anyone heard of this?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/13/2009 11:16 PM (GMT -6)   
 
 
reson for my asking is i was on doxy3/2/09  7 days b4 i had to stop it was making me so sick, i couldnt handl it any more.
then i was given prednisone 3/26/09 also had to stop taken it due to reaction i had.
 
had my lymes test (blood test) date they received it 4/15/09
 
came back present 41 IgG Negative   but the IgM was present for 41 & 23
 
so out of the mouths of my Dr.'s i test pos for new infection not old, but this shows me  they dont have a clue. i have not been bit by anything in yrs now that i know of. 1st off you have to be able to go outside, only time i'm out nowa days is to go to the car and back.(for Dr. appointments)
 
I use stuff on my dogs to keep ticks away, as my male is alergic to flies (only had 1 bits from a flie, huge vet bill)
 
so  this is what i'm thinking and want input on. do i go into my Dr. office and demand they treat me  for lymes or do i let them go at there own pace and run there flipping test to prove to there selves i have lymes.
 
i am finding so many things  that fit me  like 1 report for the nero part of lymes  has a list of 12 things i have 7 of them.  so if this was you what would you do?
 
plz help me i sure could use it.  living in Tx where i do my guess is they dont know or understend lymes. and i am not able to go elsewhere.
 
so confused
  RD

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 5/13/2009 11:22 PM (GMT -6)   
Positive IgM means active infection, no matter when you picked it up initially. If I were you, I would ask for treatment from the doctor who did the test, and then look for an LLMD close by where you live (make a new post about this) to manage your treatment. This is just my humble opinion...

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/14/2009 12:15 AM (GMT -6)   
Thank you Razzle,

i emailed the turntheconer folks and there is not a LLMD for my arera, just my luck, and i can not afored to go anywhere else. i'm at there mericy. as for the PCP who did my lymes test he sent me to a ID, i know more about lymes then he does. and the ID Dr. sent me to a nero. and both nero and ID said i show pos for new infection but not 1 has done anything for it. so unless i find a way to treat myself looks like i'm s.o.l. ( so out of luck)

gotlyme
Regular Member


Date Joined May 2009
Total Posts : 21
   Posted 5/14/2009 7:53 AM (GMT -6)   
I am sorry this whole lyme deal is so difficult to get drs to pay attention to. I hope you have a sympathetic dr who will at least try to do some research. Good luck.

I can't really give advice on whether you should ask the dr what to do because drs are different. You want to take charge of your healthcare while at the same time making them think it is their idea. I have not had good luck with any drs I have seen to date and I am no longer willing to be on countless antibiotics. I know it works for some people but I have never been able to hold down abx, so I'm not wasting money on pills that I throw up.

Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/14/2009 2:24 PM (GMT -6)   
If they agree that you have a new infection, one of them ought to be willing to treat you. I was afraid that the ID MD wasn't going to treat me because I reacted posive to old Lyme, but only one band reacted positive for a new infection, not enough to confirm positive according to the standards. Someone told me not to forget that the Drs. are working for you. You might need to be insistant and persistant, but don't give up! Is your vertigo any better?

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 5/14/2009 3:04 PM (GMT -6)   
Hello, Where do you live? I live in Oregon and have been told by too many Dr's Lyme does not excist here and all my Positive test are wrong.
 
After my 3rd positive test the CDC called me to ask questions about where I thought I got my Lyme and eveywere I had ben in the last few years. I said what do you mean I have Lyme none of my Drs will treat it. She said DUH, you definitly have Lyme and need to be treated.
 
She called my Nuero and asked him if he needed to know the treatment guidelines. That got me one month of Doxy. I was lucky that my PCP was willing to keep filling that RX for me.
 
That was a few years ago, I have actually been symptom free for 2 years, had a Baby Girl and a few weeks ago all my Nuerological symptoms are back. I am heading out right now to have an MRI and see my new Nuero who also thinks I don't have Lyme but MS, but she is my last Nuero in town that hasn't throwm me out. So I don't argue with her.
 
I can't believe i have to do this again. I am also now at a financial standstill and there is no way i can travel out of state to see any of my LLMD's. I am all on my own. I am so angry with our Health Care.
 
 
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 5/14/2009 3:07 PM (GMT -6)   
RD,
When you say that the Doxy was making you sick, were you taking it with food?  I tried to take it on an empty stomach and I couldn't handle it.  My doctor said I could take it with food, but I don't remember what I used to take it with but it made it tolerable.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/14/2009 4:59 PM (GMT -6)   
gotlyme, i hear ya they take our money b4 we can walk thro the door, just to say nothing really, its like putting your head agenst a wall, sooner ot later you know its going to hurt so you stop, its a shame too.


