brain swooshing or clicking information. Is it asco w lyme? a problem

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veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/14/2009 1:31 PM (GMT -6)   
My Lyme doc had no idea what I was talking about when I spoke about the brain swooshing. He said your nose is stuffy isnt it. I hate this s.... I said this has been happening for 4 years. It began near my ears on the side of my head now it it on the top of my head also. i said I spoke w alot of lyme patients of lyme on this forum they said its hypercoagulation he almost laughed. I read and you all have told me this could be hypercoagulation. Is there a test for this. Why wouldnt a Lyme doc know about this.
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 5/14/2009 1:57 PM (GMT -6)   
Yes I had this for a few years. Swooshing inside my head, also a feeling of vibration. I used to hear a lot of clicking inside my head, most of the times it was on either side of my ears in addition to the ringing and buzzing. Now with treatment most of that is gone. Many Mds I went to looked at me like I was nuts when I would describe this. I even went to an ear nose and throat MD who was one of the 32 doctors I saw before being diagnosed--he said my ears were fine and maybe I needed to see a psychiatrist. I told him I thought he was a lousy diagnostition. Blessings
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 5/14/2009 1:59 PM (GMT -6)   
Most doctors look at me like I'm nuts. I have huge pops in the back of my head and a grinding like chalk a little further down. Occasional clicks around my ears. I didn't know it was hypercoagulation! Will aspirin help?

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 5/14/2009 2:14 PM (GMT -6)   
What is hypercoagulation exactly??????????????
DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
DX Micoplasma
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline 9/08
modified cowden protocol 3/09
Outstare The Darkness--The Light Will Come!


kelly1234
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 5/14/2009 2:49 PM (GMT -6)   
I've had this also. I would get it when I was running on one side of my head. I thought it was a little weird, but at the time had no other symptoms. Years later, little did I know, that it is a lyme symptom.

I'd also like to know what hypercoagulation is.

judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 5/14/2009 3:58 PM (GMT -6)   

I am not sure what you mean by brain swooshing, but I can try to explain my symtom, I feel  a very strong pulse on the left side of my body, sometimes my  head, sometimes my back, chest or legs, I am not sure what this is , have been to a neuro and am not ready to do further testing, what he told me is ifit feels like a pulse its vascular if it feels like vibrations is neuropathy, I am feeling fine besides this, have been treated for Lyme for apprpox 1 1/2 years, have been of meds but had some throid issues, my endo said low thyorid can also cause this vibrating feeling.

Most real LLMD's dont laugh when a patient comes in with a strange symtom as the best advise I was given when I first became sick is that WITH LYME EVERYTHING IS NORMAL, kept me going, are you being treated?


scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 5/14/2009 4:29 PM (GMT -6)   
Before starting treatment, I was ocassionally experiencing swishing in my right ear at night. Since starting treatment, it's so loud in both ears at all hours that I need to sleep with the sound machine on loud and often keep the tv on during the day just to drown out the sound. We certainly do get stuck dealing with the strangest symptoms.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 5/14/2009 8:21 PM (GMT -6)   
Well coagulation is what happens when you get a cut right. your blood thickens and forms a scab to close off the wound. An immune response. So it would make sense if lyme messes w immune response that this could happen. This swooshing sound for those who ask I am theorizing and I think others are implieing also that, the blood in our neck and head is in a hypercoagulative state. i not only hear it i feel it. Dr. Burrascano guidelines shows that a hypercoagulative state is a sypmtom of babesia . Located on this site page 26 http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
In the begining there was no Lyme. And the line is faded not showing where it came in. I became a new Mother and my Lyme decided to show itself. They said my blood tests were normal nothing was wrong. My swollen elephant like knee and finger and the unbelieveable back pain was just low vitamin D. I had a butterfly rash years before. When I told the rheumatologist I had the butterfly rash he said a key sentence. A butterfly rash is only present in lupus or Lyme disease. Well lupus pain is not in the back. i finally realized all the warning signs I had before. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. Now I pressed on. To a Lyme doc, after a nice run around and a lot of there is nothing wrong with you and a recomendation to counceling, He said Veronica this is Lyme and I am going to treat you. Now he knows and I know, Lets get it on paper. Getting the Flow Cytometry test. What kept me pressing on in the face of such amazing and eye opening adversidy is the baby! I had Lyme while I was pregnant Luckily I know I was not infected while pregnant. She is 19 months now and healthy. I am watching her with an eagle eye. God Bless everyone. Love Veronica.
P.S We are the ones who know about Lyme not the doctors. Isnt that just mad. Backwards . Alice in wonderland.

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