. we are, why idites wanting power. i cant say.
but i would be th first to say live and let live. we suffer and our kids suffer, and seems to me the IDSA & CDC couldnt care less. who knows maybe they do have the right cure to treat there familys and leave us out in the cold.

its like this, there is over 20,000 infected folks with lymes that we know of, who knows how many more there really is. we'er just the unlucky ones looking for a cure to our pains. but i'll be willing to bet if it was 1 of them going thro this they wouldnt be sitting on there butts. telling there doctors there is no such thing as lymes.

they wouldnt be able to even sit in the chairs for 8hrs a day to work and they would want the support of there familys and friends in there time of need. so why does it seem like its a crime for us to want the same thing. 1 there has to be a cure ot there somewhere, or in the very least a true treatment. take the blinders off and remove them for our doctors so we can get better.

i'm a beliver also in that vets can treat your pets a lot faster then humen doctors can treat us. this is so worng!!

my delmia is my PCP sayd its lymes sent me to a ID who said ( IF I THINK ITS LYMES ) after going to a nero to rule out MS, then he will treat me. and in treatment in his trems is IV abx for 1 month. thats all.
now i'm not sure but from the letters i have read here i dont belive this is enough.

i just want to crab then up and shake em slap em and yell (YOU HAVE A PHD, I DONT) its not my job if it was i wouldnt be crying out for help that isnt forthcoming.
yes my PCP is more then willing to give me any pain meds and has given me plinty. but i dont want them i want to be pain free!! i've lived with pain for to many yrs now. i say enough is enough. yes i am mad sorry.

unfuintely i'm not as bad as many of you are, for this i wish you well soon. but on the other hard i am heading your way very soon, from my perspective the only thing i have going for me is the brain uses to date , but the meds are puching me there.

sorry for the book and the anger.

wishing everyone well soon,

RD

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 9:18 PM (GMT -6)   
Martha's Vineyard

they did try me on the cymbalta it didnt do anything to eas my pain but it sure did kick it into overdrive. and on top of that when i was on it just 30mg daily i couldnt make myself get up out of my recliner or bed, yes i know there is resk to taking it and i am tested every 3 months why i am on it. so far so good, but untill they can give me something better that works i have to have it. just to be able to make it out of bed at all.

RD

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 5/14/2009 6:59 AM (GMT -6)   
hey rd.
It is so odd how medication effects everyone so differently. Some people take Cymbalta to go to bed. Odd.
Well....you have a right to be frusterated. We have all had out rants. Me more so than others...lol
Celebres is not to be taken more than 3 mos. But....you know...I have said my piece. I know that people are going to do what they need or want to do to be able to function.
It is just that it causes stroke. And was taken off the market. Pain is not a fair trade of for stroke. You think you are bad off now.
I just cannot believe that these drugs are legal.
But who can sue Lily...good luck.
The USDA is the one to blame for lyme...and so it our gov. They are doing all they can to keep a tight lip about what they did at lab 257.
Who on earth was the dumb ass that thought it would be a good idea to hire Adolf Hitlers right hand man in bio war agents?
I mean did they really not think that testing in open air cages was such a great idea. With the mirgration of 150 millions birds across the usa...
They did do testing. Our own gov. dropped it right down on top of us here in the USA.....
But the Hamptons and Conn. are the last places on earth I want to be right now. the risk it so high. Yet the presss stays quiet. Becuase it would ruin buss out there.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/14/2009 10:54 PM (GMT -6)   
blive it or not there is more coverups then 1 would amigen, this coming from a navy brat. i just think its time make them answer to the suffering they have coused so many, my way of thinking is you make it up, you better have a cure first. there is never any reson whatsoever for a child to suffer at human hands!


and yes Martha's Vineyard, i do know about the risk of celerbex. i do get tested every 3 months b4 i get a refill on it, but untill they can give me something else for the pain that helps i'm stuck.yes it sucks but i have no opptions. i was not able to walk till i was placed on it, had surgery on my right knee and then PT for 6wks shots in it and everything else you could think of, this is only thing that helped. no i dont want to have a stroke either. i did go thro all other opptions b4 the celerbex tho and nothing at all works. just my luck
   RD
                                                                                                                 
 
still looking for answers
 

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