Thank you all for the posts,

Turquoise Sky, odd as this is i show pos for new but when i tell em its old due to not being bit in yrs they have no answer, 1 Dr. the ID said ( if you think its lymes i will put you on IV abx for 1 month) but only after i go to a nero and rule out MS. the nero i whent to friday said he didnt belive i have MS. but he said i have low blood flow to my legs wants to run test on them and also he wants to do a spinale tap, i do not want this done tho. as for the vitergo, i'm not sure its better or not, then new combo of meds makes me feel like i'm walking in the clouds and body is made of rubber....lol

Really Lyme, I live in Tx. and my ID said point blank, there isnt much lymes here. well i have only lived here for 3yrs. i was in Mn. Wi. Tn. Al. NJ. NY.Pa. in the last 6 or 7 yrs, so i could of got this anywhere,maybe i need to call the CDC, and maybe they can make the Dr. here treat me. i know when i go back to the ID next month he better have on his fighting suit couse i plane to fight em all i can for treatment. i wish you luck in yur battle of the lyme. or should i say the battle of the doctors..ugggg

KO-LD, yes i did take it with food, matter of fact i took in the middle of a meal, this seems to help me the most, but i know i had doxy b4 and cant remeber it making me so sick, but i do have a lot of trouble with most meds. this is 1 of my biggest fears in the disease.can i or will i be able to handle the meds called for to help me.


ok so i whent to the eye Dr. today and said i have in laymans terms a sty that whent wild, yukk so the good news is no sergery, but he belives lymes is behind it, that and my blurrey vison. so he relesd me from his care.needless to say i am still going nowhere fast.

thanks again for all your input, wishing everyone well soon,

RD
   RD
                                                                                                                 
 
still looking for answers
 


Turquoise Sky
Regular Member


Date Joined Apr 2009
Total Posts : 250
   Posted 5/14/2009 7:01 PM (GMT -6)   
Well at least no surgery. Hope things go better soon!

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 5/14/2009 8:47 PM (GMT -6)   
RAZZLE (Or anyone): If positive IgM means active infection, what about IgG?  In a couple of my references, I noted that positive IgG can mean an active infection or an old infection.  Would this mean that an IgG  reaction on a Bb specific band could mean there was an infection in the past that has resolved?  Is IgG specific to inactive and/or old infections?   And if so, appx how old is 'old'? Is it possible that IgG might also signal a current infection?
 
My very humble thanks for your educated opinion.  Already disclaimed: we know you are not a Dr or diagnositic lab, nor do you profess to be.  I will not hold you to your answer, but would appreciate your input.
 
 

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/14/2009 9:34 PM (GMT -6)   
If you read dr. burrascanos lyme guidelines, He states that after antibiotics your lyme antibodies can possibly go up. this may confuse your docs into thinking it is new since antibodies are usually up only in newly bitten cases.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 5/14/2009 11:27 PM (GMT -6)   
No, IMHO, IgG is not specific to "old" infections. IgG means there has been exposure - whether that's current/ongoing infection or past/old infection.

If I remember right, the body starts to convert IgM into IgG after a couple of months...at least, that's what the "ideal" is. This "ideal" assumes, though, that the immune system is functioning normally, which in Lyme Disease, we already know is at least partially messed up by the Lyme itself. So the generation of antibodies can be suppressed completely, or the ability to generate enough to show up on the test can be compromised, the ability to generate IgM may be supressed but the ability to generate other antibodies such as IgG may not be, etc.

I think a key thing to look at with the IgG in particular is whether or not there are changes in results from one test to another (from the same lab). Changing bands means active infection. So for example, say on one test, IgG is positive at bands 39 and 41 and then the next test done at the same lab shows IgG positive at 23, 31, and 41. This would give good evidence of current, active infection based on an IgG test.

And keep in mind, too, that the test is only able to detect free-floating antibodies, not antibodies that have found a target to stick to (a part of the lyme bacteria, for example). I think this may be one reason changing bands is more significant...it illustrates the changes the bacteria make in an attempt to elude the immune system.

I hope all this makes sense...and it is just my interpretation of info I've read here and elsewhere, stuff LLMD/LLND's have told me, conversations with local support group members, etc.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 5/14/2009 11:33 PM (GMT -6)   
Thank you Razzle for the explantion
   RD
                                                                                                                 
 
still looking for answers
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 6:26 PM (GMT -6)
There are a total of 2,858,628 posts in 313,667 threads.
View Active Threads


Who's Online
This forum has 155257 registered members. Please welcome our newest member, SpikeX77.
558 Guest(s), 14 Registered Member(s) are currently online.  Details
PeteZa, super20dan, Hateanxiety, Woogy, Scaredy Cat, Garylhp, emotions, Lynnwood, ASAdvocate, kaileygirl, SpikeX77, Tim Tam, Aerose91, Labradorite


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer